my friend is 20 years old and she has been diagnosed with sma about 5 years ago. she had the duodenojejunostomy a little over 2 weeeks ago but she still has episodes almost every day. We dont know what to do our doctors dont know what to. We thoght this was supposed to make things better but it seems like it didnt do anything at all. Were desperate to find something to help but everytime i look on the internet is says the duodenojejunostomy helped them.