She is in excruciating pain, with painful urination and bowel movements.
She has seen every kind of specialist and had every kind of test, urologist, gastrointerologist, cardiologist, gynecologist, etc.
Everything is negative. But the pain continues.
Any suggestions would be helpful.
Loading...
Loading...
The doctors that specialize in this are few and far between and you have to become your own expert. And doctors may not always be willing to try the newest things that show promise like botox. If it is pelvic floor spasm, she will need a primary care physician, a ob/gyn specializing in treatment of pelvic floor myalgia, a physical therapist and a massage therapist. And p.s. - a really good heating pad.
I have been there. My heart goes out to her.
Loading...
Best of luck to all of us!!
Loading...
Loading...
Loading...
Loading...
Loading...
Adhesions are a common occurrence after pelvic or abdominal surgery. Adhesions are also common in women who suffer from pelvic inflammatory disease (PID), endometriosis (en-do-me-tree-o-sis), or sexually transmitted diseases. The likelihood that adhesions will form after surgery and what problems may result will vary based on many things - for instance, the type of surgery you are having, the number of previous surgeries you've had, the surgical technique used during the procedure, and your own individual predisposition to adhesion formation.
However, studies have consistently shown that a majority of women who have gynecologic surgery will experience some degree of adhesion formation. For example, in one review of six studies involving patients who had pelvic reconstructive surgery, between 55% and 100% of these patients developed adhesions within six months of surgery - and often adhesions were evident within just a few weeks.
Check out this website for more help.
http://womenshealthsolutions.co.uk/bgdisplay.jhtml?itemname=adhesions_pelvic_pain_basic_information
I have them too.
Loading...
Loading...
For me, my issue is I feel like I have to pee, I go to the bathroom, sit expecting to pee and....nada.....zilch! Post-op I could literally feel my bladder shift into place to per but nearly 1yr out now should I still experience this? Does anyone else? I spend enough time in the bathroom thanks to my Crohn's but this is becoming ridiculous.
Loading...
Hi My sympathies to your daughter. My daughter is in a similar situation having been in excruciating pain for the last 8 months following a vaginal hysterectomy. She to has seen a gynacologist and bowel specialist to no avail. They respond by saying there is nothing sinister there. But she has to take so many drugs to dull the pain that she is constantly spaced out. I am concerned for her long term well being and that of her children. If you have had any replies please can you pass them on. Many Thanks from another desperate Mum.
Loading...
I had fibroid's and chose a partial hysterectomy a year ago. I immediately upon resuming normal sexual relations with my husband had the sharp pain described. Nearly shoot you off the bed sharp. I had started having bowel issues (my uterus was approximately the size of being 4 months pregnant) with the fibroids so I thought it would get better with time. I have since switched to a plant based diet and while I have increased fiber (I'm drinking plenty of water) I have all the issues mentioned with pain and bloating. My OB/GYN thought it may be adhesion's so I went in 10 months post surgery to have those taken care of. He said there were some and they placed a liquid? in there to prevent them. Part of the issue is resolved but not all. My pain seems to cycle so now I'm keeping track of it to see if there is a pattern to report.
I do believe there is something more and have to figure this out like the rest of you. I've never had pain during sex and the thought of this lasting forever is disheartening at the least and heart breaking at worst.
Loading...
I've been dealing with endometriosis for about five years, been married 8 yrs never was able to have children's because of it. I had soil surgerys including a compleat hys december 15 2012. Before that in July I had my uterus remove, two months later the pain started my obgyn send me to urologist, GI dr everything negative, so we decide to remove everything, the endo was attach to bladder, intestin. Colon everywhere. Now have been a month from the surgery, he couldn't remove all of the endo. But now I'm starting to have the same pain, I feel like pressure on my pelvic, like a sensation that I'm getting my period, but I don't have anything just my cervix. O think I'm going crazy, I'm only 28 and going thru menopause also. I don't want to go the dr cus I feel so embrace, I had gone so many times now I don't know what can be...anyone with the same situation
Loading...
Wow, even though I hate hearing you ladies are in pain, I no longer feel isolated. Im 41 and I just had my hysto. on 1/21/13. he left my overies, but took my tubes and my uterus. My initial recovery seemed ok, but then about a week in. I woke up with a sharp pain in my left lower side,my stomach was as big as a pumpkin,my anal sphincter completly closed up,and i had this loud churning noise in my tummy like a blender. It was terrible. The ER did a ct and a urine sample and told me I just had a UTI. The gas pains that came with this problem was worse than natural labor. i took the antibiotics and laxitives. I could only squeeze out liquid and even that required me to be on oxycodone. Since then Ive had three Dr. appt. and another ER trip. I started researching myself and found out I was suffering anismus. its like a muscle spasm in your rectum. I had two Xanax from a year ago I never used and I took one, and and sitz baths three times a day. All of this reccomended treatment I found myself, and it worked. My stools are not fully formed as they were pre sx, but they are the size of cigars which is better than liquid. I also started taking psyllium husk twice dail, and I go daily. The problem I cant seem to fix is the left side pain, and the G/I upset and chills. Ill be seeing the G/I Dr. on Wed and the OB-GYN on Fri. Ill update after my visits. Sorry for the length and graphics, and I hope this posts helps.
Loading...