Hope all goes well...stay positive...l have had this since the late 80s and my doc(several in fact) dont know what it is...but mine isnt cancer because of how long I have had it. You will be in my thoughts
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Hi, I don't know if this is still current, or what the outcome is - I'm reading through these posts as first I had swelling above my left collar bone, & now the swelling has also started above my right.
I have a back injury - prolapsed discs at L4, L5 & S1, & have also been diagnosed with early onset cervical spondylosis, & have been taking strong opiate based painkillers for 13 years. Am currently on Buprenorphine transdermal patches, changed from Fentaynl patches as my body became too tolerant of them & I was having constant withdrawal symptoms.
It is now early June, & by last Christmas I was exhausted & highly stressed, to the point of having panic attacks, which also happened in my sleep! (Due to having to push myself too much to do a job which needed doing, & had a few major worries at that time) Thankfully the problems sorted themselves out so the stress was lowered.
Over Christmas I caught a virus, which gave me flu like symptoms, & I fought it on & off for 4 months - it just kept coming back. During that time I also developed a bad ear infection, which came back 3 times, & a severe lung infection. I had countless courses of antibiotics over a 4 month period, & finished off with 2 courses of prednisilone to calm my asthma, which had flared up badly due to the lung infection. A week after finishing the steroids & antibiotics, I went into hospital to have a Mirena coil fitted, which contains slow release hormones.
Since then I have felt more & more ill. I have been fighting extreme fatigue & exhaustion since the virus first started at Christmas. For the last 2 months (since coil fitted) have been getting even further fatigued, & developing pains all aver my body - particularly my shoulders, arms & legs, & also regular bad headsches. My skin keeps hurting to the touch, & have been getting tingling in my fingers & feet. In the past 2 weeks, any exertion, ie: walking a little quicker than usual, usual chores like lifting washing basket, etc, has resulted in swelling throughout my body. Walking a little faster the other day felt like I was trying to wade through hip high mud - my legs felt like they were going to give up, & all I wanted to do was lay down, rest & sleep. To my horror when I got home that day, I found that my legs were dreadfully swollen, thighs, knees, calves, feet - didn't look like they belonged to me! My left arm has also been swelling, particularly around the bend of my elbow, at the bottom of my bicep, after just lifting my four year old daughter, & my arms & legs have become weaker - particularly my left ar, & my hands & fingers have been permanently swollen over the past 2 weeks, in varying degrees. I have had a low grade fever for the past few years, which the dr puts down to my meds, but in the last 6 weeks it has progressively got worse. I have hot flushes & will suddenly overheat & sweat badly, then start shivering a few minutes later. Even sitting in a very hot bath I've had goose bumps & haven't been able to warm up at times!
Today I noticed a swelling above my left collar bone, which has got worse as the day has progressed, & now a swelling is starting above my right collar bone. I've got a cold, & have a really bad headache, keep feeling sick, & just feel 'ill'! I've been feeling ill for nearly 6months now, & just keep feeling worse. I have no energy to want to do anything. Everything is an effort, & all I want to do is just sleep, but I wake up still tired. I found this forum due to being worried about these swelling above my collar bones. I had an appointed with my pain clinic consultant, & he wrote to my GP asking him to urgently refer me to either rheumatogoly for tests, or back to my gynaecologist. I've been trying to make an appointment to see my GP since they received that letter, & was told to call Monday to try & get an emergency appointment to see him, which I'm going to.
I am worried. Sorry for the long post, but I have the same symptoms as most of you who have posted on here, & hope that somebody is still around for some support, please?
I have a back injury - prolapsed discs at L4, L5 & S1, & have also been diagnosed with early onset cervical spondylosis, & have been taking strong opiate based painkillers for 13 years. Am currently on Buprenorphine transdermal patches, changed from Fentaynl patches as my body became too tolerant of them & I was having constant withdrawal symptoms.
It is now early June, & by last Christmas I was exhausted & highly stressed, to the point of having panic attacks, which also happened in my sleep! (Due to having to push myself too much to do a job which needed doing, & had a few major worries at that time) Thankfully the problems sorted themselves out so the stress was lowered.
Over Christmas I caught a virus, which gave me flu like symptoms, & I fought it on & off for 4 months - it just kept coming back. During that time I also developed a bad ear infection, which came back 3 times, & a severe lung infection. I had countless courses of antibiotics over a 4 month period, & finished off with 2 courses of prednisilone to calm my asthma, which had flared up badly due to the lung infection. A week after finishing the steroids & antibiotics, I went into hospital to have a Mirena coil fitted, which contains slow release hormones.
Since then I have felt more & more ill. I have been fighting extreme fatigue & exhaustion since the virus first started at Christmas. For the last 2 months (since coil fitted) have been getting even further fatigued, & developing pains all aver my body - particularly my shoulders, arms & legs, & also regular bad headsches. My skin keeps hurting to the touch, & have been getting tingling in my fingers & feet. In the past 2 weeks, any exertion, ie: walking a little quicker than usual, usual chores like lifting washing basket, etc, has resulted in swelling throughout my body. Walking a little faster the other day felt like I was trying to wade through hip high mud - my legs felt like they were going to give up, & all I wanted to do was lay down, rest & sleep. To my horror when I got home that day, I found that my legs were dreadfully swollen, thighs, knees, calves, feet - didn't look like they belonged to me! My left arm has also been swelling, particularly around the bend of my elbow, at the bottom of my bicep, after just lifting my four year old daughter, & my arms & legs have become weaker - particularly my left ar, & my hands & fingers have been permanently swollen over the past 2 weeks, in varying degrees. I have had a low grade fever for the past few years, which the dr puts down to my meds, but in the last 6 weeks it has progressively got worse. I have hot flushes & will suddenly overheat & sweat badly, then start shivering a few minutes later. Even sitting in a very hot bath I've had goose bumps & haven't been able to warm up at times!
Today I noticed a swelling above my left collar bone, which has got worse as the day has progressed, & now a swelling is starting above my right collar bone. I've got a cold, & have a really bad headache, keep feeling sick, & just feel 'ill'! I've been feeling ill for nearly 6months now, & just keep feeling worse. I have no energy to want to do anything. Everything is an effort, & all I want to do is just sleep, but I wake up still tired. I found this forum due to being worried about these swelling above my collar bones. I had an appointed with my pain clinic consultant, & he wrote to my GP asking him to urgently refer me to either rheumatogoly for tests, or back to my gynaecologist. I've been trying to make an appointment to see my GP since they received that letter, & was told to call Monday to try & get an emergency appointment to see him, which I'm going to.
I am worried. Sorry for the long post, but I have the same symptoms as most of you who have posted on here, & hope that somebody is still around for some support, please?
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I would think it is a good sign that the swelling went away last year. If it was cancer, I would think the swelling would not have subsided. Has he had any fatigue or weight loss? Please keep us posted and good luck.
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Hi is anyone still on here for this issue?
About 3 1/2 weeks ago I was on omnicef and prednisone.... For sinus infection. I took 3-4 days worth of prednisone and then stopped (it was making my body hurt). 1-2 days after I stopped my neck looked swollen so I went back to the walk in clinic and the doc said you have soft tissue swelling from prednisone and to stop taking them. (Which I had already stopped). A couple days went by and I woke up in a full blown panic attack and went to the ER I informed them of my neck issue.. The doc looked at me like I was an alien when I told him what the walk in doc said about the prednisone causing this. So they did blood work, chest X-rays and ct scan with dye on my neck and said everything looked fine but he could see the swelling on Ct scan. So worried and not sure on these answers I was given. Anyone have any updates?
Thank you for reading
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This does sound like a allergy reaction to prednisone also
some people get that moon face shape reaction this is
side effect to the prednisone. Once this medication gets
out of your system your neck and any swelling should all
go back to normal.
some people get that moon face shape reaction this is
side effect to the prednisone. Once this medication gets
out of your system your neck and any swelling should all
go back to normal.
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MY FEMALE BABY HAVE SWELLED BOTH SIDES OF NICK ABOUT 3 DAYS AGO, HER AGE IS 15 MONTHS , CAN YOU TELL ME WHAT SHOULD I DO FOR THAT
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I wish I could help! I have been putting ice packs and then heat. It's driving me crazy and giving me a complex when people look at me I think they are staring on my neck.
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I have been checking out comments like this in the web lately and have to at least encourage everyone to check out their kidneys. I take oxycodone for 2 ruptured disc and many times excedrin for headache it give me and stuff like that. Recently my doctor put me on a steroid pack for blowing out my back and I noticed it wasn't only my neck that's been blowing up like a balloon off and on everyday but that I my whole body had swelled to some degree. I also have recently been having a lot of nausea and have even thrown up 10 times in the last 4 months and I haven't thrown up but I even in 30 years. I also put together that the fla k pain across my back would start to throb AFTER I took my meds of any kind. My doctor and I are looking in to this and I wanted you all to k ow about it too! Will keep in touch. Help me in High Point NC.
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I have been checking out comments like this on the web lately and have to at least encourage everyone to check out their kidneys. I take oxycodone for 2 ruptured disc and many times excedrin for headache it give me and stuff like that. Recently my doctor put me on a steroid pack for blowing out my back and I noticed it wasn't only my neck that's been blowing up like a balloon off and on everyday but that I my whole body had swelled to some degree. I also have recently been having a lot of nausea and have even thrown up 10 times in the last 4 months and I haven't thrown up but once even in 30 years. I also put together that the flank pain across my back would start to throb AFTER I took my meds of any kind. My doctor and I are looking in to this and I wanted you all to koow about it too! Will keep in touch. Help me in High Point NC.
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I have been checking out comments like this in the web lately and have to at least encourage everyone to check out their kidneys. I take oxycodone for 2 ruptured disc and many times excedrin for headache it give me and stuff like that. Recently my doctor put me on a steroid pack for blowing out my back and I noticed it wasn't only my neck that's been blowing up like a balloon off and on everyday but that I my whole body had swelled to some degree. I also have recently been having a lot of nausea and have even thrown up 10 times in the last 4 months and I haven't thrown up but I even in 30 years. I also put together that the fla k pain across my back would start to throb AFTER I took my meds of any kind. My doctor and I are looking in to this and I wanted you all to k ow about it too! Will keep in touch. Help me in High Point NC. Ps. They are trying to send me to ENT TOO right now.
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I have been checking out comments like this in the web lately and have to at least encourage everyone to check out their kidneys. I take oxycodone for 2 ruptured disc and many times excedrin for headache it give me and stuff like that. Recently my doctor put me on a steroid pack for blowing out my back and I noticed it wasn't only my neck that's been blowing up like a balloon off and on everyday but that I my whole body had swelled to some degree. I also have recently been having a lot of nausea and have even thrown up 10 times in the last 4 months and I haven't thrown up but I even in 30 years. I also put together that the fla k pain across my back would start to throb AFTER I took my meds of any kind. My doctor and I are looking in to this and I wanted you all to k ow about it too! Will keep in touch. Help me in High Point NC. Ps. They are trying to send me to ENT TOO right now.
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I too have had this, I have went through extensive test in the last year and it came up inflammation due to gluten. Lots of liquid supplements and gluten free diet it has gone down but taken a year. If and when I do eat gluten back up it goes.
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I have these fat pads too! They developed after cortisone injections in the hip. An endochrinologist sais they are from the steroids but my orthopedic dr says he has never seen them before! Are you amassing info and where could i direct my orthopedic dr to inform him?
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