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On May 12th I got a bad headache and went to the ER. The pain was burning and stabbing for 3 weeks and I lost 12 pounds from being bed ridden. I was prescribed 11 medications in a 6-week time frame for migraines which did nothing. The pain finally gave in a little but the headache still isn't gone. I wake up every morning only to open my eyes and feel a headache/sensation at the top of my head that sometimes moves down the sides and into my temples. If I try to lay flat on the floor to stretch my legs and try to relax the back of my head also feels sensitive. I have had a CT Scan, MRI, LP and lab work and all has come back normal. I've also had acupuncture, bowen therapy, massage therapy, and none of that relieved the pain either.
I'm so frustrated and find myself nervous a lot because I don't know what's going on in my head. The second neurologist I went to said I may have had a viral meningitis which didn't show in my tests because it could have been in my system for so long....but the headaches could last still another couple of months. I personally feel I may be suffering from rebound headaches since some of the medications I was prescribed can become a part of your system fairly quickly and if you stop taking them because you feel they aren't working and don't taper off properly they could have negative affects. My head does feel a little burning often or just a weird nagging sensation more than a throbbing pain. I also feel occasional sharp pains in different parts of my head. In two days I will have had this headache for 3 months. I haven't been able to go to work or barely out of the house because of the discomfort and not wanting to get dressed or be in a car. I truly hope this will go away on its own because I really don't want to shove more pills down my throat which could have side effects or lead to even more issues in the long run.
I do cry a lot from frustration, get irritated from not knowing if and when it will go away, and in writing this it will be nice to converse with others who share the same situation. I'm thinking of starting a meditation class or possibly some light yoga to try and get my mind off of my condition. I'm told that that stress could also be prolonging my full recovery. If anyone else is interested in meditation or even attending one of the Ashrams in the US I think it may help at least our mental state for now. I know it's hard for me just to get through the day just being constantly uncomfortable.
I wish you all the best and I look forward to hearing back from others and sharing more thoughts and ideas.
Thanks.
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I know what you're going through...I've also had panic attacks and wonder what's going on with my head. The biggest thing that helped me thus far is meditation to take my mind off my head for a while. Most meditation/yoga centers offer free meditation to help those who severely need to learn this valuable process to free our minds. I'm trying to go a holistic "natural" route since I know a lot of prescribed drugs I've been given can have some side effects or "aggravate" my current condition.
Try to get lots of rest and be around those you love who can lift your spirits.
Wishing you the best and all those out there that are suffering...
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PLEASE EMAIL ME IF U NO OF ANY MEDICINES OR WAYS OF HELPING pleassee it would be greatly apresiated thank you all
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Find out if there are any meditation centers where you can start a practice of your own, or even start doing some light yoga to try and get you away from how you've been feeling. You will be around positive energy and it can help while you're facing these awful feelings. I've been dealing with a non-stop headache for over 5 months, and after ct scan, mri, bowen therapy, massage therapy, acupuncture, medications, all not working...I really had to step out of the box to find some relief both mentally and physically.
Maybe meditation is not something you've thought of (and a lot of places offer ways to learn how to comfortably meditate for free) so it is worth a chance.
I hope you feel better soon. If you can try more natural ways to heal yourself that may be good as a lot of prescribed medications only help temporarily and can often have some nasty side effects.
Take care.
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PLEASE read and watch video.
A co-worker sent me the link below for a Dr. at Georgetown University in Washington DC that helped a girl that had a 2-year long headache. His name is Ivica Ducic and I plan to see him soon to see if he can help me too. He does peripheral nerve surgery and many people don't know but your muscles could be constricting your nerves causing the constant pain. The surgery takes away some of the muscle that surrounds the nerves that causes the constant pain.
http://www.msnbc.msn.com/id/21134540/vp/40802295#40802295
Wishing you all the best!
We WILL beat the headache horror!!!
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I didn't realise there were so many sufferers out there. My 14 year old daughter has had a constant headache in the back of her head for just over 3 months. I'm at my wits end. On a scale of 1 to 10 it's usually at a 7 and a half sometimes an 8. She never complains and the doctor thinks she's making it up, but she's just been referred for a ct scan, it'll probably be in 6 to 8 weeks. In the mean time she just carries on as normal and I'm a nervous wreck. The only time it really bothers her is when the pain goes to an 8, the doctors told us if her ct scan is clear there's no more they can do for her. I feel so useless.
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