Unicornuate Uterus

Hi Lili we had a similar experience recently but my waters broke slightly earlier and then we lost our little boy at 23wks 4days. I have just found out that I have a UU and though there are many success stories, like you feel anxious about what the future realistically holds. Just wondering how you are getting on and what you have or haven't found useful?

Did you go through with IVF? We have been ttc for about 2.5 years now. I was diagnosed with the UU this past August and had some endometeriosis removed. The doctor is recommending IVF for us as well, I'm just curious if others were successful and what their experience was with IVF.

I was successful with IVF two times. I had a cerclage put in both times at 13 weeks and both pregnancies went to 34 weeks.

Hi,

I am so thankful that I found this site - I've felt very alone in having a UU as there is basically no information and the information there is seems conflicting. It's given me hope that one day we'll have our rainbow baby.

I originally was diagnosed with a didelphus uterus, after getting checked out for cysts on my ovaries (I had a kidney stone while living in Italy and the dr thought she saw cysts and suggested I get them checked out once home) - that was a surprise, but my dr at home said he'd seen cases and that I would be able to get pregnant and carry a baby.

After a year of trying, we went to see a fertility specialist. I got pregnant on our third round of IUI. I started bleeding around 5 weeks and was diagnosed with a subchoronic clot, but were able to see the baby's heartbeat. A week later, they told me I had had a missed miscarriage and recommended a D&C. After the surgery, I was having excruciating pain, so my fertility dr recommended a second D&C to clear the left side (apparently this is common practice to do only the side that the baby implanted in when you have a didelphus uterus). It was during this surgery that they realised I actually had a Unicornuate Uterus with a non-communicating left horn (and the pain was coming from the endometrium lining not having anywhere to escape). I ended up having a semi-hysterectomy (after one failed surgery, I ended up having it done by a uterine oncologist, since everything was pretty cluttered) to remove the left non-communicating horn and fallopian tube.

It was only at this surgery that my oncologist surgeon said I needed to get my kidneys checked to see where they were situated so she knew prior to surgery, and I found out I only have my right kidney also. I honestly can't believe none of my "specialists" prior hadn't mentioned that having kidney malformations is linked to uterine malformations. I'd even had an MRI after finding out and no one bothered to tell me :(

I now have my right side of my uterus, right fallopian tube and ovary, and my left ovary (which is floating around somewhere on the left!!) and right kidney.

After recovering from the surgeries, we started doing IUIs again and I conceived my second round this time. I lost the baby at 10w, after being told that it stopped growing at 6w, and miscarried the weekend after being told. I also have a tilted uterus, so at first they thought I might have had a blighted ovum.

It is nice to hear so many people not having problems conceiving and not miscarrying. My dr is quite sharp and blames both miscarriages on my uterine shape. Due to the lack of research, he assumes that it is because the baby isn't getting enough blood at a crucial time. It really sucks not having much information and having a dr assume its because of your uterus. I like hearing that people haven't had problems keeping their baby, as I am discouraged and wonder if I will ever get past 12w. All the information I find either say we are prone to miscarriages or they say there should be no problem conceiving with the problems coming later in pregnancy, so it's really nice to hear real people's stories.

Does anyone know whether there are any research studies being done? I would love to offer up my information in order to help future women faced with this confusing diagnosis...

PS Apparently, uterine malformation is not only linked to kidney malformations, but apparently, my renal dr said it can affect your hearing too!!

I am 27 years old and had no clue about unicoruate uterus much less that I had one. I only have one kidney, one ovary, and one fallophian tube as well. We did not have a hard concieving, took about 4 months. I had a pretty great pregnancy but really bad swelling from the beginning but that was pretty much it. My ob was booked when it was time for my 20 week anatomy scan so they booked me an appointment with the local high-risk doctor. Because of that he was so active I cannot see the heart fully so they have me come back into weeks to make sure everything was good ! Everything went great it's at my baby was large so they had me come back for two more ultrasounds and then cleared me and said everything was perfect. I was induced on Monday morning at 8 AM they tried many different things to get me to have a natural delivery for over 24 hours and it was unsuccessful they couldn't even break my water. Finally the doctor said we were going to have to have a C-section, which was totally fine with me especially that point! When getting into shut the C-section I had two doctors in the operating room. Pretty sure they did that just added precaution because I have had such a hard time trying to get me to go natural and I had not even dropped. I did lose a lot of blood and had a hard time and the surgery but everything went OK! At 41 weeks I gave birth to a beautiful 9.8 pound baby. I had no clue until days later about unicornate uterus! I was blessed with a baby that went past term and was large which I now see is very rare! We were beyond blessed!

Hi All - I was diagnosed with a UU and was afraid I could not get pregnant. I didn't track ovulation because I was SO irregular it was hard to pin point. Much to my complete shock, I found out Monday I was pregnant! I went to my dr and it was confirmed. I'm about 4 weeks from conception date. I hope, pray, wish that nothing bad happens along this journey to my baby. I want to tell everyone, but afraid something might end up happening. How does everyone deal with the feeling of being scared with a UU? I have no one that can relate to this condition. I am just so excited to actually be pregnant! Thanks :)

WOW 9.8 pounds!? That's incredible! Congrats. Your story gives me hope!

I have 25 years and I have unicornate uterus and my left fallopian is block and right is connected with uterus. But I have checked follicular study alternate two month but egg is releasing into blocked left tube and also egg size is not increase in right Fallopian tube. And small flude in uterus. Please someone suggest me what I do.

I have 25 years and I have unicornate uterus and my left fallopian is block and right is connected with uterus. But I have checked follicular study alternate two month but egg is releasing into blocked left tube and also egg size is not increase in right Fallopian tube. And small flude in uterus. Please someone suggest me what I do.

Hello,
I was told today I have UU. I am almost 40 and never been pregnant. I am so afraid your post has given me hope.

I am 14 and was diagnosed with it yesterday i do have 1 kidney and i was told that i am the 1/100,000 chanced of having it. If you do get pregnant you will have a premature baby it could weigh as little as 2 pounds or as much as 5 5when i wad diagnosed i was told i would be getting surgery. Does anyone know how many surgerys it is going to take ??

My husband and I tried for two years to conceive. We had an appointment to meet a fertility specialist when we found out we were expecting. Around the time we got pregnant we were on a strict ketogenic diet and I was seeing an acupuncturist. I carried to 41 weeks and our son turned breech in the last week requiring a c-section, which is when they discovered my unicornate uterus. My right tube is functioning but my right ovary is non functional. I have a healthy left ovary, but no fallopian tube. I carried very small throughout my pregnancy, but my son was born 8lbs even. We've been trying for a whe now, but the first time seems lime it was a miracle and a second little one may not be in the cards for us. Don't lose hope though! It happens!

Hi
What did you do during your pregnancy period? ie did you bed rest the whole time? or did you work normall?

Just had a baby girl 6lb 6oz 7 weeks ago, waters broke at 39 weeks, had 40 hour labour ending in c section as cervix wouldn't dilate past 3cm for a normal birth. I have a right sided uterus with one working right tube and both fully functioning ovaries. Was referred for ivf as had been trying a long time but managed to get pregnant naturally a month after the referral! They said I had a high egg count so not sure why it took so long, I may have been ovulating mainly from my left ovary which has no tube which might explain it. I'm 38 and first baby.

This really gave me hope I have the same problem as you and gotsurgery recently cause i had two huge cyst