My son was on Pamidronate infusion until 1 and a half year ago, but when we realized it wasn't working Dcs passed on enbrel an organic drug. It's better then the pamidronate but he isn't completely healed . Today we've started a new antinfiammatory diet and fingers crossed
Hi, I'm doing some research for a friend and I don't know what the E stand for. Can you clarify for me please?
Did his new diet work.
I'm a ten year old with CRMO. I have had this exotic condition since I was around seven years old, I still can't jump but I am learning how to run. I have managed to cope with the disease although I miss most of my classes. Despite what I just wrote it doesn't stop me from doing my passion, writing.
That sounds terrifying. I hope I grow out of it as soon as possible, I will be going to secondary soon. My grandma has/is going to put me on a diet so I don't have go throw a lot more pain. She read some where that a girl has been on a special diet for quite a while and apparently she has not been in pain for at least a year now.