Unicornuate Uterus

Hi,
My husband and I spent almost two years trying to get pregnant and then found out that I have a unicorniate uterus. Our fertility doc suggested fertility drugs and monthly ovulation test combined with ultra sounds to determine when I was ovulating on the "correct side". After three months of ovulating on the wrong side, things finally worked out and we did an insemination procedure and got pregnant! It is definitely possible . . . Good luck!

This is entirely amazing to hear..



I just terminated a pregnancy after a perinatologist suggested it because I would have a "statistically minute" chance of carrying beyond five months... hearing successful stories about unicornuate pregnancy now is a little bittersweet but very VERY uplifting. It's giving me hope that I CAN carry

Hi, everyone. Like everyone else I have a unicornuate uterus and found out after an HSG. I never had the opportunity to find out if both of my kidneys are present or functional because we found out I was pregnant the day before my MRI. Like many, I did alot of research on the topic and through many conversations with my doctor discovered that your body DOES NOT always produce eggs on the functional side of the uterus. So determining when the "right side" is producing an egg can only be determined by ultra sounds :-( If you have been unsuccessful with trying to get pregnant you might want to schedule ultrasounds a couple days before ovulation to see where the egg is located. Luckily, we got pregnant after the HSG, clomide and the initial ultra-sound. We are now 7 weeks pregnant and hoping for the best! Good luck everyone!

I was diagnosed with a unicornuate uterus after having a c-section for my son, who was footling breech. My doctor was like "wow, cool, haven't seen one of these since residency!" My son came at 36 and 1/2 weeks and did not need to go to the NICU, and we conceived after only two cycles of trying.

We hoped it would be that simple to have a second child, but only just found out I'm pregnant after six months of trying. Hang in there!

I had thought I just had PCOS since I was 20 (I'm now 30) because my older sister had been diagnosed with it and I had all the same symptoms - so had been taking Diane-35 and metformin to help with that. Another one of my sisters also ended up having unexplained infertility that led to IVF (which worked for her :-), so when I got married earlier this year even though we weren't actually trying super hard to get pregnant I figured should see an ob/gyn to get some Clomid to try to ovulate because of the PCOS. Long story short, the clomid didn't work and during my hystosalpingogram the ob/gyn was like...hmmm you only have 1/2 a uterus - do you have an appointment? make one!!
So after ultrasounds and laproscopy I now know I have 1 kidney (which is oversized as compensation), a UU, no rudimentary horn, and an ectopic ovary. I see him in a couple weeks to find out what the next step is, and I guess to see if I have PCOS or not. Anyone on here also have a similar situation?

I have PCOS and found out in the last 2 months or so that I also have a UU. I'm going in tomorrow to talk to my endocrinologist to see what the next step is. I think we're going to try artificial insemination as insurance doesn't cover IVF. We are also seriously looking into adoption. Families are made all different ways! :)

Hi,

I can't believe how many women have UU like me. I never even knew it existed until I went in for a test to check for blockages in my fallopian tubes ( we had 2 miscarriages and then spent the next 2 years after that trying to get pregnant with no success). I went to a fertility specialist and he performed a laparoscropy to treat endrometriosis and a small cyst. I got pregnant the very next cycle. He said the endometriosis may have been the reason I wasn't getting pregnant. Of course my previous miscarriages were chromosomally defective so we are not out of the woods yet. I am only 7 weeks pregnant and am praying that this egg is a good one. I know there are many complications with UU but after everything I've been reading on this site I feel better about it. I wish the best for you all:)

Like others have said, it's nice to find a forum with other women with a Unicornuate Uterus. I am 25 and married for a year and a half. Both my husband and I are in school (he's in med school and I'm in law school) so we don't plan to have kids quite yet, but given this news I guess I'm wondering what everyone's advice is... should I just go off of birth control now and let nature take its course given that I might have difficulties or should we wait until we're "ready" (I know... you can never REALLY be ready for children but now's as good a time as any given that life will only ever be differently stressful, never less stressful).

I found out about my unicornuate uterus because I had weight loss surgery in May, which was done laparascopically. The surgeon noticed that my uterus didn't look "normal" so he took pictures and suggested I have them looked at by an Ob-Gyn. I took them to one doctor who looked at them and didn't really know what was going on, but sent me for a hysterosalpingogram, which was somewhat inconclusive (they could only tell that I had a uterus with one functioning fallopian tube and ovary but that the other tube appeared to be blocked). Then I took the photos to a second doctor, who took one look at the photos and said "you have a Unicornuate Uterus!" She sent me for a renal ultrasound (I do have both kidneys and both appear to be functioning normally), and I just had a transvaginal ultrasound yesterday (we haven't gotten the results yet but given what the Ultrasound tech said it sounds like I'll probably have to have an MRI too--doctor wants to see if the rudimentary horn has an endometrium so we know whether it should be removed or not).

So I guess my question is as follows: given the higher likelihood of miscarriages and of having more difficulty getting pregnant in the first place, would you recommend going off birth control as soon as possible (probably right after I take the bar exam in July) so that we have as much time to try for a baby as possible or would you recommend waiting until we feel like we're "ready"? Emotionally we're both ready and our relationship is very strong, the only thing that would hold me back at this point is $ since we're both in school, but I'm graduating in May, 2011 and my husband is graduating in May, 2012. After that we'll be a lawyer and a doctor so $ shouldn't be too much of a problem.

My personal belief is that children are a blessing and one that you can't totally prepare yourself for. In other words, if you wait until you're *totally* ready (emotionally, financially, etc), then you would never have them ;-) With that said, only you and your husband can decide when the time is right for the both of you.

I ended up going off birth control 6 months before we were married just to give my body time to adjust. Luckily for me, the process went pretty smoothly. After getting married, we stopped using birth control b/c we were worried that it might take some time to have kids (didn't know I had a UU at this point, just had so many friends that had trouble conceiving). We ended up with a honeymoon baby :-) I didn't find out that I had a UU until 11 weeks into the pregnancy. We were high risk and had u/s every other week to make sure that the baby was growing well and that my cervix wasn't thinning out prematurely. Had a c-section at 39 weeks (breech baby) and gave birth to a healthy baby boy (was 6lbs, so on the small side - but I am pretty small). I don't know if we got pregnant so quickly b/c it was a miracle, b/c I went off of the birth control early, b/c my UU wasn't as bad, a combo of any of the above - who knows. When reading the blogs, it sounds like there is such a range in outcomes, from totally routine to so much pain and difficulty. The hard thing is that for many women, they will never know which end of the spectrum they are on until they try.

hello i'm not sure if this will help any one
i have a healthy 2 year old after 8 years of trying for a baby we knew after 2 years of trying i had a left sided unicornate uterus blocked tube (cleared by Laporosopy) leading to a undersized ovary on the left and a perfectly normal floating right ovary and also to add another thing into the mix i have PCOS
Due mainly to the PCOS i was over weight and had high blood pressure
before falling pregnant with my daughter i lost 2 stone i was still over weight but it was enough to work some magic.
i had lots of monitoring and was seen by a consultant or midwife every 2 weeks
we knew from scans that from about 20 weeks she was breech and that her feet were first (footling)
i was signed off of work at 26 weeks due to my blood pressure and told not to drive (worst time of my life and very awkward getting to and from hospital)
i was told i had to have a c-section (since found out through research that with the right care this was untrue) i was booked in for 39+2 weeks at which i was very unhappy as my blood pressure was 198/110 way to high at 36 weeks i was monitored ever 2-3 days after this
my waters broke at 38+2 weeks 10am and contractions started an hour later we made our way to the hospital and were booked in to have a c-section at 5pm as my contractions were very mild and i wasn't in established labour.
after nearly 6 hours things started to get a bit more painful and they checked me to find out i was 7.5 cm and that my daughters feet had descended a call was made to the theatres and i was rushed through and checked again i was 9.5 and told not to push which was easier said than done after 3 attempts they managed to get the epidural in and my daughter was dragged kicking and screaming into the world via an emergency c-section
it was a bit traumatic but we were both safe
when and if we are blessed to have another child then with the knowledge i have now i would be more inclined to try a more natural delivery and a lot less monitoring as long as every thing was ok blood pressure wise

just for medical information
if any one is offered a inversion (turning the baby) this can be very dangerous and result in rupture i was offered one and fortunately due to a bit of research i had found out this and pointed it out (i wouldn't mind but it was in the NICE guidelines(UK medical guidelines) an the consultant hadn't even read my records to know about the UU jut saw the breech)

hope this helps someone

I've just been diagnosed with unicornuate uterus. Few months ago I had a late miscarriage at 25w+2, our little boy was foot first breech, my darling didnt stand a chance. I'm seeing the consultant in a week or so to discuss the findings of the laparoscopy and hysteroscopy I had the other day. She said I had chronic bladder infection (which a couple of other women with UU have reported on these forums). Wonder if I too only have one kidney....

Sorry to sound negative but I cant be as hopeful as all the other UU women who have carried to term seeing as my miscarriage was 6 months in and they say that recurrence is most likely around the same gestaiional age.... The pain from my loss is still very fresh and I'm desperate to love and care for a little one, so I think all these emotions are messing with my head...

Very happy though to hear so many success stories, I wish you all lots of love and happiness xxx

I am 21 years old and my husband and I just had our first child, a girl. She was born 5 weeks ago at 39 weeks via c-section. She was 6 lbs 8 oz and 18 inches long and totally healthy. We found out during the procedure about my unicornuate uterus. This was a surprise! We got pregnant the first month we tried (timed using an ovulation kit) and the pregnancy was completely uneventful. I was curious my entire pregnancy why I was so consistently lopsided onto my left side. Guess now I know why! My OB/GYN isn't very helpful, so all the info I have on my condition is on the internet. I'm terribly frightened now for when we start trying for our next little one. I am thankful that I didn't know through the first pregnancy because I am a serious worrier. Any advice for when I choose a new OB/GYN? Should I attempt to find a specialist??? And do I need to have more testing done to confirm even though my doctor saw it during my c-section?

Thank you for all of the comments! It definitely was reassuring to know that there are other women out there! (By the way, my hubby and I now jokingly refer to my "unicorn" uterus because we can never remember what it is actually called. ;-) )

It is nice to see so many women reply to this.  I have never met anyone in person with a unicornuate uterus, so it is good to know that there are other people in the world in the same boat as me!

We started trying to get pregnant summer of 07.  Summer of 08 we found out that I have a unicornuate uterus, one ovary on the left and one tube on the left from an MRI.  My doctor at the time was pretty insensitive.  She told us we would be irresponsible to even want to get pregnant with my condidtion.  Yet, she was always telling us about IVF, she was crazy.  We changed doctors.  I also had an HSG, my tube is open.  I also had laproscope surgery December of 08 to see if I had endometriosis, but I don't.  We tried AI and clomid and then we were just tired of the month to month let downs. 

We felt really strongly about adoption and got our papers in February 09.  A birth mom picked us in April 09 and our son was born Nov 09.  His birth mom's best friend became pregnant soon after, so we were also blessed to adopt our daughter in September 10.  So now I have two kids under the age of two and am loving it.  I know that is the way they were meant to come to our family, and though it sounds cheesy, my spirit knows their spirits.  They are my babies through and through.  I am loving motherhood!

We didn't try for that long compared to a lot of other people.  I think we just knew that adoption was the right road for us at the time.  We're not ready to have another one yet, but I think we might try the pregnancy road one more time (in about 2 to 3 years) and give it a few years.  I just don't know if I can emotionally handle that again, the month to month disapointments.  Adoption is pretty emotional too, so I just don't know how we will go about having a third.  It is good to know that people have found success though, because I have been worried about having a baby be way pre-term.  I guess we will wait and see.

i am 35 and just diagnosed about a month ago, after laproscopic surgery.  {when i was 12 my appendix burst and the drs never told me anything was wrong. ( often have miss diagnosis at my local hospital so really donr suporise me...) }    anyhow.  my hubby and i have been trying for about a yr and a half to have a baby with no luck.  was kinda ondering if we shoukd just keep trying or if we need medical help.  he is older then i and has a  grown son.  i want to be a mommy and he is excited to be a dad again... any suggestions?

 

btw  this site is helpful for info. and knowing that i am not the only one in the world who has it...lol

 

i am 28 and had a pap smear yesterday. my doctor said i had a c shaped uterus tilting in instead of a slight c or the other way towards the back. this is all new to me because sadly, i had no idea women had different shaped uterus' and no other doctor had ever mentioned this while performing a the same kind of test. when i type in c shaped uterus i get bicornuate or heart shaped someone suggested i should look into unicornuate as well. the things i read are freightening me. what's the difference between bicornuate and unicornuate and is c-shaped all together something else?