my granddaughter has lca disease and nothing can be done to save her eye sight until scientist start working on her gene that cause this. is there any one out there that can tell me how to get help on getting some one to work on her situation she is a precious happy go lucky little girl that depiet her going blind she still trys her damness to do what ever she can to help you.thank you a desperate grandmothertrying to save what eyesight she has left.
Sorry to hear this you must prepare her for the day she will cease to see.Get her familiar with her surroundings.Do not shy away with helping her with her daily hygiene needs.
we are already doing that but with the right dr. we can prevent this from happening.i need to know what to do to have sceintist work on her gene that's causing this and she can get help with stem cell therepy