Don't believe that sweetie!! I had symptoms starting @ the age of 27 & wasn't genetically diagnosed until 2yrs ago!! I'm doing pretty good with no heart problems (so far) & I'm 44yrs old!!
everyone is affected different my gf died at 23 6 years ago im 31 and my heart don't pump well
My wife Sharon was diagnosed w/FA in her late 20's. She is now 71 and is on her last days. She was been in a wheelchair since she was 36 y/o. My prayers go out to all caregivers of patients with FA. It is a very tough task for a life long disease.
My son is 29. He was diagnosed at age 6 and became wheelchair bound by 11. He is diabetic, has hearing loss, almost blind and has a pacemaker. But he is a champion. He writes daily using Dragon Naturally Speaking and has published three books and will publish four more this year. He was given 6 months to 2 years to live in 2015 but has improved and now expects to live over 5 more years at least. It's never over until you give up.
Hi I have recently come across this thread and I also have a point mutation and I also do not have the same symptoms as most others with regular FA.
I havent been diagnosed but i know i feel minor onset of symptons of FA. A lil bit clumbsy.but im an ac tech in florida. Im 37.my dad last year died of FA at 64.
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I have a son in law with FA and I was impressed with you saying your wife didn't complain about dealing with FA. My son in law seems to be in pain much of the time and spends long bouts in bed , and he has a mild case, diagnosed in middle 40's 2 yrs ago with no heart problems or diabetes. I don't see that pain is the biggest factor in FA and wonder what else may be going on. His mood is not good when he's hurting! You must be pretty knowledgeable about the disease. Thank you so much.
Same here. May I know who you are?
Please if you can get in touch with me.
Much appreciated
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I know someone that had this and lived until he was 70.
Paulo and I am Catherine and I am 47 years old with Fredrick's Ataxia. My spine is at the protruding and curves more it feels at each day it gets harder to do anything
I'm 47 years old and I have Fredrick's Ataxia and I am still here things with my body feels like it is shutting down
yes I know 3 people with the disease and it is really sad because of the slur of speech and lac of ability to walk. to find information I would recommend going to this event called FA Woodstock they could provide you with information and you would also have a good time there are many things to do.
This is a very sad thread but also heartening 32 here diagnosed at 15 in a powered wheelchair by 20. Keep on fighting.
My mum suffers with this, things are so hard right now she has turned horrible nasty even, she's very hurtful