I have been dealing with this extreme problem since I was 28 years old. I am now 54 years old. So I am an expert on dealing whit is problem. First of all, I feel for all who have this rare problem. My attacks occur most in the lower two glands under the tongue. When the two glands on the cheeks swell, they can be the most severe pain. I have had it to the point that my hearing has been limited and my eye sight has been effected from the swelling. In the first few hours it is very painful and irritating then its like a levy of pressure being released. Other symptoms are severe dry eys and dry mouth. When this first started to happen to me, I sought help from the doctors and many of his tests which put him in a dead end. I also went to ENT's. I finally was sent to, by my Doctor, EMS in Norfolk, Va. This is where the Test Tube Baby was invented. I know, irrelevant. They did biopsy on my glands and gave me a diagnosis of SJOGREN Syndrome. Back then, very little was known bout this syndrome. I was told that 9:10 women get it in their 40's and 50's. I as a male not only have a severe case of it and I got it at a very young age. I have noticed that Butter and sharp cheeses hours to a day after consumption triggers it. I know that this is an arthritis of the saliva glands They just stop working. Stimulation of lemon or gum make them try to work but the glands are only going to work on their own time frame. That's just that. I do know that an anti inflammatory drug like Motrin will help but I am unable to take them any more because of the bariatric surgery I had last year. So managing the problem and the pain is just enduring it. I have know answers, but years of experience of dealing with this white stringy fibrous debris that excretes from my saliva glands and is very painful and deforming to the face for a period of time. Good luck to all and keep the faith. At This writing, I am just coming off an attack.
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So far I have still no answer.
Sorry about the delay in replying however I've had a lot going on in my personal life.
After the dilation surgery (which I opted to have on both sides at the same time - BIG MISTKAE) I was in severe pain for about 3 days.
The procedure involved inserting a small tube into the duct via the mouth and slowly inflating a balloon, once that was inflated to the maximum (which felt like a gun shot going off in my cheek) it was then removed from the duct (still inflated) in order to try and straighten out the ducts.
I was fully awake during this procedure, although it really wasn't scary.
I was out of hospital within a few hours. But the pain was so severe I ended up taking 4 days off work. The glands continued to swell for a few days after without any sort of reason causing the worst pain I have experience from them.
Within a few weeks the swelling stopped and I thought I was going to be free of this, unfortunately not the case. Gradually over time the swelling began again and has continued just as bad as it was before the operation. The pain isn't as bad, although still sore. I think that's me comparing to the few days after the surgery.
Sorry for the bad news, but the investigation continues.
Sorry about the delay in replying however I've had a lot going on in my personal life.
After the dilation surgery (which I opted to have on both sides at the same time - BIG MISTKAE) I was in severe pain for about 3 days.
The procedure involved inserting a small tube into the duct via the mouth and slowly inflating a balloon, once that was inflated to the maximum (which felt like a gun shot going off in my cheek) it was then removed from the duct (still inflated) in order to try and straighten out the ducts.
I was fully awake during this procedure, although it really wasn't scary.
I was out of hospital within a few hours. But the pain was so severe I ended up taking 4 days off work. The glands continued to swell for a few days after without any sort of reason causing the worst pain I have experience from them.
Within a few weeks the swelling stopped and I thought I was going to be free of this, unfortunately not the case. Gradually over time the swelling began again and has continued just as bad as it was before the operation. The pain isn't as bad, although still sore. I think that's me comparing to the few days after the surgery.
Sorry for the bad news, but the investigation continues.
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I've had the same problem on and off now for 12 years. Blockage is always caused by the white stringy substance, never stones. I can never get any info from doctors. Mine never lasts longer than overnight, but by no means is fun. Swelling, sinus stuffiness and sneezing are first to show. Then if it worsens ear pain and great discomfort.
After years of troubleshooting I've determined mine is most likely caused by dehydration. I've learned to sense early when it's occurring and am able to massage them out usually while I binge hydrate.
I'm pretty well given up on doctors and now just work at staying hydrated and maintaining them myself. Good luck to you all!
After years of troubleshooting I've determined mine is most likely caused by dehydration. I've learned to sense early when it's occurring and am able to massage them out usually while I binge hydrate.
I'm pretty well given up on doctors and now just work at staying hydrated and maintaining them myself. Good luck to you all!
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I've been dealing with this too for quite a while, I actually became addicted to pushing the gland and getting the white stringy mucus out.
Now here's what I know:
1) When I take a cortisone shot for my allergies I never experience it for the duration.
2) Allergy induced asthma causes them to swell
3) Pollen and dander make it swell up.
I can tell from how my face reacts as all my allergies show up there, wether its an ear itch, asthma, eye allergies (which release the same stringy mucus).
Antihistamins always worked for me.
Now here's what I know:
1) When I take a cortisone shot for my allergies I never experience it for the duration.
2) Allergy induced asthma causes them to swell
3) Pollen and dander make it swell up.
I can tell from how my face reacts as all my allergies show up there, wether its an ear itch, asthma, eye allergies (which release the same stringy mucus).
Antihistamins always worked for me.
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I too am addicted to pushing the white stringy stuff out, or either pulling them out with some tweezers. I suffer with sever allergies, and also suffer with severe itching around my ears to the point that I have scars on my face from scratching. And also have the stringy mucus in my eyes. I've been dealing with this for 3 years. And I had an ENT tell me that the only cure is to remove the glands themselves and suffer with extreme dry mouth forever. I'm at the point that I'm really ready to take that risk. My quality of life have diminished.
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I have been having this problem for almost 2 years now. I have seen 3 ENT specialist seeking for a second opinion but no one seem to figure out what it is. The last ENT I saw told me to drink more water and that was it. After daily suffering I decided to take a look at my medication. I take lisinopril with hctz for blood pressure. I found out they both have a side effect of dry mouth which is rarely reported. I decided to monitor my blood pressure for a couple of days to see if I can notice any difference. Today is day 5, I have not had a single flare of the saliva glands, I called my pop and requested to change my BP meds. Hctz is also a diuretic which rids water out of ur body. I am a very happy person as of day 5. I am confident this was the cause of my dry mouth. Please review your medication and consult your doctor. Good luck on everyone one you.
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Hi, i don´t know if you still have the condition. I have had the same thing for almost 4 years now and after trying everything I went to a physiotherapist as I had noticed that the jaw was clicking. He said that this was caused by the discs, that are located between the upper and lower jaw, they were going out of place when chewing. I did an exercise which is basically hold with both hands under the chin and try to open the mouth, but not allowing it to open with the hands, hold for 5 seconds and repeat the exercise 60 times twice a day. This exercise mainly makes your jaw muscles stronger so they don´t allow the discs to move. After 2 to 3 days I stopped having that awful pain. Even though, I am still doing the exercise, I was told to do it for a month.
Hope this helps as I was going through the same thing and no doctor could figure out what was the problem and I know how horrible it is.
Cheers!
Hope this helps as I was going through the same thing and no doctor could figure out what was the problem and I know how horrible it is.
Cheers!
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I have the elastic white strings in my parotid glands caused by the autoimmune disease Sjogrens. There are ways to help massage the blockages out. An elimination diet helped me calm my immune system and dramatically reduce all my autoimmune symptoms. I feel best on a paleo like diet. The commitment is worth it.
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I too have suffered this annoying condition. It's painful and at times embarrassing as I constantly press on my salivary gland. It started out in my right submandibular and over course of 6 years has progresses to my left submandibular and my left parotid gland. I still have my right parotid that has not been affected yet. I've had surgery, CT scans, and sialograms...All negative! I'm curious to know if any of you suffer from severe allergies or any other issues? Could it be a gluten allergy? I'm trying to find a connection to the problem. I take zyrtec and it helps but does not rid the symptoms completely. All the doctors say is drink more water and something sour. I'm like yeah ok. But, what's the cause of this. I hate we have this awful problem and pray one day someone will find a cause and a cure.
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I've been diagnosed with Rheumatoid arthritis and sjogrens syndrome. Any tips on an elimination diet would be much appreciated.
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hello i been suffering from the same problem for just the past year or so.Do any of you take buspironje Hcl?
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I've been dealing with this for years now. Extreme pain and swelling of various glands (parotid/submaxillary/sublingual) and 80% of the time able to express white elastic strings from the salivary ducts. Finally broke down and saw an ENT after I had done my own research. He was left clueless. I mentioned I thought I may have sialodochitis fibrinosa, which he had never heard of. He consulted with a colleague who works at a teaching hospital and and called me back stating it sounded like that may be what I have and suggested I go to a major hospital out of state to see a specialist and potentially take part in a study, as not a terrible lot is known about it. I declined, as my life doesn't seem to be in jeopardy over the condition and my current situation would not be ideal for me to take an extended period off of work.
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They have done MRI's on me and found no stone. And still 10 years later, no explanation, I still get the agitation episodes where my submandular and parotid glands swell and the white stringy substance come out as I press on them sometimes. Another problem comes with time of having this issue is that the gland openings begin to close. so now I have to literally push saliva out of one of my parotids glands on the regular. It's been a hard thing to live with and I still have hope that someone will have an answer as to why this chronic swelling accurs.
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I believe with time of taking our allergy medication it may have caused this. But that just my 2 cents.
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