supraclavicular Swelling in Neck

Still no diagnosis for me. Same thing and sometimes I wonder if it has to do with my posture. I work from home all day and sometimes my neck burns from improper posture. Why does no one ever update their status so we can at least help each other get some type of update. Colleen

So actually going to an oncologist today to see if they know anything. I will certainly post what I find out. Colleen

Strange,I I was just released from the hospital yesterday,a bad bout with Shingles!!! The scars are there(horrible) but the pain in the area above the collarbone is excruciating!!it feels like it's stretching my neck! Now it has swelled up and feels like there is fluid in there.The pain radiates down the side of my neck to my shoulder, up my neck near my ear I just made an appointment with my Dr.(i'm so scared!!)This all happened with my shingles,

Wow! so many people with my problem!! Let's see if it's the same ! Mine is at the end of my collarbone leading to my neck!!right in that notch. But I have the Shingles!! and the swelling and fluid appeared with the severe pain,after the scabs fell off!! The area is so painful you won't believe!!
P

Are you kidding me!! I thought I had written that reply!! It sounds just like me!! I had to read it twice!! except I wasn't in the Hospital!!!! My symptoms exactly!! I'm calling my Dr. tomorrow!! Strange!!

I myself has been dealing with the same issues over the past 6 years, swollen bilateral supraclavicular fossae. Did ultrasound, biopsy, mri conclusion fatty tissues. In 2017 they have gotten bigger, no pain just feels tight when in a standing position, laying down it' feels like gel and not noticeable. Not sure what to make of it anymore. Wish everyone all the best.

I have a supraclavicular swelling in neck - roundish swelling just above the collar bone near the neck. Bigger sometimes than others, and it does not hurt. Doctors don't know what it is or what it's caused by. Any ideas?

Hope,
How are you? Did you ever receive diagnosis for the cause of bilateral supraclavicular swelling? I have left supraclavicular swelling and being treated like I am crazy by my new primary dr, same run around by multiple specialists as others posted here. Your comments in particular caught my attention because . .."Worse on my left. It results in limiting my movements and is a strain on my neck, back, and arms. It is especially difficult to lift my arms over my head. I've seen many doctors and This has been going on for many years, and as I get older (now mid 40's) it is getting worse." ME TOO!!
I also have fatigue, severe refractory trigeminal neuralgia left side worse but have TN bilateral, severe cervical deg disc disease, myelopathy, neck pain, left arm pain and weakness, chest pain, shortness of breath especially when laying down and esp upon awakening in am, pain goes thru to upper back bilateral, nausea, bikateral vascular thoracic outlet syndrome, cerebral non ruptured aneurysm, bodywide muscle spasm and cramps, hypothyroidism, POTS, history of goiter and so called benign thyroid nodule, iron deficiency anemia, previous misdiagnosis of Fibromyalgia. That is most of it I guess. Waay too much to keep track of. Very overwhelming. What is wrong with specialists these days, I have confirmed labs, diagnostics, many surgical procedures, tons of specialists records and am still treated like I am a hypochondriac, malingering or crazy!