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Guest wrote:
I read your story about painful periods. Mine is pretty much the same if not worse.
(I always had big periods with lots of pain but I could get through them with lots of over the counter meds. Then about 2 years ago one day I woke up with one huge cramp so excrutiating that all I could think of is that I have to get to the emergency room because I cannot breathe any more. The pain spread from my stomach down all the way to my kidneys then up my back muscles. The next day my period started.
That pain has started a 6-8 months long struggle with constant cramps. It would get better for a couple of days but then start again at ovulation and then again at period. The pain was not just cramps (charlie horse type stomach cramps) but also a clawing pain in my stomach day after day after day. Over the counter meds did not help at all I went through bottles of them in days. At some point I actually took Vicodine I had at home, but even that did not help. The Midol they advertise for pain actually makes it MUCH worse.
Finally fall '06 I ended up in the emergency room one day (pain along with vomiting and diarrea) where they told me that I have IBS. I just could not believe that they dismissed me with that. It could be IBS but IBS is a symptom here for something else and not the root cause. - I got antispasm medicine that was working for a while.
I am at the point that my life is spinning around my period and I think I am going to go crazy. Once it is gone I have about 4-5 days of break before I begin to feel my ovulation. That lasts for about 1 week, then I have about another short week of break before I begin to embrace for my period. I begin to feel small cramps for about 2-3 weeks before my period slowly begins to start. Even though I have these little cramps they last so long that I don't even know when my period is going to start.
I also did sonograms, x-rays with that beryllium stuff - nothing showed not even cysts. At this point I am thinking endometriosis but can that erally affect as far up as my esophagus and down to my kidneys??? hard to believe and doctors seem to just dismiss me as a whiner.
Finally after the antispasm medicines I had to deal with the pain only around my period. But now it is getting worse again and even the antispasms do not work. I am dreading every month and I am regulary missing work. For about 3 months now the pain has been excrutiating again. My morning pills right now: 2 extra strength tylenol, 2 antispasm, 1 waterpill, 1 Prilosec. It lasts until I get to work, and then I have to take 2 extra strength tylenol, 2 antispasms every 2-3 hours to at least to tell myself that I have done everything I can to ease the pain. But they do not do much any more. The cramps tend to come on every couple of minutes and then all my muscles and internal organs seem to pull into one huge cramp that holds for about a minute, while I cannot even breathe then slowly releases.
Sorry about my rant I just really need to tell about it to someone and believe I am not just imagining all this.....can anyone give me some pointers?
(I have dealt with the exact same thing for years. I have been to doctors and pretty much pushed away as it was nothing. I have gone through several birth control methods not for the reason of birth control but for the reason of trying to do something about my periods. I cant really call them monthly's cause they are not. Sometimes I would have a period two or three times a month. And the pain I would encounter yes was pretty much the exact same as you have described. I would miss a lot of work in the past when I had a job. The pain was so sever that my sister would come visit me and find me completely passed out in my apartment. The only thing that would cut my pain just a little so I could walk was two vicadine and that would not really take the pain away it would just ease it a little so I could walk a bit. I try not to take those to often though cause I get one of the side effects which cause you to itch all over. But I decided that id rather itch all over than be constantly passing out through out the day.
The over the counter drugs wouldn't even touch it. Not even that crappy mydol stuff.
Finally I went to the doc and they talked me into getting the depro shot. Worst damn thing I have ever done. Ya it got rid of my period and my cramps but many other problems have started to accure. Now I am dealing with even stranger periods. Plus hot flashes needless to say my symptoms are as if I am going through menopause and I am only 29. I have spoke to my sister about this shot she said it will take a year to get out of my system. (don't get on the shot.) Anyways so now I have to deal with the pain which is back along with all the side effect of the shot which I will list.
Side Effects: (I get almost all of them)
irregular menstrual bleeding - My period use to be long at least 7 days full blown cramps with dark color; Now they are maybe 3 days bright color blood is thin and lots of it. I will go period free for about maybe a week then it starts again
Headaches - I get headaches almost every single day. I have to go to my room close my blinds and lay on my bed with no light or sound
Nervousness - constant
Abdominal cramps - different from what I had before but they are still brutal
Dizziness - not every day but it comes and goes not the greatest feeling
Weakness or Fatigue - This part sucks I work outside love it, now I go outside and only can do about an hours work and I feel like I have been up for weeks Legs get week as well.
Leg Cramps - The only leg cramps I use to get was the ones that came with my period cramps. now I get leg cramps a lot more and they are like leg Charley horse
Nausea - I get this a lot more than I use to. I would get this when I was on my period before I started the shot and only at that time Now half way through the day for no reason I will get this feeling and it gets bad.
vaginal discharge - never had a problem till this shot started
Bloating. Backaches, Depression Insomnia, Acne (had this before been fighting it since I was younger now it is worse)
Pelvic Pain, join pains and last
Hot flashes. - holy cow I mean I could handle the weather here in Texas it would get over 100 I was just fine now if it get anywhere near 100 i sweat so much i look like i just took a shower and feel extremely over heated. I use to never like the air conditioner now I pretty much sit right under the vent and wont move..
My main point of writing this is mainly cause I thought for the longest time I was the only one that was dealing with this horrible pain during my periods but I am not. Now I am in hopes of finding someone that is in the same boat but knows what is causing it.(I don't wish this sort of pain on anyone not even my worst enemy!!!) I am tired of going to doctors only to hear ohh its just your hormones you'll grow out of it. Or its just a little pain nothing to worry about.
Well I am tired of passing out, I am tired of the pain going down into my legs and chest area and me feeling like i can not breath. I now live with my parents the whole passing out in my apartment and not knowing when i will wake is kinda a spooky thing. I have been told by friends and family that I might have Endometriosis but I am unable to get a Doctor to test for it. So in hopes of reply to your post and in hope of posting this someone will have gone through this and found out an answer to taking care of it?? I hope.
I wish everyone the best of luck if figuring this or there own period problems out. I am not about to give up on trying to get this taken care of. The doctors wont give me what I want but I will keep trying.)
(Since I was 20 I have been trying to get a hysterectomy I am told by the docs you will decide later on in life you want a kid. Well docs I am 29 and I still don't want kids. I love them critter (that is not meant rude) but I just dont want any.)
To you and the person you replied to: You're not alone and now apparently I'm not either! Both of your stories are just like mine, the excruciating pain, cramps, and IBS, and the empty results from ultrasounds and scans, and doctors dismissing it as 'probably a cyst that burst' or nothing is what I've been dealing with for the past 3 years. I'm 26 and have felt quite depressed over this for the past year because eventually I thought I either had to be way too wimpy or just imagining it because noone cares to figure out what it is. My mom, best friend and boyfriend have long suspected endometriosis or polycystic ovarian disease but doctors have said I don't have either or they wouldve shown up on my ultrasounds. I'm sent away told only to take advil but I'm in pain at least 3 weeks of every month. I want to know what this is so I can try to fix it because I DO WANT kids and don't want it to get to a point where I'm infertile, though I'm terrified it might be too late. I'm writing this in hopes that either of you or someone else with a similar story will read it and just maybe someone has been diagnosed and knows what this is, please reply! Thank you both for sharing! -kirainvancouver
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So ladies having pain and bleeding in between..don't wait, get to the gyno and do have the trans vaginal ultrasound as soon as possible along with any other tests...that was the most whirlwind frightning thing for me. I wish I would have known sooner.Hope this helps someone. Take care..
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