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I was lucky enough to skip ICU, but was still in the hospital for four days. All I really remember of that visit is them asking the same questions over and over again, a horrible headache, and an insane amount of nausea. (I had never been so nauseous in my LIFE!) I was in the hospital for four days and experience no facial pain at that time. I was released after four days. However, I was only home for one day before being put into an ambulance and rushed back due to a meningitus infection. They don't warn you about it being a rare, but possible outcome so... yeah. I'm warning you it can happen.
I was lucky that they caught it early so it hadn't had the time to go bacterial. I had the non-infectious kind and after a few days in the hospital (three) they sent me home again. About ten days after coming home I ended up back in the ER due to CHRONIC back pain and was told I had a really bad UTI which went into my kidney's. ANOTHER possibility with brain surgery and actually VERY common so... watch out for that!
Turns out though that I'm not one of the 82% that feel full relief of the pain. I'm one of the 16% that experience PARTIAL relief. Enough that I don't have to take 900mg of anticonvulsants and 60mg of baclofen a day... I'm down to 200-300mg when it flares with 20mg baclofen when it flares. It's been a month and I've only had 8/31 days of pain. Bright side though is it's all type 2 and no type 1 in sight so I can bear it! No type 1 pain in over a month and that for me made the surgery entirely worth it! Trust me... the type 1 pain is why I sought out the most invasive option. I was DESPERATE to be rid of it because when you're in such agony that meds can't even take a portion of the pain away... you can't live like that. I had felt like I was going slowly insane and knew that if something wasn't done fast then I wouldn't live long. I would have done absolutely ANYTHING to get rid of it! So I'm glad the type 1 pain is gone. (If it appears again I'm doing Gamma Knife surgery as my next option.)
Downside lately though is I keep hearing a clicking in my head. The surgeon said it's normal as it's the metal plate settling in and healing, but it's beyond annoying! So if you end up getting a metal plate... be prepared for that. It also sometimes sounds like a facet dripping... dripping... dripping... and you feel like pulling your hair out 'cause it won't flippin' stop.
I'm mostly healed, but still have some issues. I had MVD on my left side so I was laid on my right side and because of that my back hurt so they put an ice pack (several) there and after a month that area is STILL numb-ish. Which is concerning, but it HAS gotten slightly better so maybe the feeling will eventually come back. When I woke up, initially, it felt like I had gauze or something in my ear even though I could hear fine. It took three weeks for that to go away and to re-gain my normal hearing (without the gauze-like feeling, or like your ears need to pop).
So yeah. That's my story.
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Thank God, and The Lord keep blessing us. I had a angioma tumor surgery 7 and a half months ago. My question is that on my right side where the tumor was my skull or scalp is still swollen and some times is very sensible to touching. Until when or how long more It will heal completely? Sorry to bother you with this but I have nobody else to talk about it even my own family since they don't know anything related to it. I still not able to lay on my right side to sleep because it cause a head ache if I do it. Thanks a lot for your response or your comments regard my conversation. God blessed! Lourdes!
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