I can only say educate yourself by reading and possible get him to read the side effects of pred. too! It took me forever to get my husband to understand he was becoming a different person due to pred. They just don't see, or feel it. But boy do we endure it! Tapering is working but it is a very slow process. 1mg every other week so the adrenal glands have time to readjust to the body making it's own version of what pred. does. This is very important. Pred. can fry your adrenals and brain function when taking high doses and when taking for long periods. I am still learning and living with the hell of Pred. but can only hope & pray the new Nucala Injection for his breathing problems will get him off Pred all together. Looking into alternatives is another great idea, if possible for whatever is ailing him. Like I've previously stated: Pred. is evil, toxic and poison to relationships. It is up to you to help fix the problems that occur because Doctors just don't seem to acknowledge any of the damage Pred. does. I hope & wish you the best in your long, difficult journey. Good-Luck!
Yeah its so hard. I broke up with my fiance he disapear after he went for treatment. I thought he had abandoned me. He reapeard and said he was too sick to call. I still dont believe him. He keept trying to contact me. But the truth is i feelt so alone witj his sickness. He never was nice got panic ataccs and never cared about my feelings. Its horrible becouse you become a shadow in a persons disease. Tjey forget what they did. He wrote mean things about me to others. I obviously not with him anymore. But the scars live on. I felt so small and unganted. Everything was my fault. I think i need a psicologist to help me heel. I felt abused. And the wilt of leaving a sick person is awfull.
I can relate and I'm sorry you have to go through this with your Mom. I have a 75 yr old partner who has been on predisone for 4 yrs now and he's ok if he takes small doses but as soon as he takes a 20 to 40 mg of predisone his eyes get wide, he wants to fight, he looks and acts like he's possessed by a demon. I am miserable living with him because I never know when that predisone person is going to emerge. I told him about what is causing his outbursts but he won't listen. I almost think he likes taking it because he gets high off of it. All I can think about now is how I can get out of this relationship because it is never going to get better.
after a kidney transplant and a ILD diagnosis. IHe was anxious, rage and argumentative all the time.
we were married 33 years and he to asked me for a divorce or to coexist. He was messed up. His entire demeanor changed.