Post Thyroidectomy Problems

Hey just read your post and guess what !!!!! you are not alone....... I had surgery about 8weeks ago to remove my thyroid completely, after surviving thyroid storm relating to my then graves disease.... I am suffering all of the same symptoms as you are, and feel like im losing my mind some days..... there seems to be so many of us girls out there with the same probs, i just take one day at a time....

I too had a total thyroidectomy about 3 weeks ago. I cant eat because my throat still feels swoolen, I cant sleep. I feel this terrible feeling of anxiety when I try. I cant get up in the morning because I feel shaky and tired......

Thank you for the post very informative. I am taking syntroid 88mcg, and I wonder if can stop taking it and switch to Armour Thyroid, and if I need prescription for this? Also my sister had thyroidectomy 13 weeks ago and she is getting depress sometimes, even do she is taking the syntroid, but never before she felt this way. Thank you in advance for your comments.

Hello,

I had my thyroidectomy two days ago and I am feeling terrible with my hands and feet tingling and being numb. Plus I have a headache. I have been taking Caltrate D and it is not helping at all. I have to return back to work in two weeks and I don't know what to do. My RAI will be in May.

 

Hi...I feel you... I had my TT last August 2012...I suffered with tingling in hands and feet...At times I felt sand bags in my hands...and my let pinky hurt in the second joint.... After the second week I was feeling very weak and my heart rate was dropping, I decided to go to the hospital...where they confirmed very low calcium levels and they "infused" calcium in me via IV....I battled low calcium rates for my first 6 months... I finally found the combination: I take 1800mg twice a day (3600 mg) and 2 .5mgs Calcitriol twice daily as well.... my Endo says that is way above normal levels...but that works for me....thankfully.... as a result I have to take elevated amounts of stool softeners and magnesium beacuse it causes constiption...
The first week after the TT your body is adjusting and recouping from surgery....rest as much as possible, drink plenty of fluids and give yourself a break...things will get better by the day.... the secret is finding what works for your body....and to get there you need patience!! I pray GOd's blessing and care in your life

Please. don't make the mistake of self medicating.... the thyroid is an important organ for us....we cannot survive for over 6 months without it... DO NOT make decisions to change or stop without your DOctor's advise... if any changes are to be made in your perscription, it should be made only by your doctor....

Hello, I just had my Thyroid removed and I am in trouble with absorption of calcium. Was this your problem. Any help you can shed would be great.

Hello, I just had my Thyroid removed and I am in trouble with absorption of calcium. Was this your problem. Any help you can shed would be great.

 

Can someone please help.

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I had thyroid removed. I am a bariatric patient and can not absorb calcium well. 

I TOO had the bariatric surgery 6 yrs ago...and had my TT Aug. 2012.... I have had a hard time keeping my calcium levels stable.... I take 3600mgs of OSCAL (1800 morning and 1800 night) along with 4 -.5mcgs of Calcitriol (2 morning and 2 night)...
That is working although, I find that when I have very active or stressful days, the levels deplete very easily...

I am a 27 year old female and 9 days ago I had a complete thyroidectomy due to Papillary Carcinoma. I just wanted to write about my experience because when I was researching, everything I came across was negative, so I hope that someone will find this and feel comforted by my story. For me everything happened very quickly, they found a lump in my throat; I had a biopsy (which by the way is not that bad) followed by surgery. It's very important that you find a skilled surgeon in this area. Don't just go to any old surgeon that does one of these every six months. I saw two doctors both of whom were very qualified and I picked one. I was diagnosed with Hashimoto's from the Surgical Pathology report which now that I think about it, really does explain some of my symptoms. It's been 9 days since my surgery and I have to say, I feel fantastic. I'm sorry that some people have had bad stories, but keep in mind, on the internet you will mostly find negative stories because face it. Misery loves company.

When I woke up, I was groggy and sore. I would say the most uncomfortable part of it all was that it is difficult to swallow. Imagine a very very bad sore throat. Your mind is hungry, but you can hardly swallow. Pain meds help and the feeling does subside each and every day. Every day you wake up stronger and better. I went back to work 4 days after my surgery and was back at the gym 7 days later (nothing fancy of course, no heavy lifting). I have been overweight for a good chunk of my life and even though I eat healthy and exercise, nothing was coming off. I’ve lost a few pounds so far but it’s only been 9 days so I can't really tell yet. The horror stories you are reading where people are gaining 30 pounds in 5 minutes, well clearly they are not eating right, I really can't imagine how people are gaining that much weight. I think it’s easy to blame the surgery. They started me on synthroid 150mcg. I was supposed to go on 137 but I asked for a higher does because I wanted to focus on my weight loss and they were fine with it (as long as I dont feel any anxiety or heart palpations) which I don't. I won’t see my endo for 5 weeks so I dont know for sure if it’s the right dose, however I can tell you that I have a lot more energy now and not feeling as depressed as I was. (You will feel tired at random times, but that's mostly from recovering from surgery than your thyroid) So there are good stories after a thyroidectomy, don't let the internet scare you!

Hello - I have been dealing with this since the morniing after surgery when I woke up to my butt and the back of my legs vibrating. They immediately sent off an ionized calcium and found calcium was low and gave me IV calcium. This has been an ongoing problem since and I am now on 6 grams of calcium a day. I split it in 4 doses every 6 hours. I was on 0.5 mg of Rocaltrol twice a day and now am on 1mg at6 a.m., .5mg at lunch, supper and bedtime. A week ago I went to Emerg and was shaking fr head to toe and had vague chest discomfort and they did and EKG and found I had a. Prolonged QT segment (which can make youprone to heart arrhythmias). I was in 2 days after that for same thing.

I hope my parathyroids get a clue and start functioning again soon

Good luck

Were you able to identify the problem and treat this? My daughter had a thyroidectomy in February and has all of the very same symptoms you are describing, along with depression. She just went on antidepressants and it seems to be exacerbating her condition. Her neck still is very very painful to the touch. Any help that you or anyone else can offer would be much appreciated.

Hi, Im Maureen. Im 43 years old and am having a total thyroidectomy Aug 16. Im very nervous about this surgery as I see all the complications everyone seems to be having. I am now on 350mg of levothyroxine. That is partially why they are removing all of it and the fact that is so enlarged. Almost 8cm. on the right side. Do you have any advice for me as to how I can avoid the issues everyone seems to be having?

FYI... the antidepressants have stabilized and she is like a new woman! SO HAPPY!!!!!!!!!!!!