I have the same issue. Many blood test, ultrasounds, meds & too many other test to count. I was an aerobics instructor in a High School for 15 yrs & had to give it all up. My body could not handle the stress & the extreme fatigue was killing me. Weight gain became a major issue for & still the numbers are rising. I am currently taking Synthroid & am now researching an autoimmune diet. Trying to get relief from my symptoms. Yesterday I started educating myself on what foods I can eat. This journey is going to be a tough one but I have to survive this disease!
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Im on Synthroid and 25 mg. I lost at first but then after being on it a year I can't loose anymore and I am 145 I should be 130 Id even settle for 135. My doctor said he is surprised he has not had to up my dosage. Most people are on higher doses. I go back in August will see then. How many milligrams are you on and your doctor should be checking your blood for your levels at your check ups every 6 months to a year.
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Believe me I know the feeling, I am doing basically the same thing as you are. 700 calories a day, one calorie more and I gain again. I think we just trained out bodies to want less food, and when we consume more we gain. I guess we can never have fun eating again.
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Maybe you have food allergies. I got off wheat, dairy, corn, and grains, and my weight stabilized.
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One gains weight at onset of new thyroid med as your body metab wasn't working. Hence with med body has hard time adjusting to correct thyroid med. My experience with leveythyroxin weight stayed until I was diagnosed with autoimmune thyroidits with more weight gain. With autoimmune system not working correctly, in moves ankylosing spondylitis (inflammation in spine pelvis effecting hip replacement. And all types of hot spots from toe to head more weight gain. At each turn it is depressing to. Not be able to lose wt is depreesing, just make sure to keep in shape with food and muscles you can control. Stay strong!
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I am in the SAME EXACT situation. I am on 100mcg of generic synthroid. I have gained 20lbs in the past few months and it's really horrible. My numbers are also fine. My bloodwork comes back great, my symptoms and scan of my thyroid say Hashis.
The synthroid helps mostly with my mood but NOT the fatigue, skin issues, weight gain...
I just don't get it at all.
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I am 54 and recently diagnosed with Hashimotos and Reynauds disease. My wt is sky rocketing; I used to weigh 112 pounds (at 5'3) and now I weigh #142. I AM DESPERATE TO LOSE WEIGHT! I take 150 mcg of Synthroid and my levels are great but my antibodies are high (should be 30 or less and mine are 217). I follow a strict diet but nothing works. I don't know what to do :(
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I have had edema all over even in my brain which causes migraines. I am suspecting I have Hashimotos as I have same symptoms as some of you. I've had health problems since I was 22 . I am now 57. I went to a Dr. In 2004 that helped me tremendously. One thing she told me to take was acidophilus (a live probiotic) It helps in many ways; but one great thing it helps is to balance the body's water. The only one I found that really worked for me was Blue Bonnet as it is one of the few that has fructooligosacharrides. It is refrigerated and can be found in most health food stores. I started with 4 caspsules 2 x day. Once you feel your edema is gone or under control, you lower the dose. I only take 1or 2 caps 1x day when I need it, sometimes 3, depending on how much edema I have. I do not have to take it every day any more, but when I notice the edema returning I take it to maintain water balance. It helps the gut Flora which is key to good health among other things. Hope this helps!
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I have suspected I have had thyroid problems for years. I used to weigh 110 lbs. Which is the correct weight for my 5'2" build. I've always had trouble keeping my weight down, but did so, inspite of occasional weight gain of 5-10 pounds in a week. After my 3rd child was born my weight sky rocketed from 132 after delivery to 148 in a matter of a few weeks. In my 40's I gained 12 lbs. In 1week. I just recently gained 17 lbs. In 2 weeks. This has happened even though, as before, I watch what I eat and exercise. I have gluten sensitivity, and tons of other problems, including 2 other autoimmune diseases. I've had doctor's look at me and say I think you have a thyroid prob. And a thyroid nodule. But after the blood work comes back they dismissed all clinical symptoms because my TSH is almost hypothyroid , but still in the normal range. I now weigh 175. In 1999, I told several physicians about the pain in my neck that I had on occasion. They just brushed it off as arthritis, of which I had not been diagnosed, at the time. I now have a thyroid nodule that chokes me and bothers me a lot!
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If you are eating right and exercising, but not loosing weight, it could be several factors that are preventing weight loss. One factor could be maldigestion. If you have this you will not absorb the nutients from your food very well. Our food supply in the US is already depleted of enough nutrients for optimal health. Supplementation is a must to keep the thyroid working properly.
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Most people, if not all, with Hashimotos are gluten sensitive or celiac. One thing to consider is the drugs you are taking. If they are generic, there is a high probability that the med has gluten in it. I also have narcolepsy, along with Hashimotos and Ankylosing Spondylitis. If you have the HLA Gene you will develop gluten sensitivities and it can lead to celiacs disease. Narcolepsy is a disorder in which you fall asleep while doing most anything. Examples are: doing paper work, waiting for a red light to change, etc. The brand name drug Provigil works great for me and keeps me completely awake during the day. But, my insurance has imposed a copay of $200.00 for a 90 day supply, of which I can't afford. The generic Modafinil has 54 mg. of gluten in it. I just found this out. That explains why I would get heartburn and why I would still fall asleep while paying bills, etc. Anytime I eat gluten I get very sleepy and need a 2 hour nap. I am not diabetic either! Just giving an example of how gluten in our meds, and most generics have it, can affect how you feel each day ,not to mention the amount of damage the gluten is doing to the villi in you intestines and to your brain.
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You sound exactly like me. One day I got up and noticed I gained a few pounds, and then everyday after that, I would gain another 1/2 to a 1 lb. everyday, until, I gained over 20 lbs in 2 weeks. My blood pressure, went up to 200/100 and my cholesterol kept going up. I went to a quack who told me I had hashimotos, and leaky gut. He gave me all kinds of pills, which made me sick, and I spent over $7500.00 dollars for someone who could not help me.
I did a lot of research, and realized I had to be strict with my diet. All I ate was fruit, veggies, and protein, and the weight was slowly going down. I took supplements to nourish my thyroid, and just did not give up. It took me almost 3 years to lose 20 lbs. but now I weigh less than I did in high school.
I think if you bring down your inflammation, and follow Dr. Wentz, that you could help yourself like I did. She is amazing, and I know she can help you. You just have to do exactly what she tells you to do, and do not deviate. No cheating allowed, and you will see, it will work for you too.
I did a lot of research, and realized I had to be strict with my diet. All I ate was fruit, veggies, and protein, and the weight was slowly going down. I took supplements to nourish my thyroid, and just did not give up. It took me almost 3 years to lose 20 lbs. but now I weigh less than I did in high school.
I think if you bring down your inflammation, and follow Dr. Wentz, that you could help yourself like I did. She is amazing, and I know she can help you. You just have to do exactly what she tells you to do, and do not deviate. No cheating allowed, and you will see, it will work for you too.
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54 Y/O man here. I've been Hashi's for 20 years. The instant my thyroid failed, and I mean the instant, the problems started. The weight gain, the water retention, the salt sensitivity, the reactive hypoglycemia, the loss of testosterone etc. In fact, I ended up in the cardiac ward shortly after the thyroid failure due to AFIB.
Conclusion, it's a struggle, as thyroid meds DO NOT accurately control metabolism. Metabolism is, in a healthy person, an active process. When a healthy person eats, metabolism increases.
However, those with Hashi's have metabolism controlled by a pill. Eating now actively results in an insulin spike, driving down blood sugar and converting food to fat.
The only answer is to very carefully moderate calorie and carb consumption. I do best eating throughout the day, 150 calories at a time. And I avoid all forms of salt. No risk of shortage with today's foods!
I also moderate liquid intake. If, for example, I drink an unsweet iced tea, I simply retain the water. If I drink 3 because I'm really hot and thirsty from working in the yard, I bloat right up and have difficulty breathing. I retain the water for days.
Off to the gym for a good workout!
Conclusion, it's a struggle, as thyroid meds DO NOT accurately control metabolism. Metabolism is, in a healthy person, an active process. When a healthy person eats, metabolism increases.
However, those with Hashi's have metabolism controlled by a pill. Eating now actively results in an insulin spike, driving down blood sugar and converting food to fat.
The only answer is to very carefully moderate calorie and carb consumption. I do best eating throughout the day, 150 calories at a time. And I avoid all forms of salt. No risk of shortage with today's foods!
I also moderate liquid intake. If, for example, I drink an unsweet iced tea, I simply retain the water. If I drink 3 because I'm really hot and thirsty from working in the yard, I bloat right up and have difficulty breathing. I retain the water for days.
Off to the gym for a good workout!
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