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anyone have any answers for you, i have been having same issue now for 5 month, ranging from 1-5 times per night of 6 hours sleep, only goes away when standing up or rolling onto my back, but killing my sleep. wonding if you found out anyting further on this
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Hello guys,
JS again,

I just created a FB group called: Sleep-related painful erections: we are not orphaned anymore!
It's easy to find: just use the search box of FB and any of the key words of the group name.
Special thx to Keith who had the honnor to be the first guest :)
I will be adding some content gradually.
For now, i wish that most of you guys will join us.

Again, if you want to know my personal story, check at page 34 of this forum.
I'm really excited to welcome you so we can share scientific data and personal experiences.
Take care guys!

JS from Mtl
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JS,

While I appreciate your efforts to create a new forum for us I don't think Facebook is a good place for this issue. For one thing there are a lot of people like me that refuse to go there because of privacy concerns and recently Facebook has been kind of aggressive in purging anonymous accounts. I had one that they bricked last year and they refused to reactivate it until I provided my ID. No way.
I'm going to be leasing a server for another project and may set something up on that but in the mean time there are a lot of other forums on the internet for health issues in general that are probably better than this place and more friendly to our privacy needs than Facebook.

Mike O

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"In this case I guess there are many affected men who won't join because they don't want to share with the world that they are affected. Perhaps we should find another community that guarantees more privacy?"

Bingo.

Mike O
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Same thoughts here. Have a pretty public facing job and I I don’t want the issue out in public ever. Wish people didn’t make judgements about sexually related Issues but they do. That plus they would make stupid comments like “ proof many night erections - that doesn’t sound like a problem!” I’m 100 percent in for a better private forum but Facebook isn’t it for me.

John

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Hi guys,
I understand your concerns.
Mike, please keep us posted if you come up with any new forum or group.
Meanwhile, i'll keep the FB group alive.
So far, I believe the group have already been beneficial for the 3 of us.
A reminder: all posts remain private within the group (so are the Messenger communications indeed). However, the members of the group can be viewed publicly (by finding the group through the FB search box).
Looking forward to communicate with you guys and helping each other with the latest scientific data and personal experiences.
Will keep coming back here to see if there is other initiatives.
Take care guys.

JS from Mtl
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Have you guys tried
a) sleeping naked (at least no underwear/pants) and
b) changing your bedding to materials that are not soft/stimulating, I found that very soft/high thread cotton sheets and soft blankets make the problem happen more often

While sleeping naked does not always solve the problem it somehow makes it less painful, you might get more erections the first few nights but in the long run your body can get used to it. My best results have come from change/removal of clothing and bedding. Taking herbal tea before going to bed seems to slightly affect the quality of my sleep as well.
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While having this problem, I’ve fallen asleep on sofas, cars, airplanes, hostels, hotels, beds from friends, chairs, hospitals, and the problem still happens. Therefore, I think that the material is irrelevant and we should focus our time and resources on things that are relevant to this situation. As far as sleeping naked, I’ve done that since day one.
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Ok appreciate the feedback, but even if it does not work for you, it might work for other people. "This" situation is not just "your" unique situation, people have different genes, environments and triggers, I'm 100% positive most men don't sleep naked from day 1 like you. Thanks.
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Don't get me wrong JS. I think anything that raises awareness is good. I just think many will not join FB for various reasons. I would do an anonymous account but they have cracked down on that due to all the Russia hysteria. I think just getting this condition on peoples radar is a good idea. Good for you for being brave enough to do that.

I need to talk to my friend that hosts a his own forum right now. Maybe I can piggy back with him and set up another instance of his forum software dedicated to this problem.

Thanks,
Mike O.
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You guys should just open a forum its easy and cheap.
I could have one setup in a day or so, joined to get info but now see people are doing FB. Not this guy not on FB. Anyone want a forum let me know.
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Hi Mike, thx for your kind words.
I created a FB group because I though it would be more convenient.
But I understand there might be privacy concerns.
Personnally, I'm comfortable with FB.
Since i'm no IT expert (and more specifically privacy issues), I'm well open to another platform. It's just that I don't know how to create one.
So, anybody, if you're willing to do so, I'll be glad to join it and assess further the utility of the FB group.
Also, sorry for my english. I try to be the more accurace and precise as I can be but it's my second language...
Hope you are all doing good!
Take care guys!
JS from Mtl
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Hello,
can’t find the FB group, please help
Best
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Hello, through the fb search box, type painful érections.
You should find it easily.
Please answer to the first questions at your best.
Good day!
J's from Mtl
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Hey guys another thing that is helping tremendously with this problem is polyphasic sleep. Have you heard of it? You should try it!
Santiago
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