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Hi, so I've had this thing for over 10 years, my ears hiss all day every day (it's like having the old TV static in my head, remember the black and white static?) I've had so many days off work because I can't cope with the pain which is there as soon as I wake up, in my ears and all around my neck.. Ive tried the nasal sprays, I've tried everything the doctors have given me, the only thing that helped was grommets but they don't last long! For me I get about 6 months of relief and I can't afford to take the two weeks off work and find someone to look after my children for two weeks twice a year while I cringe at the sound of a toilet flushing, or my own breathing!)
Has anyone found something that works for long term etd? The doctors aren't sure but my etd could have been caused by head trauma, i don't know if that's what caused it.. no one else in my family has this the docs don't actually understand how painful and depressing it all is either, they just say well you'll need to go through all of the sprays first before we can get you referred to a specialist..
Help! I'm currently in bed, kids aren't at school and i'm not at work today
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It is good to hear that you managed to recover from this dreadful illness. I have had it now for over 4 months. I went to see the ENT yesterday who said that it was ETD. He told me to continue to take my steriod spray and refered me for an MRI scan. I have tried absolutely everyhting and nothing at all seems to help me. I'm at my wits end :(
Simon
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