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I have considered that too, and now I am wondering if we have an autoimmune issue that was triggered by vaccines we received as babies/children.
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I have been having this problem for the past 25 years, on and off and am currently right off an episode with a disfigured face and with swollen glands. I messed around with the irritation a lot which does not work for me.

Symptoms are: Itchy feeling in the parotid glands. When I start meddling with that area like massaging, pressing or scratching, my ears, and eyes, all feel itchy, irritated, allergy kind of feeling, with eyes watering....
The more I mess around, as the irritation builds up, the parotid glands start swelling faster and bigger. At this point I know that there is a block, and I can't but keep massaging till the white stringy, metal smelling, substance comes out. Sometimes there are a few strings that come out of the glands. One gland could be worse than the other. I know when I feel relieved but the swelling stays for a day or two and then subsides

Some of the triggers are: Food allergies (Certain foods with preservatives), certain fruits or vegetables that I know don't sit well with me, environmental allergies...
The reaction will start within a few hours or sometimes a day or two.

The ways I handle this are: Try not to mess around with harsh massaging as it makes the swelling worse with more inflammation (though sometimes I can't help). On days when I am careful, it doesn't get that bad. The point is for relief, the stringy substance must come out. So, what I do is some of the following till I get relief.
1. Brush my teeth and floss and gargle with Listerine. Let the Listerine sit on the cheek for some time till you can handle it.
2. When I take my shower I let the hot water fall on my face for a few minutes and with soap, for the sake of lubricating, massage the area. When the glands are warm, the stringy substance comes out easier as the duct opens up well. If that still does not work as soon as I come out of the shower, when my face is still warm, with some moisturizing cream, I massage and get the junk out.
3. Apply some Vicks Vaporub in the area to get the inflammation down, When the glands get inflamed and swollen, it gets harder to massage and get the blockage cleared.
4. Take a Tylenol/Advil/Anti histamine syrup/ Nasal spray/ suck on Ricola Natural herb cough drops. Sucking on the cough drop at the initial sign of an episode reduces the risk of high inflammation at most times. Hot fomentation helps with the inflammation too.

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Hi there
You describe what I suffer from down to the last detail. I hope you were able to find some answers? I have had many of the procedures you've mentioned, but no diagnosis or solid answer. The specialists think I have an autoimmune disease, but they can't say what, but they're treating it as an autoimmune disease. Please let me know if you ever managed to figure it out or find relief? Please :) Grace
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I would love any answers or diagnoses ppl on this thread have found. Over 5 years of the acute pain and stringy substance in the parotid with failed surgery and many specialists either shrugging or doubting. I also have itching and dryness in skin, ears, throat, sneezing, red gums, bruising. It seems like it must be an autoimmune response. I noticed my most severe flares after things like giving birth, severe illness or antibiotics— disruptions to my whacky immune system seem to make it go crazy. Also the doctors keep bouncing me around like no one wants to be the lead Dr, — ent, rheumatology, allergist, dermatologist, functional med, dmd all refer to each other! Such a mess.
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Health Hero
1626 posts
Hi.

I'm sorry to hear that you've been experiencing ongoing pain and symptoms with no clear diagnosis or resolution. It is possible that your symptoms could be related to an autoimmune disorder, as many autoimmune conditions can cause inflammation and pain in the salivary glands and other parts of the body.

Given your history of flares after illness, antibiotics, and other disruptions to your immune system, it's possible that your immune system is overreacting and attacking your own tissues, leading to your symptoms. This could be due to an underlying autoimmune condition, such as Sjogren's syndrome or lupus.

It's important to find a doctor who is willing to take the lead and work with you to get to the bottom of your symptoms. An experienced rheumatologist may be able to help identify if you have an autoimmune disorder, and if so, which one. They can also coordinate care with other specialists to ensure that you're getting the appropriate treatment for all of your symptoms.

In the meantime, you may find relief from some of your symptoms with lifestyle modifications, such as staying well-hydrated, avoiding triggers like certain foods or environmental allergens, and using moisturizers or other topical treatments to relieve dryness and itching.

I hope that you're able to find answers and effective treatment soon.
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Did you have CT or MRI? Was a stone detected upon testing?
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