Loading...
I'm not alone in this unexplained-widespread-swelling-phenomena. I am a bit surprised that this disease, whatever it is, hasn't been properly discovered and/or diagnosed.
I'm a 28 year old female and I've had random body swelling for over past 10 years or so. My feet (different parts and sides), knees, fingers, hands, arms, lips (upper and lower), everything. I've been misdiagnosed with everything. Finally went to a Hereditary Angioedema specialist (Dr. Marc Reidl) at the HAE center in San Diego to find out that they classify this aliment as idiopathic angioedema. Antihistamines to help control the symptoms. For me, stress definitely triggers the swelling attacks. Physical or mental stress. Sleep also gives way to attacks; I've awaken from sleep (even short naps) with swollen or tingling lips, hands, feet etc. Doc says that when you're asleep your cortisol levels drop, giving rise to attacks. No cure, just management. And unfortunately, it's hard to manage if you are constantly swelling up in random places.
Loading...
Have you looked into Type 2 diabetes? I am not a doctor, but I have several friends and family members that have it.
***this post is edited by moderator *** *** web addresses not allowed*** Please read our Terms of Use
Loading...
Loading...
Loading...
Loading...
Loading...
Loading...
Loading...
Hello Everyone. I have the same issues, unexplained swelling of hands, fingers, feet, lips, tong, and rarely esophagus. 4.5 years ago I did a food allergy test (IGG) which said I was allergic to just about everything except, turkey, chicken, salad.... So i started eating great. Of course giving up the beer was hard and every once in awhile I would get that swelling again. I attributed it to cheating a little and suffered the major consequences. Recently, I quit drinking and went under the largest attack of my life, eye, mouth, hands, hives on legs, hives on arms, I was a complete mess and could not go out in public. I was beginning to lose all hope so I went to the doctor who referred me to an allergist. I got the advance skin prick tests and guess what.... I'm not allergic to anything they pricked me with. I gave up chocolate, bacon, steak, lobster, shrimp, cantaloupe, wheat, barley, oats, gluten.... for what? Because I took some fraudulent IGG test that said I was allergic to everything? My diet has suffered and I don't get enough nutrients because I thought I couldn't eat everything including orange juice. Well that was all B.S. and I'm really pissed off about it because whatever is really wrong with me, I still do not know. However, the doctor saved me. He prescribed me prednazone... Remember that Prednazone 10mg- (I started with 5 a day). The next day I could feel my throat swelling up and I was going to the hospital. I decided to pop those pills (along with clariton D) as the doctor told me. 1.5 hrs, it wa all gone. I didn't have to go to the hospital and in fact I'm now on day 12 (off prednazone for 2 days) and no reactions yet. This drug saved me and I wish I would have known about it 5 years ago?
You see it all depends on the doctor you go to. If you go to an id**t, you get nothing but poor news. If you go to a real doctor who is smart and knows what they are doing... he can actually help you.
My opinion.... Get a good doctor and keep some prednazone by you should you get a reaction...
I have my life back because of this miracle drug. It seems this drug will help most of us with allergic reactions or angioedema and hives.
Spread the word.
Jason
Loading...
Loading...
Loading...