I no longer trust doctors anymore so I requested all Radiology MRI Reports from 2015-2021. I have relapsing remitting MS diagnosed in 1991. For years I kept on asking my Neurologist for a referral to a spinal surgeon and she would not. Surprise! Just received the Reports and Radiologist findings weee focal myelomalacia and severe spinal stenosis of C6. You can stop myrlomalacia from progressing further by having spinal surgery to stop the destruction of the cord to stop softening atrophying. Doctors just write off patients when they are paralyzed. We are too much of a burden to the health care system. It u is s why my Neurologist did not tell me I had myelomalacia or severe spinal stenosis. Every year after my results came back they verbally told me “you have a little arthritis”. Both spinal stenosis and myelomalacia will progress until you become a quadriplegic. In order to prevent this surgery is the only option. Myrlomalacia is rare so you must find a spinal surgeon that is familiar with this serious condition. I knew my symptoms were not so much MS and told my Neurologist my spine is not stable. I feel at times like a ragdoll.
I am suffering from myelomalacia and underwent surgery but I am not well, feeling numbness in the whole body, giddiness, etc. I have consulted a neurologist, but the tablets he prescribed aren't working. Can you please suggest to me what to do?
I have myelomalacia at C5-6, and just underwent a multilevel cervical fusion. I don't know where you are, but I went to Mayo Clinic in Rochester MN. If you haven't already done so, please get a second opinion at a major, nationally are of used research medical center. In addition, you certainly should be monitored!