How dangerous are pineal cysts

how is your daughter now? I have a 12 yr old that has ha SEVERE headaches everyday for 4 months now. Along with dizziness, losing 10 lbs., nausea, and some vision issues. She was finally diagnosed with a pineal cyst. Her dr. insisted it couldnt be causing issues. I'm in the process of getting a second opinion

iam 21 years old and i was diagnosed with pineal cyst in the core of my brain, my neruologist suggested not to remove them because they can leave on there own. and it is possible for them to come back. Iam on topamax and relpax those two rx drugs are the best for migrane headaches i suggest you talk to your doctor about them. I have been on them for 8yrs now. and i no longer get a migrane everyday.

Do your headaches worsen with an orgasm? Mine do severely ... Doctors look at me weirdly when I say this but I think it definitely has to do with the pineal cyst. Thanks.

Hello, my 24 yr old son has a pineal cyst/tumor his is 1 cm. He suffers daily from extreme headaches, problems sleeping, Nausia, has had blackout in summer (Not sure if related) vomiting on few occasions. Neck pain (but he does have a fused neck) He is depressed. We live in Canada and are hitting brick walls with the Doctors. He also suffers from jaw pain, earaches. We recently came back from Toronto to see Neurosurgen and again were told prob not the cyst but wants another MRI done. This Doctor didn't even look in his ear. So we took him to ER few nights ago and eardrum is severly red and swollen. also has severe sinuisitis at the moment. So he really isn't feeling well. He has also seen floaters and is very light sensitive. any info you could give would be appreciated. Laverne

supergirl49 wrote:

KHealth wrote:

Guest from 10.12.07, I am just now seeing your email. I am appalled by your words. Did you actually read my entire story? You mentioned that I had poor knowledge of my condition. I lived with the pineal cyst for years, suffered migraines, and seizures, so obviously I have an accurate knowledge of my own condition. I had written my story for everyone on this page to try to help and reach out to those that were suffering from pineal cysts as well. I wrote the story not even a month after my own brain surgery. You don't need to try to educate me by copying meanings of this condition from the internet. I've read everything you've posted online over and over again. For the record, yes it WAS a cystic tumor. Those are the words from Dr. Shahenian, the doctor who removed it from my head. It was originally just called a cyst, after my doctor removed it from my head and examined it, he said it was a cystic tumor. I hope you can spread love on here rather than negativity....

PS - For anyone else on this page who may be suffering with a pineal cyst & would like to communicate, please let me know. I'll give you my facebook page or email....

~KHealth

Hello, my 24 yr old son has a pineal cyst/tumor his is 1 cm. He suffers daily from extreme headaches, problems sleeping, Nausia, has had blackout in summer (Not sure if related) vomiting on few occasions. Neck pain (but he does have a fused neck) He is depressed. We live in Canada and are hitting brick walls with the Doctors. He also suffers from jaw pain, earaches. We recently came back from Toronto to see Neurosurgen and again were told prob not the cyst but wants another MRI done. This Doctor didn't even look in his ear. So we took him to ER few nights ago and eardrum is severly red and swollen. also has severe sinuisitis at the moment. So he really isn't feeling well. He has also seen floaters and is very light sensitive. any info you could give would be appreciated. Laverne

I have most of thos symptoms (14mm x 14mm x 10 mm). Has he tried taking Siberian Ginseng? Alleviates my condition ...

Take take.

my daughter was diagnosed with a pineal cyst a cpl months ago. she is 4 yrs old and hers is over a centimeter. just this morning she vomited and i wondered if it was the cyst, or just the end of a cold shes been fighting off. so every time she gets dizzy..or rubs her eyes when its bright outside..or says her head hurts i have to be reminded that she has this cyst. she cant take care of herself because shes so young, but if she was an adult i would hope people would encourage her to take care of the problem rather than wondering about every little symptom. if a doctor thinks you might die from this eventually, why would you wait around to find out? im sorry you have to worry about your mortality. how stressful. i will pray for you. xo

try dr hudgins at akron childrens hospital neurosurgery in ohio. he sees several of these cases per day. laid it all out there for us. hes not afraid to take care of the problem :)

Hello' My name is Janet and my 32 yr old daughter was recently diagnosed with a pineal cyst. They say however the walls are changing shape and it may be changing into a tumor. She is experiencing the same symptoms as you are and tires easy. Surgery is recommended & we are researching on who to use. could you tell us please who your surgeon was? Thankyou,

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I also had a pineal tumor and similar symptoms. I had it removed, along with my pineal gland, on March 6, 2011. I would really love to talk to you about your recovery and any sleep issues post surgery. I don't know anyone else who has had a brain tumor that didn't die. I am desperate for information.

You should use your spell check!

dizzy75 wrote:

JkaPINK wrote:

iam 21 years old and i was diagnosed with pineal cyst in the core of my brain, my neruologist suggested not to remove them because they can leave on there own. and it is possible for them to come back. Iam on topamax and relpax those two rx drugs are the best for migrane headaches i suggest you talk to your doctor about them. I have been on them for 8yrs now. and i no longer get a migrane everyday.

Do your headaches worsen with an orgasm? Mine do severely ... Doctors look at me weirdly when I say this but I think it definitely has to do with the pineal cyst. Thanks.

2years of diagnosing, monitoring, calling it non-specific migraines etc and I have to say "yes" to does it worsen with an orgasm. My syptoms are seasonal, mainly from August - March or thereabouts and in testing all sorts of things I'm glad to finally see other folks posting their symptoms, diagnoses and results (even ones that sound funny like this!).

i'm interested in knowing how big your cyst was and the name of surgeon/ it would be of great help, my daughther has a cyst and is causing her a lot of headaches....thanks you

how large was your cyst and who whats the sergon that removed iy

 

please message me with information on your surgeon and where he is located. my daughter was just diagnosed and she is 29 yrs old.she is having severe headaches and vision problems. I feel i need to talk to someone who has been through this.

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 thank you so very much.

friend wrote:

Paige DeSarro

EAST LIVERPOOL — Paige Marie DeSarro, 17, of Yeager Drive, funny, brave and a loyal friend to many, died at 8:30 p.m. Saturday, June 23, 2007, at Children’s Hospital of Pittsburgh after suddenly taking ill one week ago.

Born April 17, 1990, in Salem, a daughter of Todd DeSarro of East Liverpool and Dana Hughes Wright and Rich Wright at home, she had lived all her life in this area.

A member of Glenmoor Presbyterian Church, she was to enter her senior year at Beaver Local High School in the fall. She was a member of the volleyball team and had played basketball at one time.

In addition to her parents, she is survived by a brother, Shane Wright, at home; and two sisters, Sierra Wright, at home, and Alyssa DeSarro of East Liverpool.

Surviving are maternal grandparents, Keith and Joan Hughes of East Liverpool; paternal grandparents, Bill and Karen DeSarro of East Liverpool; paternal great-grandfather, Everett Anderson of East Liverpool, maternal stepgrandparents, Earl and Karen Beaver of East Liverpool and maternal stepgrandparents, Rich and Luann Wright of Salineville; maternal stepgreat-grandmothers, Letha Lee, Margaret Beaver and Naomi Wright, all of East Liverpool.

Surviving are five aunts, Kelly DeSarro of East Liverpool, Traci Furman and her husband, Eric, of East Liverpool, Holly Walls and her husband, Tom, of Mississippi, Danielle Beaver of Washington, Pa., and Courtney Wright of East Liverpool, and two uncles, Scott DeSarro and his wife, Bev, of East Liverpool and Justin Wright and his wife, Kylie, of Wellsville.

Also surviving are many cousins.

The Rev. Rick Dawson is to conduct services at 11 a.m. Wednesday at the Dawson Funeral Home, where friends may call from 2 to 8 p.m. Tuesday. Burial is to be in Columbiana County Memorial Park.

Memorial tribute may take the form of contributions in care of the Paige DeSarro Scholarship Fund, in care of the Beaver Local Schools Foundation, P.O. Box 2503, East Liverpool, Ohio.

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6/25/07
She had a cyst on her brain!
Talk to your Doctors again!

I was just diagnosed with a cyst in my brain.... Can you tell me what kind of cyst she had? I'm very sorry for your loss.