My sister (65) began experiencing difficulty in swallowing almost 3 years ago. Then she had trouble opening her eyes in the morning. It progressed to where she could no longer smile and her speech was raspy. ALS & myasthynia gravis were ruled out along with amyloidosis. For the past year her arms & legs have weakened to the point where a flight of stairs exhausts her; if She fell down, she couldn't get up without help..
She's had muscle biopsies, bloodwork,all kinds of scans and still no diagnosis. ThanKfully she is in no pain. The Boston M.D. s are puzzled.
Any thoughts or suggestions are gratefully & desperately appreciated!
How was myasthenia gravis ruled out? It sure sounds suspicious that it could be. My brother has MG and my grandmother had it. Also a good friend of mine has it. For some reason it seems to be more common than it used to be.