There is nothing worse than to be ill. Because of my basic condition, now I have several more disorders. My basic disease is Huntignton's disease. For this, I am using several drugs and because of it I am suffering from drugs side effects. Is this really necessary? I am so sick and tired of being sick all the time.
Unfortunately, there is no other way. I am experiencing the same as you. Somehow I learn to live with this. Maybe your point of win needs some changes. Huntignton's disease is eventually mortal. If I must use to live longer, I am ready to that. I am aware of all the trouble that side effects may cause, but nevertheless I accept it. I want to see my daughter going on a prom.