Morton's Neuroma Post Surgery and worse than ever

Holy c**p!!! 3 surgeries??? Can't even imagine!!!

had neuroma surgery 3 months ago worse than before I should of also checked

I had operation seven months agoto remove my neuroma on my left foot, it did have bad infection but cleared when put on right tablets. Went back to waitress work after 5 weeks. I did see the doctor after eight weeks and said I how my I feel iam walking on a big blister now not a sharp stone feeling. I was told it would go down and to rest when possible. Haha, iam on my feet five hours plus most days.
However seven later, i can only wear trainers and having insoles made and on higher pain tablets to get me through work. I have just been back to doctor who now feels a bone has moved under my foot and Iam getting pain as iam walking on this bone. He has just booked me in for a scan and injection, but has said its looking like another opp to move this bone and screw it in. not sure about this, what if this doesnt work?

Exactly the same thing happened with me! I should have trusted my own instincts. I don't think I ever had "mortons neuroma" since all I had prior to this surgery was my foot burned constantly as if it was placed on ice. No problems walking, no swelling. Doc said he removed a swollen nerve. Wouldn't let me see the surgery report. Have to go thru the hospital records dept. 5 months later, the burning pain is constant except when sleeping, the swelling is horrible and the pain feels almost arthritic. I cannot walk very long and all I can wear is birkenstocks as well. Originally, I was told this would only be about 6 weeks to be back up and running. What a crock!!!!! I have requested a referral to a neurologist and that has been shrugged off as ridiculous. I know the surgeon doesn't know what to do at this point. He said he got the correct nerve and I immediately told him, he most certainly did not! He gave me my options.....1. take lots of vitamin C
2. amputation, 3. nerve pain medication such as gabapentin (which I can't take and doesn't help with swelling) 4. another surgery, but he wouldn't feel comfortable doing that and quite frankly neither would I.
The burning is so horrible most of the time, it can be very tiring and depressing. I have been left hanging and personally I am quite pissed off!!!! Just venting....thanks for understanding if anyone else Is going thru the same thing. My next step is to try acupuncture. Have never done it before, and it is expensive, however, I hope it helps. Haven't read of anyone else using acupuncture for foot nerve pain & swelling. If so, please let me know if it helped.

I am a nurse on a busy ortho floor, I would go home with aching feet. Then one evening after several months of constant running on the hard floors I got up from my seat to get to a patients room and felt a sharp burning pain in my right foot that I had to grab the wall to hold myself from falling. I took 5 days off from work to heal myself after continued pain/unable to step down, I reported it to my supervisor. He recommended I file for workman's comp. I was hesitant, I'm the nurse/caretaker! after two more weeks of pain and unable to work I did and was denied twice even after 7 months, two surgeries and documentation from the surgeon stating that continuous running on the hard floors contributed to neuroma and subsequent pain and need for surgery. DENIED. Are there any articles/studies showing the relationship between floor nurses on their feet for 8-12hour shifts and foot neuromas. That it is indeed work related? Nurses work hard caring for others, caretakers should be taken care of as well. Suggestions?

Hi Yellowdaisies.

After reading your heartbreaking story I felt compelled to let you know that you are NOT ALONE. I had surgery on my right foot 8/29/14. My foot is still so very swollen and I cannot bare any weight on it at all. Let me tell you about me...

1988 I was 28 yrs old -I had bunionectomy surgery from a orthopedic surgeon - bilateral. The surgeon just sawed the excess bones off the bunions -- after about 3 months I began to walk...after 6 months...my bunions grew back bigger and better than ever!

1990 I was 30 yrs old - a podiatrist performed a bunionectomy on my left foot and it healed beautifully. Broke the toe-realigned - Kept the screws in.
1991 I was 31 yrs old - same podiatrist performed a bunionectomy on right foot and it healed beautifully. Broke the toe - realigned -Kept the screws in.

1999 I was 39 yrs old - a new podiatrist performed a morton's neuroma removal from left foot (in officelocal anesthetic to foot only. I observed the entire procedure. Quite a large yellowish squiggly thing came out. He sutured me up and out I walked with a boot. It healed beautifully also. Problem was...
2009 I am now 49 with rheumatoid arthritis - the stump grew back :-( A series of cortizone shots began 3-4 each year and still going on..

2014 I am now 54 & my rheumatoid arthritis has now developed into Sjogren's Disease (autoimmune) ---- I have had a series of cortizone and alcohol shots in both feet for neuromas since 2009. My right neuroma is the worse! I had the surgery to remove on my birthday August 29, 2014 and my right foot well is not in good shape. I have been off work since 8/29/14 and I fear I may not recover at all. I refuse to even entertain the idea of getting shots in my foot. They are a mere temporary fix! I cannot drive or walk or wear shoes! If I put any weight on it at all --- it feels like an inflated balloon that is going to burst. I use to be an avid bike rider, avid walker and avid sailor....I can't do any of those activities now. I am so depressed from being disabled.

My doctor actually "burned" the ends of the nerves so that the stump wouldn't grow back. But the bottom of my foot is swollen so much it doesn't feel like it will ever be normal again. Perhaps it was the autoimmune, perhaps it is the age, perhaps it was the burn....whatever is causing it not to heal...I feel your plight and wish you a godspeed recovery. L'Shana Tova

Hi Nurse -- I was a former retail worker and that is when my neuroma (s) stump & Morton's neuroma exploded with pain...in both feet
I immediately underwent shots every 2 months and pretty soon they didn't work at all. Yes, being on your feet on hard floors doesn't help -- but even climbing out of bed barefoot on carpet may trigger it! Workers Comp is BS. only the non sick get it! Get the surgery and hopefully all will be ok. Best of luck to you!

Hi I too wish I had done more research bless your heart I only had 3 cortizone shots and just couldn't take anymore, felt as bad as child birth. Im 5 months out and too have this bad swelling on my pad cant wear anything but flipflops I too feel like I will limp the rest of my life. Just went back to doc today and he's calling me in some med to rub on the pad that will loosen so called scar tissue that apparently has built up around my 2 incisions. like to know what you have figured out too.

I too was led down the path that this surgery would be a relative snap to recover from. And I did my homework (or thought I did), looked searched for stories like this where it didn't turn out well. Unfortunately did not find very many. Never dreamed I'd be one of those writing about a surgery gone bad.

Had MN surgery in July 2014, then got very ill a couple weeks later. Really knew something was terribly wrong. Saw various doctors who all said, you're fine, it looks good. But I kept feeling worse and worse. After a few months I was experiencing neurological pains in both legs and feet, could hardly walk, and was very moody. In late Oct was scheduled to see my primary doctor who happened to be out sick that day and saw a different doctor in his place. That particular doctor ordered the blood test that I believe saved my life: a B12 test, and it was discovered my B12 was very low.

I've been getting B12 treatment for 4 months now. I am still feeling quite ill and have lots of pain in both feet, been on disability leave for the 7 months since surgery. I lost my job, my marriage is in the toilet (husband having trouble dealing with my long term illness), and I am unable to spend much time on my feet without pain which makes daily life extremely difficult.

I NEVER would have done this surgery had I known what was in store for me.

I m having my op next week I think they are just going to leave the nerve free and hope that it does not return I might mention about burying it in the muscle although I don't want to tell the consultant how to do his job.

As an encouragement to all of those unable to back out once the surgery has been done, I have had successful surgery. It was Nov 2012, supposed to be only for a hammer toe, but the MN was so advanced, my surgeon had to remove the nerve. I had blamed the severe pain over forty plus years (I'm 68) on vanity shoes and hammer toes, so hadn't even told the doctors about obvious MN symptoms, nor did I know it was a possibility. I deeply regretted the failure of surgery to correct my foot pain, and described the pain level on the 1 to 10 scale as a screaming 47. I spent two years in treatment, including cortisone shots, orthotics, massage and PT, TENS, OTC & Rx pain meds, chiropractics, icing, topicals and liniments. Each contributed to some degree of relief but nothing was truly a remedy for the excruciating nerve 'jolts', burning, aching, screaming feet I lived with daily and suffered with nightly. A few months ago I resolved to get on with life and live with it as best I can, taking relief where I can find it. I lost the miserable orthotics, took a round of shots and started buying Skechers in every style with memory foam insoles; I started taking a daily dose of magnesium. And then another issue necessitated several weeks of pain pills, muscle relaxants and anti-inflammatories leading to planned spinal surgery (in a few days). I realized a couple of weeks ago that my foot pain level is a 1 to 2 when I hurt at all. Time, better shoes, magnesium or possibly the drug therapy for spinal pain - I can't say - but after two and a half years of active therapies and recovery, it has finally happened for me. The foot pain is very aceptable and serves only to remind me to be good to the tootsies.

Hi i m 51 and suffered with mortan nueromers for 3 year,had injections had eletric waves into nueromas .Nothing worked.pain was bad .but could nt find any sort of relief. Went to orthapedic surgeon he operated on both feet cut underneath..Its two and a half months on and i am in a worst way than when i started...now i cant walk very far , i have constant burning in both feet and relise that this is worst nerve damage than when i started .If i had my chance again i wouldnt have surgery.Ps i cry all the time .Does anyone have any suggests if something may give me relief.

me either.I was surrpose to get married next year instead my partner and i will break up over this as i have alot of burning and cant walk far at all.He does nt understand.Very Sad what my life has become.

Hi , I know just what you mean..I am nearly 2 years on from having 4 of these nasty neuromas removed from both my feet. I too wish I had never had this done..I am in constant pain and the only relief I have is a drug called Lyrica which is for nerve pain ! Go get some of these and you will find some relief but I'm thinking this has left me disabled for life ..

I completely agree with those of you who wish they would never have done the surgery if they had only known....My feet hurt so bad that it is very painful to walk on them. On top of that, the left foot feels like it is still in there! I just can't emphasize how terrible bad my poor feet hurt! i kid you not, I have thought about amputation a few times. I see my Dr. this Monday and i am anxious to hear the "lines" he comes up with.