my boyfriend has no pancreas also... same problems, he is only 22. is this problem still going on?? Please, i'd like to know... thank you!!!
Had my pancreas removed in aug 2012. I have been doing well considering all the life changes. I have some questions for you. Does your husband take creon with meals. I have found creon very difficult to adjust for meals. Trial and error has been the only method I have used. There is very little information out there since we are all different and no one reacts the same. Have you and your huspand had diabetes education at all. Have you been working on carb counting and making improvements. Currently I am using injections but am moving to a pump in January. I have every little pain but am troubled at times with dumping syndrome at times. Would be happy to help and share.
my friend i hope that u r in good health .i made the whipple operation before month .but today my doctor told me after my ct scan that i have a new cancer in my pancreas and i have to remove my pancreas i don t know the side effects but i am searching about removing the pancreas
usually a whipple involves removing part of the pancreas. so the bad news is they have to take more. Surgeons will try to leave as much of your pancreas as they can. You may or may not have to take long and short acting insulin. Or you may be able to regulate it with pills and/or diet and exercise. You may or may not have to take pancreatic enzymes with food. Usually people that had their pancreases removed still have about 10%. I guess you will have to wait and see but hope for the best and prepare for the worst. The worst is really livable but requires stringent attention to insulin and blood sugar checking and taking enzymes literally with every meal or snack that isn't a fruit or vegetable. I'm thinking fo you and hoping for the best outcome.
My wife had her pancreas completely removed in December, 2010 due to pancreatic cancer. The digestive enzyme she takes is Creon. She takes a bunch of it to prevent the diarrhea you're describing. Your husband's internist should be able to help with prescribing and proper dosing. Being type 1 diabetic myself, I help my wife manage her diabetes fairly well. Though, she does have her ups and downs at times. I use Novolog in an insulin pump, which I recommend. My wife uses the insulin pen in both, the short acting Novolog and long acting Lantis.
No, that's a generalization. I have no pancreas and take less than 12 units of insulin per day via an insulin pump.
My husband is 45 and was healthy as a horse until Nov. 3rd. That was the worst day! He had a severe acute pancreatitis attack, developed a VERY large pseudocyst, and a whole bunch of other problems. He has been in the hospital for 12 weeks now, had half his pancreas removed, has lost 100 pounds, and his pain is unbearable. He continues to get infections, his lungs fill with fluid, and now the doctors are telling us that the health, viable part of the pancreas that was left after surgery is now dying, and that if it is not removed, he will die. This is so heartbreaking!!! To see him wither away to nothing and be in such pain all the time is so extremely hard. I lost my twin brother 5 years ago to pancreatitis with pseudocyst, so it is a road we have traveled before. But I will NOT let this turn out like that. It has made me feel better reading all the posts, giving me hope that there can be life after pancreas removal.
I lost my pancreas in 2008 and doing really good . I'm on an insulin pump and my blood sugars are good watching my diet and exercise . I was on life support for three weeks because my body shut down. They did six surgeries and left me open to scrape off the dying pancreas slowly this is why I had six surgeries. After the surgeries they had me on a feeding tube tell my body was healed and able to eat normal food. I think going at it slowly helped me to get back to mostly normal. The only problem of coarse from all this I'm diabetic and on a insulin pump which helps me keep blood sugar level. I'm very happy to be here and my doctors have been amazing .
My father lost 2/3 of his pancreas a few years ago. He became diabetic soon after. He has seen MASSIVE POSITIVE results after changing his diet to an all whole foods, plant-based diet. I know for certain that is there is area for improvement in any of your lives, it WILL help to introduce as much plant foods as possible. The human body is not designed to eat meat (except in survival situations)
Dr. Guest, I disagree with that statement. Besides 1/3 of a pancreas does a lot, even 1/10th of a pancreas does a lot. We all know to eat our vegetables but for us REAL diabetics (C-peptide negative for insulin) we stay away from fruits. I haven't had a glass or sip of orange since I was 13. But good for your dad. Granted our meat in the US is c**p and our fish are farm bred and full of mercury, I just shop wisely.
Im pretty sure this thread was about living without a pancreas, not being a "REAL" diabetic. Thanks for bashing my advice. You probably live a sh***y life because you are incapable of being grateful.
yes.. It feel great and a blessin to hear of others in my condition. My doctors do not have a clue to what going with me. They tired to make me feel as its all in my head. I had a complete pancreas remover with my spleen and an auto islet transpalnt. My hosiptal stays are horrible. The nurse and doctor do not treat you, because they are so busy tellin what the labs are comming back normal and theres not wrong. I"M SO ANGRY. I"m not crazy, just need answers. You can contact me
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Freda, what are your symptoms?
I have had my pancreas removed august 19th 2011 and suffer from many things that I wasnt sure of at the time of surgery. And I too have moved to a place where the emergency room doctor said I wouldnt be alive talking to him with out it. LOL I am live. I told him and then I told him to go check my records I brought with me from the surgeon in Louisville KY. One thing I have found that has helped me alot is that I have a isulin Pump. It helps me to keep my sugars more level. Unless I get sick well that is another story. I would love to correspond with others like me and that is why how I found this site when I just typed in the google area people who are living without their pancreas.
My name is Wendy and I have a email address _[removed]_