I have essential thrombocythemia and frequently sweat profusely when others around me do not. I am taking agrilyn and hydroxurea and have asked my hematologist about my sweating but he says it isn't a symptom of my condition. I have had platelet counts over 1,000,000 but with both meds, the count is down to about 400,000. I also have a numbness in the toes and balls of my feet. Is this from the medications? Can anything be done about my excessive perspiration? It occurs all over my body> Help!
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I have ET also and suffer constantly from excessive sweating day and night. I am on both agrylin and hydroxyurea as well. Need help.
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Me too! I am on hydroxyurea. I have 'hot flashes' and sweat with no relief! At all!!! Miserable is an understatement! It HAS to be a symptom of the ET. I am miserable every single day!
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Since taking hydroxyurea to reduce my platelet count from over 700,000 to an acceptable 400,000 i have no side-effects other than excessive sweating when undertaking a physical activity, mainly tennis, within a short time my hair is dripping with sweat whilst everyone else is dry. Seems like a similar situation to others on the drug?? Cheers, Mal
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I have had a DX of ET since 2002. Started with a platelet count of about 620 and it's currently on 760. It's up and down as you probably all know. They put me on HU but after 18 months my higher self told me to stop it, which I did. I just use aspirin now. Regarding hyperhidrosis. I get this exact set of symptoms. Poor thermal regulation, occasional spontaneous sweats are rest and always on exertion. It's not your meds causing it. It's the condition imho.
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