Thank you for posting this!! I have been off BC for a month and have had many of your same symptoms. Some days it feels completely hopeless and have to keep reminding myself it WILL get better with time. I would love to chat with you more if you can.
I'm so glad I found this forum and that I'm not the only one going through this horrible and scary time.
Here's my story:
I have been on BC for 10 years and have ways been on a low dose. I was on Ortho Tri Cyclen Lo for about 5 years. I've never had any issues with any of the BC I was prescribed. I got married in October 2014 and ran out of my birth control prescription (Ortho Tri Cyclen Lo) towards the end of February 2015. I had to change insurance companies and see a new doctor due to getting married. I was given a month courtesy pack since I wasn't a patient yet. Little did I know, there isn't a generic version of Ortho Tri Cyclen Lo so I was given the generic of regular Ortho Tri Cyclen without my knowledge. In the middle of May, I experienced bad anxiety for 2.5 days straight. I just constantly felt on edge and scared. All I could do was lay down to help me feel "ok". I went to see my primary doctor about it and she tested my thyroid, my blood work from April was all good, and I wore a heart monitor for 30 days. Everything was normal. I decided to stop BC since that was the only thing I could pinpoint that had changed in my life. I had never experienced anxiety before this. I also experience random crying for no reason, pressure in my head, feeling spacey/foggy headed. The anxiety is what I struggle with the most but it hasn't been as bad as it was in May, and it doesn't happen every day, but it comes and goes and I struggle when I have to be home alone. I went back to see my doctor a few days ago because my anxiety was really high and I was seeking reassurance that there wasn't anything else wrong with me causing this. She said she couldn't really justify an MRI of my head to insurance so they wouldn't cover it, but she ordered a 24 pee test that is supposed to test my adrenaline levels (I get results next week). Of course she wouldn't come out and say my issues are a result of BC, but said stopping BC could have been a physical stressor on my body which causes the anxiety. She prescribed me Sertraline (generic Zoloft) to help with the anxiety. I took 25mg for 2 days and decided this isn't the route I want to take. I have never been depressed in my life nor have had anxiety. I've always been a happy person and able to handle most situations. My doctor did mention to me that CBT (cognitive behavioral therapy) might help me so that is my next step. My anxiety now focuses solely around my health and the fear of having something wrong with me. I hope seeing a psychiatrist will help with this anxiety and I hope this passes soon!
I am thankful to see that several people on here have been able to move past their situations. I've almost reached my 2 month mark since stopping BC so I hope this gets easier! Wishing everyone good luck with their experiences!
-Christina
Hi,
I have a similar story, it's been about 2 months off BC for me. It's been a roller coaster, and I just hope that the worst of it is over. The toughest for me has been the anxiety and insomnia. I went to a naturopathic dr. (very expensive since my insurance doesn't cover it) b/c I just want some relief. I had blood-work/thyroid checked at my regular GP, and everything came back normal. I'm also seeing a counselor for CBT. I would love to chat more with you.
Hello all,
Just wanted to come on here and recap my recovery and hopefully provide some hope for some of you out there feeling utterly hopeless. The last time I posted, I was a mess. And now I am much less of a mess. I was due for my last depo injection on June 11 so techincally I've been off for a little over a month. I wont' say by any means that I am healed. But my anxiety has decreased, the joint pain and fatigue has decreased and I am feeling much more positive about life.
The symptoms that still remain: anxiety waves that subside pretty quickly, intrusive/violent thoughts generally only right before bed, foggy thinking (some), tension headaches, detached feelings from my loved ones, and an overall emotional numbness. Still no sign of a period though. Although it doesn't sound that I am better, I really am improving. I keep my fingers crossed that I'll fully recover in time.
This forum was such a great relive, because a lots of people described basically my feelings.
Good luck! I will keep you updated!
I have been off BC for almost 2 months. I couldn't handle the anxiety anymore so I went on anti-anxiety medication. I felt so bad, I couldn't control my thoughts at all and I felt like I was losing my mind and myself, like constant panic attack + depression for a week straight after my first period off BC, all I could do was lie down. I take the smallest dose possible a day and it's used to cure panic disorder (as well as anxiety and depression). It has made everything so much better!!! I literally couldn't function anymore and it was making me depressed so I decided enough is enough. I have a wonderful doctor who believed me when I said this is caused by my BC. Unfortunately the medical world hasn't done much research on this subject so there isn't anything else to cure this but regular anti-anxiety meds and therapy (and I couldn't get into therapy because it's summer so). I tried some supplements during my first month off but they didn't do much unfortunately. Some girls have found help in those. I have also been taking ear acupunction and it has been good, there we have been trying to take care of the hormonal imbalance. I hope everything will even out soon. I hope strength for everybody who's going trough this! It's tough! Some girls on another forum have been saying this could take 6-12 months to recover from. Don't be scared to ask for help, if it's therapy, medication, supplements, anything. This is not your own making, this is caused by your birth control pill but the reaction you are having is real anxiety and if you need help to get trough it it is completely OK.
I'm pretty much in the same boat, it's been almost 2 months off. I too finally got anxiety meds in desperation. I wasn't sleeping and this of course was only making the anxiety even worse! I'm taking the lowest dose and halving them. I was so reluctant to take them (I have anxiety over taking anxiety medication!) but they have helped. What are you taking for the anxiety/depression? I was also prescribed an antidepressant that I haven't taken..I'm VERY uncomfortable with it and think I would have more anxiety about taking it and any possible side effects than any benefit I would get from them. I have been going to therapy and it's helping. I've always had a bit of anxiety before all this but I think all the on and off I did with the pill really messed up my hormones and I also started a new job around the same time I went off BC for good 2 months ago. I think the combination of it all sent my anxiety into overdrive. I've never had depression ever in my life but it's taken a toll, the anxiety, moodiness, insomnia, and just generally feeling like c**p. I went to see a naturalistic doctor who has me on some supplements. I'm waiting to get the results back from my hormone level testing. She too said that lots of women have go through this when stopping the pill. I have been trying to do yoga on the days I feel good. I used to run every other day before all this started but just haven't had the energy lately. I have even thought of going back on the pill to try and feel better but the thought of going through all this again when I eventually need to get off is just too much to bear. I would like to try acupuncture, I know lots of girls here have had success with it. My regular MD said it takes on average 3 months for your hormones to balance out. I wasn't on the pill for very long so I hope my body will balance out soon.This has been one of the hardest things I have ever been through, I still can't believe that OB/GYN's don't seem to have a clue that this can happen as a result of stopping the pill.
Sam! Same time it makes me super sad that you're in the same boat as me but it's kind of comforting as well to know I'm not the only one taking medication for this. Don't be anxious over it: the anxiety meds are going to make you better, not worse like BC. I was anxious too at first but I now can see how this works and it's making my life so much easier. My meds contain venlafaxin and the dose is 37,5mg. It is not a calming med you take every now and then when you feel bad, I have to take it every morning for a few months. I can't break them into smaller pieces, I have to take the whole capsule. I used to have a few panic attacks and anxiety after them already while I was on BC and I really want to get this whole anxiety thing actually cured. My doctor said this medicine is something that's actually healing and has permanent results in the long run, so hopefully in the future I won't have anxiety problems anymore (besides normal anxiety which is of course part of life but you know what I mean with anxiety PROBLEM when it is actually effecting your everyday life). This has been the hardest thing for me too and it is bothering me like how can a BC f**k your life up like this it makes me very sad. I don't want to turn bitter though because that's not my nature and I know that I will get back to my happy, more care free self who can enjoy being alone and staring at the ceiling with my own happy thoughts. Like you, I want to celebrate the small things and see the small improvements :) This will be a distant memory some day, hopefully not long from now and you are right, this makes us stronger. I hope you'll recover soon! Don't be too hard on your self, this will pass I promise. The water thing is also something my acupuncturist told me! I really should drink more water anyhow so this is good time to start to learn that and make it a habit. In Finland we even have an old saying "Water is the oldest of all treatments".
I'm so glad the meds are helping you! I too know I will always have a bit of normal anxiety that's manageable. I know this will make us all stronger; the positive aspect of all of it is I've really seen some aspects of my life I want to change. I wish I had done more research about BC before ever taking it, I never ever would have thought hormones could do all this!! Lesson learned! I don't know how many women out there experience these kind of issues but just reading and chatting about it all has been so helpful for me. Thanks for writing me back, have a great week!