To new sufferers, take heart, it is going to be O.K..
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I came down with Bell's a week ago yesterday. I think it happened when I yawned one night. I felt a searing pain like a pulled muscle underneath my tongue. The next day, my eye was twitching on my right side, and some other weird things. Then the day after, the Bell's set in compeltely - droopy face, no muscle control, loss of taste buds, inability to tear, etc.
One thing that has helped tremendously for me (other than staying as positive as possible) has been acupuncture therapy. I am of course on the "western route" ie: acyclovir and prednasone, blood tests for Lyme, etc. plus the vitamins others have mentioned: a daily multivitamin, Vitamin C, B-complex and L-Lyceum.
But additionally, I go to daily acupuncture, in which I receive needles, a maxa treatment (chinese herb), gentle cupping, and facial, cranial and neck massage. This has been an absolutely enormous help. I have better control when I walk out 1 hour later than I did when I went in, and no regression the next day, just continual improvement. On the days I don't go to acupuncture, I see little improvement. So I'd recommend this to everyone.
After a week, I have lost most of the droopiness, I can drink (generally), I can smile a bit, no frowns yet, and I can't raise my eyebrow very far. I can't wink that eye, but I can blink them both (thank goodness!).
I would agree with some of the other posts that this is a really frustrating condition. Depsite it being not life-threatening, it interferes with your "norm." Above all, it creates a barrier to how you communicate with people, which can lead to a lot of self-doubt, and hurt your self-confidence. However, also like many of the other posts here, you can't let that get you down. You just have to focus on treatment, facial massage, and medication, and stay positive that you will be one of the people with a speedy full recovery. If you are frustrated when trying to communicate, talk about it. Every time I've fwelt self-doubt creeping in, I just explain what happened, and it makes it easier after tha tpoint if you have trouble with annunciation.
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Chris,
When it's done properly by a trained practitioner, acupuncture shouldn't hurt. Some of the points they use for Bells are pretty awkward (needles in my lips for example), and it can feel uncomfortable, but never painful. And sometimes when the needles go in, there's a lot of built-up tension in that spot. The needles release that tension, which can sometimes hurt, bu tit's not a needle-hurting sensation, but rather and energy-release sensation. Chinese would say it is the blocked chi energy that is being released. Once the needles are in, I don't feel them at all. They leave them in for 10 or 15 minutes, during which time, you'll feel a huge sense of release of stress. Some people experience a buzzing, like an energy. The first time I did it, tears flowed for about 10 minutes. Not from pain or sadness, just my tear ducts going to town (I'll bet you'd appreciate that right now!).
It's important though, to say that everyone reacts differently to acupuncture. Some like it, some don't. It may be easier for me to take some of the awkward spots they use for Bell's just because I've been going for 2 years now for stress management, and so I'm more familiar with it.
But even without the needles, an acupunturist is trained in acupressure and therapeutic massage, which is just as effective.
Bottom line, I'd recommend you at least give it a shot. If you don't like it, don't go back. It can't hurt anything, and there's nothing to lose.
Staying positive, though is more difficult. I think it's been a bit easier for me because I am seeing progress fiarly quickly. Maybe the acupuncture can help move you forward on that, which will certainly help lift your spirits.
Have you tried self-massage? I do that along-side the trianed massage I get at acupuncture. Just gently pushing my facial muscles up where they belong. I usually do it on my commute in the AM and PM while driving. During the day I try to work those muscles as much as I can, smiling, grimacing, raising my eyebrow(s), lifting my cheek.
Good luck with it. I'm going to stay active on this forum so if you have any more acupunture questions, ask away.
Where do you live? I'll see if my acupuncturist has any contacts there who can help.
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But really the main point is that if there is any pain, it dissapates quickly, and is usually completely gone within a few seconds. Then the long-term effects are an overall lift in energy, spirits, better muscle control, recovery from Bell's, etc.
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hi
i have had bells palsy since 29 january 2012 and its now april.
positive is the way to be its not life threatening. I found it hard to find anywhere to get physiotherapy for this but since i have been having physio i feel this has helped.
I have come to the conclusion i am one of the unlucky ones who will take a long time to recover fully but it could be worse. Keep positive .
Jane
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hi Jane,
Not to beat a dead horse, but I really believe in acupuncture. it has made a tremendous difference with me, and I'd highly suggest giving it a shot.
Kamal - hang in there. I'm proud of your classmates for being supportive of you. That's rare to find in our world today. Hang on to those friends!
We will get through this!!!
~ Bill
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