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Dear friend, I have had the lower anterior resection operation, early this year. Have just had the stoma closure operation too. Appears to have gone well, have my review next week. You have my full sympathy. You are very brave,and I wish you all the best.
Best regards
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"Most all that has helped me is trial and error and researching on my own. I kind of feel like surgeons feel...."well I compeleted my part, now how you the patient will go on to live with this is your problem"."
I had a stoma reversal in March 2016 after a cancerous tumour removal in October 2015 when the rectum was removed.
Since then the LARS symptoms have continued relentlessly.
I have met my surgeon 4 times over the last year (and colorectal nurses several times), and I get told "try this, it should help" type advice - nothing definitive.
Although the average number of bowel movements per day has reduced from 10+ to around 5, I still have lots of ups and downs. I keep a detailed diary listing what food, drink, medication (loperamide, fybogel, psyllium husk capsules) taken and when, with BMs and a subjective Quality of Life score on a scale of 1-10 for each day. The percentage of acceptable QoL days (scoring 7 +) has levelled out at 55% over the last 3 months and doesn't appear to be improving.
I have tried using a water enema kit which did precipitate many BMs soon after use but on both occasions left me with severe bowel spasms for a day or so afterwards, so I have stopped using it.
On a few occasions I have felt "normal" for over a day following a very large BM, so the secret to me would appear to be able to precipitate such a BM, especially "on demand" if possible - but I haven't been able to figure out how to do this so far.
Like you I would welcome any definitive advice on how to improve my situation.
Regards,
Bob
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My problem is I need to work and am unable to do so with this type of bowel control issue. I have applied for disability and m so depressed about it. Would much rather be a contributing regular person again. I am usually a social person and am now stuck in my home. It has been 6 weeks since surgery and I pray it gets better.
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Hello I had Low Anterior Recto-sigmoid Resection in 2008. I was in the hospital almost a month. I was stapled down my stomach from my navel to just before my privates. I had a tubing inserted inside my lower abdomen so I could give myself morphine doses because the pain was so bad. I was blocked 83% and my body was truly shutting down from the bowel blockage. I was told i had a rare case of endometriosis in the colon/rectum area as well. So this was a very painful process. Prior to the surgery I had bleed off and on for almost 10 years and had issues with bowels. I thought I was constipated, but was told I was really just full of s**t. Really horrible!! Anyways now nine years later I'm doing very, very well. The surgery was the easy part, the recovery is what's so bad. I mean I regretted having it until I figure out what will work for me. I sat in a pillow donut to relieve pressure from that area. I had three lol. Home, work and in my car. As I was recovering the tissue inside the rectum where the stool passes will continue to cause issues in the healing process. It's rubbing the inside if where I was cut and it continued for months til the area started to heal. I was iff work for five months and lost 22 pounds which was bowels. I was given pain pills and very afraid to eat because it would hurt so bad after a meal (remember what goes in must come out). I took stool softeners every other day because after being cut the area for bowels to pass was narrow plus if I got constipated and had hard stools the process starts all over again, more bleeding. Oh I forgot to mention I had hemorrhoids inside the lower rectum area and the connection from my colon to the rectum bleed continuously which caused so much pain that when I felt like I had to have bowel movements nothing came out but clots of blood. To this day I occassionally take stool softeners and when I don't, YES I bleed some. I drink lots of water because I eat lots of food for fiber as well. Everyone heals differently and in time it gets better. I have a better quality of life and I'm so blessed to have the doctor's I had to car for me. My doctor's also kept in touch with me for almost a year and I would go in for a follow-up. Now IF I should start to have the same occurrences I will be contacting the same doctor's again. I hope this helps. Take care!
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I'm responding to what I just read about your surgery it's been 13 days since mine an I'm really having a hard time coping. I'm 57 an I've had my share of surgeries in the last 3 yrs. please let me know if you have any info that might help me understand this constant urgency to go to the bathroom nauseous all the time thank you
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No cancer was discovered, also had an incredible surgeon. I'm still healing, trying to eat 'whole foods' yogurt so I can build my good intestinal flora back up. I'm still new but am feeling very optimistic.
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