Now to the juicy part. In 2008, I weaned myself down to 4 mg/day and found myself sharper and more alert. So I kept weaning myself down, to as low as 1 mg/day. (I strangely became a gambling addict, internet horse racing on TVG, who has lost his retirement and my wife is divorcing me after 9 years).
When I knew that I would need more pain relief, like if I am going to have dental work, then I'd skip the suboxone and take 20-40mg Oxy two or three times a day. The problem occured when I took the oxy for more then a week and then in late 2008 I was stricken with Pancreatitis that left me on a Dilaudid drip for over a week. I went back on subs, starting at 4mg per day and then slowly weaned myself down to 1mg every day or two. Whenever I tried to stop the subs altogether, after the fourth day my body would hurt to move like I was an old man with back pain, which I don't think of myself as at 55. Without subs, even at that low dose back came the mood swings and pain that had me on 12-16 advil per day.
My answer is to take a tiny piece of suboxone, only 1/4 mg -1/2 mg, just after I awake about 5am, then if I have more acute pain, I can take 20-40mg of oxy at about around noon and if needed another 20-40 mg of oxy at dinner time. I find the small piece of suboxone helps both the mood swings and the pain, and at the least, keeps me away from advil, and tylenol. No matter how painful my back and shoulder I must block the temptation to break the oxy pills, as the pain and mood swings get worse and the stress of my divorce feels more acute.
I hope this helps someone.
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Anyways, I decided I had to get control at least take a good break. A friend told me about suboxone. He suggested I could prob take only 1/4 of a 8 mg and I was amazed. I could spend hundreds less and one pill could past 4 days!!! Well, I started out on 1/4 in morn 1/4 at night and It has worked wonders. The first day i was so tired and just had no energy but other than that, I had no withdraws at all!! I only took the 1/4 at night bc i was afraid I would wake up in withdraws. I have been 6 days without pain meds and I haven't felt this good in a long time. I will prob cut back to 1/4 tomorrow and then try to go without in a couple days. I think i will be fine.
I am not suggesting taking meds without them being prescribed but if ur not going to tell ur dr but u want to stop b4 it ruins ur life, i would suggest getting a couple suboxone. Start out with just a quarter and see if u need more or not. It's not going to get you high so don't take a bunch hoping it will. I would not take any other meds with it bc u dont know how they will react but if u have to u can call a distant pharmacy and ask without giving ur personal info. I never thought I could get off of oxycodone myself but suboxone has been my miracle drug. So far, its saved my life and my family!!! And the best part, after 2 1/2 yrs of oxcodone every single day, I have barely even had an urge for one. I am still an addict I still have alot to deal with but I fill like I am in control of myself and my life now. I couldn't have asked for more.
Ps STAY AWAY FROM METHADONE!! Just my opinion but i have lost so many people to this drug and everything I read says its terrible withdraw. Yeah u withdraw for a few days to a week with opiates but this says it can be 6 months. Can you imagine 6 months of withdraws?? I cant!!! Suboxone can have withdraw too but If you start very small and only take as much as u need for a short period, i guarantee its not going to be half as bad as full blown paain killers or methadone. Just my advice.
Good Luck on getting your lives back. These drugs sure can take them away in the blink of an eye.
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When I was taking microbiology and pharmacology for my bio medical engineering degree we were given information on methadone it is more addictive then heroin and it actually does not block the pain it just tell your brain you don't care that your in pain
(ref. Mayo Clinic).
As for long acting vs short acting opioid the reason Doctors can not leave chronic pain patients on short acting opioid for extended period of time is the acetaminophen will damage your liver and kidneys. Prolonged use of acetaminophen will either shut down or cause severe irreversible damage to several major organs. This is the reason Doctors eventually give chronic pain patients long acting opioid.
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Anyhow try GABAPENTIN hopefully it will help you and whatever you do don't re-injure your back, NOTHING IS WORTH SCREWING UP THE REST OF YOUR LIFE. Since 1991 my life has been hell absolute bloody hell.
"What's the one thing that never changes no matter what you do or where you go? YOU"
Good Luck,
Fatman.
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LONG POST BUT WORTH IT FOR CHRONIC PAIN SUFFERERS WHO GET NO HELP
I just recieved a letter in todays mail (Septemer 19, 2011) thats been dated September 14, 2011 from my Primary Care Physician who i've been going to for over 7 years saying she's decided with "great sadness in her heart" to no longer write narcotics prescriptions for her patients that have been diagnosed with Chronic Pain. In the letter (that is a template letter addressed to "My Dear Patients" not even my name has been hand written in the "TO:" field, but i guess after 7 years of a VERY CLOSE relationship with her and almost EVERY EMPLOYEE in BOTH of her offices, i dont deserve any personal attention, go figure)...anyway...the letter doesnt state she would stop being my doctor, just stop writing me the prescriptions that SHE PUT ME ON, which i am at a very high dose at this time due to my chronic illnesses (hidradenitis supperativa stage 3(worst stage of the disease), eventual tolerance of the meds (oxycontin) over time and severe chronic nodular vasculitis in both lower limbs and feet, chronic cellulitis and open skin uclers/fistulas/sinus tracts, along with every small infection, i.e a UTI, that turns into a near death experience because of my immune system defficiency from 2 auto immune diseases). I am in constant excrutiating pain because i pretty much have holes all over my body and very severe in the places that you use to, you know, sit, walk, lay, live...etc (for info on my main condition, please educate yourselves at http://www.hs-usa.org/hidradenitis_suppurativa.htm this will give you a general idea of ONE of my conditions that has in turn given me secondary infections and for the past 10 years, like the 2nd auto immune chronic disease(nodular vasculitis)...ok, so, over the past few years shes done certain things for those patients that she writes these scripts for like, drug testing (which of course i passed), she completely stopped writing one of my scripts which was for the short term pain and dropped me from a 60mg dose to a 10mg dose every 4 hours, i dealt with that...etc, and i live in FLORIDA which is the WORST in the country for abuse of these pain killers, so i completely understand her want to cover her you know what and actually have empathy for her because its difficult for doctors to treat their patients when they practice in a state that houses shady clinics and has patients that come in from everywhere to get these drugs to abuse them. i have the empathy because, as a chronic pain sufferer i am chastised, disrespected, etc until my "story" is told (i am SOOOO tired of telling my story). its not fair i should be punished for being sick! i have NEVER been a drug addict (i dont do any kind of illegal drugs, never have), not a drinker, a partier, nothing...my most wild trait is that i have some tattoos (my best friend owns a tattoo shop)...and ive even learned to cover them for fear that i will be classified as one of the "crack heads" (as theyre called down here, i didnt come up with the name, im just repeating what i hear), that have made my life a living hell. I've tried every type of pain management except accupuncture...ive done bio feedback (breathing and meditation), neurological meds, heavy duty drips, extreme IV meds, holistic meds, even a freaking lady that reads tarrot cards and told me to light this candle and stand facing that way and say these words, blah blah...I am extremely blessed to have an incredible family, husband, friends that support me and understand through education about my disease, my meds, etc...i thank the powers that be every day that i am able to see, talk, hear, walk (sometimes) and love...i have decided (im 37 and have had this crappy disease for 20 years) that i will contain a positive attitude and NOT let these disabilities run me, I RUN THEM (although there are so many times, like now that i feel like im losing the battle)...even though i suffer from anxiety disorder (brought on by chronic pain, near death anaphylactic shock from one of my meds, and all the other horrible things i go through because of what i have), i REFUSE to break...i breathe through my panick attack (i cant take a xanax it makes me too woosy and i have a 10 year old-which is a miracle all in itself that i was even able to procreate, but again, im blessed), and my attitude and willingness to emotionally and spiritually FIGHT BACK is what gets me through my days...so after 7 years of having a great doctor who cared and wanted to provide comfort and a quality of life to her patients, its over?! ive NEVER been to a pain clinic (other than one in the hospital and had a pain specialist consultation another time i was hospitalized and they BOTH wanted to INCREASE my meds and add a bunch of other stuff to what i already take to which i REFUSED!)even though im EXTREMELY HURT AND ANGRY at her personally, not for giving in to Florida, but for handling me the way she did, which is WRONG, can i truly blame her? so her letter states that "unfortunately, the pain management climate in south florida has changed. there are many laws and regulations which make it difficult for those of us who just want to practice good old-fashioned medicine. no longer can you treat a patient for chronic pain without having a pain contract, random drug screens, etc. even if you do all the right things, some patients can fool you. for this reason, i have decided to no longer practice chronic pain management. i will no longer be writing any type of narcotic medications for people who have chronic pain." TAKEN FROM THE LETTER I RECIEVED. WAIT! WTF! THIS IS WHY IM ANGRY WITH HER! if she really cared and wanted to practice good, old fashioned medicine, why give me a 4 day notice? why not give me one last visit? one last prescription (which conveniently i am due for refills in 2 weeks so no i have two weeks to find another doctor to write my prescriptions, but my insurance will only pay for a visit to my primary, and i dont know how to doctor shop, ive never done it!)...THIS IS HOW YOU TREAT ME AFTER KNOWING ME, MY FAMILY, etc...so lets see, our long patient-doctor relationship, my 6 or 7 thick files of my records in her office, my about 75 hospitalizations for which i was admitted for NO LESS THAN 5 days at a time which, half of the time SHE WAS MY ATTENDING!, my 29 picc lines (arm permanent IV's), my now 3rd chest port (my arm veigns are destroyed so now i have a chest port because i get IV care at home CONTINUOUSLY, antibiotics and some for short term pain because she stopped writing the other short term pain meds remember), my home health (IV and Wound care) 5 days a week, all the specialists, tests, etc that she sent me to that CONFIRM ALL MY CONDITIONS, my POSITIVE drug screenings to ensure i took the meds she prescribed, her SEEING ME AND PHYSICALLY EXAMINING ME TO SEE ALL MY "boo boos", all my surgeries (several abcess removals, excisions, gland removal, etc...MOST RELATED TO MY ILLNESS)...i know she had to weed out the patients that were abusive but i KNOW she can count on her hands the patients like myself that she is this involved with, including cancer patients...so im not worth AT LEAST a 30 day notice to find another doctor, or something? she cant OFFER to write me my last prescriptions? (BTW i get 3 month supply via mail because im disabled, the co pay is cheaper, etc)...im scared to go through withdrawl...ive never experienced it, but everything i read says its dangerous for the high amount of meds im on...can it kill me? I DONT DESERVE THIS! I dont know what to do, where to turn...about 4 years ago when i would get my prescriptions every month and i would go to a pharmacy (if for whatever reason my pharmacist didnt have the meds) ive had pharmacists offend me, be rude to me etc)...if i run out do i go to the hospital? im angry but more so im scared...i dont want to go to a pain clinic, i shouldnt have to, how do i know they are legit? HELP! IS THIS EVEN LEGAL!
Sorry for the rambling and thanks for reading, any advise, help you can offer, please help...
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my life was steady like yours until the last time i asked to go into pain mgmt about two months ago. i had titrated down, with the help of a pharmacist and pain mgmt, to half my oxycontin dose--i just wanted to know where i stood with pain and was promised if it didn't work out, i'd just go back to my old dose (same dose for 7 yrs!!). so i was taking 20mg x 3/day for 60mg/day, 600mg of gabapentin x 3, and zoloft for the--ouf!--depression we get from being in constant pain and illness. well, my pain got worse and worse at that low dose and with the oxycontin reformulation. i asked to go back to 30mg and they just said "no"... no breakthrough, no more oxycontin... they want me after 12 yrs to just shift to methadone or morphine. well i've tried both and they make me so sleepy and nauseated! one doctor, a chart review and the second doctor, same HMO... "no". i'm stuck. oxycontin has worked so well for me! and it was explained to me just like to you... policy has changed: it's not about US, it's about THEM. (and screw us!) yeah kaiser permanente!
i'm scared too. maybe we can be scared together and help each other through this c**p. don't know if i should give up the 20mg or just stay in pain. don't know what i'm going to do, but i'm definitely going to membership services and if that doesn't get any action, i'm going to the state board! we've got to fight back somehow...
i'm in oregon. i've lived in miami/ft lauderdale. sorry you have to deal with all the florida c**p. another woman on this board, a nurse, has to deal with kentucky. no it's not about US but it sure as hell effects us... ~laura in oregon xoxooxoxox
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I realize this was posted some years ago but would like to comment . I'm in Hawaii where we have medical marijuana. I have found THC to be the best drug for chronic pain and the resulting loss of appetite. I was on NO opioids although occasionally when my back ( I have cervical & lumbar spondylosis as well as ridiculopathy & have had joint replacement) keeps me bed bound I will resort to requesting something from my PCP & 30 percs get me through the rough spot. Never asked for more , never needed them.
A new pain manangemnt clinic opened here on Kauai & I went in for my MUM(medical pot) card. She not only did that but was more than happy to start me on medication to help my constant pain....she started me on 10 30 mg Oxycodone daily......that's 300 tablets a month. I was painfree for the first time in nearly 20 years but at what cost. I am now trying to get off of them by myself.
The nausea , vomiting and costipation that the pills caused were worse than the pain I had!. I could get that many tablets monthly for as long as this clinic is open...which won't be long, I think but I hate the feeling that I am dependant and can't evengo a day without taking it. It's been just 2 months since I started and I read all your posts and decided to titrate off. I am down to 2-3 30 mg a day from 10 a day. I never got the high everyone talks about, I only got really nauseated and threw up a lot...but had no pain. I tried today, 3 weeks into weaning off, to go down to just 1/2 tab. The pain was incredible within 15 hrs. I'm referring to my back, not to WD aches. I finally contacted a psychiatrist who is helping with the WD and finding some other pain manag. Epidurals help me tremendously and I wish I had never taken ONE of the freaking pills . I thought it ridiculous that I would be addicted after just 2 months. The doc who gave them to me said originally that if I wanted off, she would help. When I told her that i WANTED OFF , HER HELP WAS, WELL, JUST WEAN OFF.....THANKS dOC. She did however ask if I would like to try other drugs such as Morphine! Yeah, thanks, NOT.
I wanted to write and thank one woman whose name was Bambi29, I believe. Her posts were from 2009 but she was an angel who helped me tremendously. IF you are still out there, Bambi, thank you for all of your suggestions. Does anyone know how long it takes to actually develop a physical dependance on oxycodone? Is it about 2 weeks? That seems very similar to the lies we were told about cigarettes.......
Marcia on Kauai
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been there done that. now if something happens to me and i'm in really bad pain the doc's will not give me JACK> because once you go on subs you're an addict.
your note was from a year ago hope things are better for you.
reg
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In between surgical procedures 1 and 2, I found the perfect pain killer, at least for me, Tramadol. At that times it was considered "non-narcotic", but we all found out that wasn't correct. However, because of my addictive personality, I build tolerance very fast.... with everything. So I was one a very high dose of Tramadol, which led to the a total of 3 seizures. I didn't want to take narcotics again, as I was addicted to them back when I was 19. I had a good recovery going, picked up a 10 year chip, and I will spare all the details regarding what happened, when and why, all I know was, I was in a lot of pain, I still had to work as I was denied SSDI, and was too naive to realize I should have appealed it. The withdrawal off of Tramadol was terrible, I began taking lortabs again. Within one year, I was up to taking percocets 10 mg 5-8 at a time. Fentanyl patches, nothing was working as my tolerance built and it was wreaking havoc with my entire life. I went into a treatment facility that specializes in chronic pain patients, was introduced to the BEST orthopedic surgeon ever, in Birmingham, Alabama. He did my 2nd surgery and got rid of that sharp shooting pain across my scapula on my back and down my right arm. However, the permanent nerve damage was done. All because I was seen as "drug-seeking" because of my history 20 years ago. I couldn't get certain people to listen to me regarding my pain. Which really irked me as my pain is very specific. No vague aching.
I had that surgical procedure done while I was still a patient in treatment, and they put me on suboxone for pain. Yes in the beginning there is a "high" to be felt, but their is a ceiling effect, and then it becomes more of less is best. I did over take in the beginning, would run out and then I would either supplement however I could or suffer. I took me about 9 months of that screwing around with the suboxone, then one day I notice I had extras. I had to turn the "addict behavior off" easier said than done.
Yes, I am fully aware that I will have to slowly taper off of suboxone if I am to ever get off it, but with my permanent nerve damage I will be in mild, moderate to severe pain off and on all my life. Until they come up with something different, I feel like taking suboxone will be one medication I take for the rest of my life. I see a pain management doctor, he has been giving me BOTOX injections in both neck muscles (sternocledomastoid muscle) that really helps the pain. I noticed I only take a quarter of my prescribed dose of suboxone with the BOTOX on board; unfortunately, it is a temporary relief. And when the pain returns, it returns with a vengeance.
So as long as I check my motives, that I remain open and honest with my doctor, don't over take my medications......... I am fine! Does the suboxone get me high anymore??? No, it has a added benefit, and I don't know how it works, but it removes the obsession and compulsion to want to use or drink. My pain level remains at a 3. And that I can live with and have some quality of life. Beside methadone I have always heard make one gain a lot of weight, and that I can't afford with a bad neck, and my also deteriorating L2-3.
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