Fordyce On Lips Cure

i had a similar story of having sex with a new girl and a week later having the exact same symptoms you claim. I also got tested twice with negative results. She later told me she thinks she has hpv from her ex, but she has no symptoms to match. I'm worried that what is on our lips diagnosed as fordyce spots is actually a weird strand of hpv. Also i'm scared that it's contagious and i can spread it to someone else like friends or family, maybe i drink out of a glass not washed properly and they contract it. It's screwing with my head, I can deal with this cosmetically but if this thing is contagious I don't know what I would do.

has anyone gotten the white spots after kissing you?

Have u found treatment

This is Blue23 / Blu Smile - sorry I can't remember my account. It's been over a year since I've posted here but wanted to answer a few questions from different folks. I was the girl who had the Vbeam laser done and electrodessication years ago. I don't have FS all over my lips, but rather on the borders of my top lip. So it appears I have ridges in my upper lip. I had a lot all throughout the border and a couple of larger clusters towards the middle (where my lip is shaped like a V). The last "laser" thing I've done was a combination of electrodessication and scraping by a good dermatologist in NYC in 2015. He refused to do any other laser or do anything aggressive. So these fordyce spots sort of have a life of their own. Some are easier to target (you can easily identify the nuclei or opening of the old gland). In early 2015, the largest cluster just kept expanding - it was difficult to determine whether the existing spots were just growing in size OR if they were new spots forming in between the existing spots and thus forming a larger cluster. The smaller cluster on the opposite side was just a brighter and shinier white color than my other spots. Needless to say, like all folks here, doing nothing was not an option. I did as much research and I made at least 5 appointments with different and well known Dermatologists in NYC on laser treatment. After still recovering from the VBeam laser for a couple of years, I didn't feel confident in doing another major laser treatment such as CO2. So the Derma suggested electrodessication using a hyfrecator targeting each spot and then he would dig in and "empty" out the spot and scrape it. He did a great job in targeting each spot and scraping then without any scarring. The treatment did not do much for the larger cluster. But it did shrink the smaller cluster - and unto this day it still has shrunk - and it's not as bright or visible as before.

I got the VBEAM laser done in 2012 - and so my spots did not go away but in hindsight - it sort of worked on my other spots on the border of my lips. It's been 5 years so the results are not immediate. I try not to look at myself in the mirror so I haven't noticed it until now. Before the VBeam, I had sporadic and multiple spots on the side borders of my upper lip and they were slightly bumpy. I realized recently I could not even find the spots any more and the bumps are gone. The VBEAM focused on those spots.

My point is I got different results using different methods. Like I said, these spots have a life of their own. Sadly, there is just not enough research on this. The bigger cluster, however, has kept expanding - likely by formation of newer spots adjacent to the cluster. So yes - the older you get, the worse it gets. I'm just thankful that right now I just worry about the larger cluster, while all the other spots that I used to worry about have not been getting worse. Still trying to figure this all out.

Anyhow - I get by with therapy and anti-anxiety medication. I've learned over the years how to cope with the spots through professional mental - medical help because this FS problem has completely destroyed my confidence and ability to live a normal life. If I have any other updates, I'll be sure to share some here.

Good luck everyone. Hope you can keep on seeking medical assistance - the more Dermatologists and doctors recognize this is not just an aesthetic issue, maybe it will prompt the medical community to take this more seriously.

Hang in there!

Hi Blue Smile,

Thank you for your sharing about the process of Fordyce treatment on lips. I am much appreciate that.
I am lady in my 20s, suffer fordyce on lips and I can say that I deeply understand your feeling. I got very stress and feel like I couldn't be confident living with these spots. I see this condition mostly happens to males, I never see any lady with this condition, don't know why it happens to me and you.
I read some articles on Fordyce forum that for woman we can cure these spots with taking birth control pill that has antiandrogenic effects or using BCA peels method (bichloracetic acid). Did you try these ways?
Or if you can please share with me how to cope with it, I got very deep depressed and don't know how to deal with normal social activities.

Thank you very much.

Dear Lebron, thanks for your sharing. I am female in my 20s, currently suffer this Fordyce condition on lips. Could you please tell me if the lips tattoo work for you? It's very embrassing and depressed that a girl has them on lips, i got so stress of it.

Thanks for your help :)

Hi Karlsson, thanks for your sharing. I would like to ask if the BCA-Acid work for you?

Thank you

Hi, thanks for sharing. Could you please let me know does the permanent make up work for you?

Thanks a lot

I started to see these spots on my mid to late 20's. I'm in my mid 30's now so it's been many years. The first few years were the hardest, which is what brought me to have the Vbeam laser done and other procedures no matter how physically painful they were. I've seen these same spots on some women. Some of my women friends have them, one has only one spot on her lip and it's easy to cover up with lip gloss or lipstick. I have one female friend who has them all over her lips, but yellowish and flat so also kind of easy to cover up. Mine are a bit different, they're white and on the vermillion of my lips and they are very white. So between me and my 3 friends, our FS spots all appear differently. Mine are the worst because the spots look out of place and make my lips look unnatural. So my point is - so there are other women who have them. BUT yes they are more prominent and frequent in men.

Fordyce Spots are caused by oil glands that are enlarged and in the wrong place. In my opinion the glands have to be destroyed OR the oil production has to be controlled. The BCA peel, is exactly what it sounds, it's a facial peel. It peels your outermost layer of your skin. The oil glands are WAY deeper than your outmost layer of your skin. So the peel will not cause enough damage to the oil gland - it won't be an effective treatment. The spots will ultimately come back after your skin heals from the peel. But, I've never gotten it done so I can't say for sure if my theory is correct.

One of the side effects of birth control pills is it lessens the production of oil, which ultimately results in less acne for women. It may work on fordyce spots but the challenge is figuring out which birth control would do the trick. Our bodies react differently to different medications.

I cope by working hard to stay mentally strong. When I feel that people look at my lips in a funny way, I try to remind myself that the spots are in one spot on my face, there are so many other parts of me that are beautiful, like my eyes, nose, cheeks. I try to remember that I have eyes, two hands, two feet that allow me to see, feel, touch, while there are people that don't have that. I lost years in my twenties stressing out about these spots. My advice is if you feel really really depressed to seek a therapist who can help you take the focus on the spots out of your mind and into other more positive things.

One of things I do know is write to various recognized dermatologists and dermatology departments to bring awareness to the condition. I don't think I'll find a cure in my lifetime. Hopefully, in the next lifteime these efforts will help.

Hi Blue Smile,

Thank you for your sharing. I am happy seeing your reply and it brings me some cheer up for my bad depressed.

I think I have Fordyce spots on my genital for couple years ago, I never really care of them because I know it not STDs, but at begin of this year it start to form on my lips and spread very quickly, now I have some in the Conner of lips, center of upper lip and a bit at lower lip, they are not noticeable now but the thought that they will increase through years go by is killing me badly, I search all the key word of Fordyce on Internet and turns out no permanent cure for them, I even hope to find what way to get rid of them for 6 months and I can reapply the treatment, cuz this thing is very terrible for me and I can't bear it. I am alway self conscious about my appearance and these spots beat me so hard, I can't focus on work and stop working for 3 weeks now staying home cry in silence every day. My boyfriend who I love the most is currently working aboard and i don't want to tell him about my condition and don't want he to see my lips get worse as well, I plan to leave him in silence because I know I will look very terrible with these things in my lips and I want him to have better girl than me. I even can't find any reason to get married and have kids because I don't want my kids have those spots from me as now they ruin my life and I don't want anyone in the world have to experience it. The thought that I can't live a normal life as anyone else is killing me.

I know someone may think I am over obsessing, I know I have to stop thinking about it but I can't help, my mind constantly thinking about it every single second, everyday I wake up I wish I can have a normal lips as any woman, I wish I could be strong like you but I just can't. I don't know how to live with it. At least you are lucky cuz you can seek for treatment in your country, I am in a developing country which limited treatment for those spots, all doctor I came for help they just said it's normal and many people have them, but they never understand what is going through my mind and how strong it affect my mental.
I really appreciate your reply me and share with me your process of treatment, because I feel so lonely no one can understand how bad I feel about them. I don't know how to spend the rest of my life with this condition, pray God help me to stay strong.

I lately thinking about making permanent lips tattoo, hopefully to cover them a little bit as they said it makes the spots worse if apply lipstick often. Did you try this way? I don't know because many people also warning that the pigment can't really stay on Fordyce lips. Some articles said it reduce with age in woman, I don't know if it true or not, I just hope cuz right now it's the only thing to keep me wake up at morning.

I am really sorry to share these bad experiences and negative thinking to you, don't have any good news to share as you are suffer it as well, please do share my thought to the dermatologists and dermatology departments in your country to bring awareness of this condition to them as you are doing very great job. Hopefully in the future they find the cure for those things.

I really wish to be friend with you if you don't mind, really hope to have a friend who share the though together. If you agree I will post my email in next reply. Thank you a lot for your great help writing your experience in this forum.

Jessy,

Hi Jessy - of course I don't mind. Feel free to *Warning! Do not post your e mail address!* and I will email you. I know how hard this is and it's even more difficult when you feel like you're the only one going through it. You mentioned the spots are not that noticeable yet. I wouldn't stress out too much if that's the case. The spots may not get worse for you at all.

BlueSmile

Hi Bluesmile, thank you very much, I don't know if this page allow me to put on email add or not. 

Thank you again, wish you all the best.
Jessy

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Sup guys its kobe24. Well its been 7 yrs since ive posted in this post. Fordyce are still here but I dont think about as much anymore. Have a wife and 2 kids now. Girls do notice them but I dont think its a really big deal to them. Had sex with multiple girls since these spots have appeared.

I am from philippines too, saang lugar mo pinagawa yan? i mean saang dermatologist? im from sta rosa laguna. salamat sa sagot.

Hi Bluesmile, how are you lately? seem like this forum doesn't allow us to post our email address. I don't know how to get contact with you. Do you have account on another forum?

I am planning to do lips tattoo, don't know if the pigment will stay or not.

Love to keep in touch. Wish you all the best, thank you for everything.

Jessy,