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My 17 yo daughter has Bertolotti's Syndrome. On her left side, her L6 is partially sacralized.
She's been having worsening lower back pain for over 4 years now.
She's tried PT and injections, neither have helped. We've met with 3 orthopedic surgeons and one neurosurgeon and they have all recommended an L6/S1 fusion on both sides. They all say her transverse process on the left side is much too large to resect and would cause her pelvis to become unstable. So it's either a fusion or continue dealing with the pain.
Has anyone had successful fusion surgery for this pain?
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Hi, In reading your response, I feel so bad for everyone suffering from back pain because it is awful especially when you have doctors that don’t help or even worse—-deny your pain! I’ve been suffering in pain for 32 years. I have a 6th vertebrae with one side fused and one side loose. I also have a curved pelvis on my right side as well as a shorter right leg and scoliosis. I just discovered all of this recently because a doctor finally ordered x-rays. I’ve spent 32 years going to chiropractors and asking them for help, self help stretches, and exercises, but they offered very little except to keep getting adjusted. I’ve tried so many things to relieve the constant pain that ranges from mild to debilitating, and sitting is the worst!! There have been so many functions, activities, celebrations, and opportunities that I have missed out on due to the pain and exhaustion caused by sitting. I’ve tried massage and traction, but both caused severe pain and left me barely able to move. Chiropractor care has also been very painful, but it has helped. Physical therapy helps a lot, but my insurance only allows 2 months a year. I eliminated wheat, and that helped reduce quite a bit of pain. Then I eliminated dairy, and that helped a little. I used to take anti-inflammatories, but I became allergic. So, I use the natural anti-inflammatories that don’t raise my blood pressure such as curcumin, fish oil, ginger, and garlic. Lastly, I take walks, use a foam roller, and do stretches which all help, but it is hard to realize the benefits when you’re in pain everyday. But, I’m sure I’d be worse without my efforts. After a shoulder surgery, I was given Vicodin which really helped with my back pain, but I don’t want to take it all of the time. However when I have a flare up which leaves me barely able to move, I take them during the usual 3 weeks period. My flare ups have gone from maybe once a year to 1 every 3 to 4 months now that I’m 59. So for those of you that are suffering, I want to encourage you to keep trying to help yourself. After 32 years, I just discovered this ***this post is edited by moderator *** *** advertising is not allowed*** Please read our Terms of Use
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I'm a 46 year old female, extra vertebrae, type A positive blood, diagnosed with Sarcoidosis. Also COPD diagnosed. A chiropractor told me he thought I had MS. My cousin Ginger MacQueen has a blog on her MS surgery that was televised in Canada. Very interesting that we all have so much in common.
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I have this extra bone as well and have had low back pain SINCE I WAS A CHILD. It is now affecting my legs ever since I fell off a chair and something shifted in my lower back during knee surgery 3 years ago. I have begun to see a chiropractor who practices the Gonstead method. I will never go to another kind if chiropractor. I was going to another and they used that metal thing on my back and it did ZERO for me. It was a waste of money to have gone to them. I would encourage you to try to find one in your area. You can google it! I am also at the point realizing extra weight isnt helping and exercise is a MUST!!!!
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