Hi. My son is only 4 and he was diagnosed with cystic fibrosis. Me and my husband also have CF. Don`t know what to do. Feel lost and wonder is there anything in this world that could help him. I know that medical treatments continue to advance and would like to hear is there some new cure for kids with CF?
Hi. Medical treatments are improving but still, there is no cure. My kid had CF and he died in the age of 10. Children with CF must eat healthy food with vitamins. My son was on some 30 pills per day before he died (Pulmozyme, TOBI, all sorts of vitamins). As people with CG get older, infections tend to worsen up, so you must treat his condition the very best you can.
We have a family member with CF and she soon will turn 22. She takes a lot of medications including enzymes, bouts of TOBI, & lots of others. She wears her vest twice a day to loosen & clear her lungs.
Good Luck to you. I don't know where you live, but it is imperative to get a good doctor and do everything you can. Lots of exercise is a must to work the lungs.
Good Luck to you. I don't know where you live, but it is imperative to get a good doctor and do everything you can. Lots of exercise is a must to work the lungs.
A good friend of mine has cf and he is 31 years old and doing really well. In fact, he is so healthy at this point, his doctors took him off the organ transplant list.
Another friend of mine lived until he was 37 with cf. Doctors are making strides everyday.
Hope your son and family are doing well.
Another friend of mine lived until he was 37 with cf. Doctors are making strides everyday.
Hope your son and family are doing well.