B.R.-
I hope he get it to open too- I've MADE SURE that I will be receiving (as well as her) bloodwork results and a copy of the MRI.
Best,
Reason
I hope he get it to open too- I've MADE SURE that I will be receiving (as well as her) bloodwork results and a copy of the MRI.
Best,
Reason
B.R.-
Disks were mailed out to you today! Did not download . Not sure about some of the people involved...
Looking forward to your thoughts-
Thanks again!
Reason
***edited by moderator*** web addresses not allowed
Disks were mailed out to you today! Did not download . Not sure about some of the people involved...
Looking forward to your thoughts-
Thanks again!
Reason
***edited by moderator*** web addresses not allowed
yea i know . was thinking the same thing plus they want money to review it so if you dont pay anything its actually a HUGE waste of time >;) :-(
cant the disks be viewed form a PC?? also is the bloodwork included or havent you recieved yet?
looking forward to taking a look at the imaging and lab results
best of luck
cant the disks be viewed form a PC?? also is the bloodwork included or havent you recieved yet?
looking forward to taking a look at the imaging and lab results
best of luck
B.R.-
Disks can be viewed by PC. No bloodwork results as yet. Sis had to have new brain MRI done today under sedation. The banging of the machine sent her body into uncontrolled spasms causing the images to be blurred. Info that was sent is from 2008.
Let you know when I receive bloodwork data and the new brain MRI.
Thanks again!
Reason
Disks can be viewed by PC. No bloodwork results as yet. Sis had to have new brain MRI done today under sedation. The banging of the machine sent her body into uncontrolled spasms causing the images to be blurred. Info that was sent is from 2008.
Let you know when I receive bloodwork data and the new brain MRI.
Thanks again!
Reason
Hey B.R.-
I also included a note with directions for opening the files to be viewed-
Reason
I also included a note with directions for opening the files to be viewed-
Reason
GREAT!!!! I'm home at the moment but will be back at NIU for the week monday evening before 5. so hopefully it will be there then and if not hopefully tuesday!
i'll let you know when i recieve it
i'll let you know when i recieve it
Thanks B.R.!!!
hey reason,
i was watching mysterie diagnossis last night on discovery health channel and thought of you guys.... the case had nothing to do with what your sis is experiencing but just the fact that the people on this show suffer so much and for so long and are normally dismissed by numerous doctors and they just never give up and keep pushing and pushing til they find a diagnossis. its a neat show to watch and i like watching it because i fugure mabey there will be someone i know that has this same condition and i can help them figure it out.... so if you guys get that channel and want to watch it, it does offer a lot of hope and is really inspiring.
just thought i'd let you know....
i was watching mysterie diagnossis last night on discovery health channel and thought of you guys.... the case had nothing to do with what your sis is experiencing but just the fact that the people on this show suffer so much and for so long and are normally dismissed by numerous doctors and they just never give up and keep pushing and pushing til they find a diagnossis. its a neat show to watch and i like watching it because i fugure mabey there will be someone i know that has this same condition and i can help them figure it out.... so if you guys get that channel and want to watch it, it does offer a lot of hope and is really inspiring.
just thought i'd let you know....
B.R.-
Sounds very cool! I'll see if I get that channel-
Reason
Sounds very cool! I'll see if I get that channel-
Reason
B.R.-
Just wanted to touch base- have you received the disks yet?
Thanks,
Reason
Just wanted to touch base- have you received the disks yet?
Thanks,
Reason
hey Reason,
yes i recieved them yesterday. i was able to view your sisters MRI but not yours for some reason yours would not open. i am wanting to find a normal scan to compare you sisters to so that i can try and pick out abnormalities. i can see the different structures of the brain but as for abnormalities its very difficult to tell since i am not a doctor or a radiologist. but with that said i do know the professor who teaches histology and anatomy as well as the one who teaches anatomy and neurobiology. i could as them if they may be able to help if that is ok with you/your sister. obviously your personal information will not be disclosed. im not sure if they would be willing to help or if they would even be able to. i am interested to get the most recent MRI because then i can compare that one to the 2008 one and note differences that way. also any lab work you may have.
how is your sisters condition? any changes?
once again I appreciate you taking the time to send the disks and i'm sorry if i cannot tell a lot with them but really i dont have much experience looking at MRI's. did the doctors say what about the scans made them look abnormal or just that they looked abnormal.
thanks again and i look forward to keeping in touch.
B.R. 8)
yes i recieved them yesterday. i was able to view your sisters MRI but not yours for some reason yours would not open. i am wanting to find a normal scan to compare you sisters to so that i can try and pick out abnormalities. i can see the different structures of the brain but as for abnormalities its very difficult to tell since i am not a doctor or a radiologist. but with that said i do know the professor who teaches histology and anatomy as well as the one who teaches anatomy and neurobiology. i could as them if they may be able to help if that is ok with you/your sister. obviously your personal information will not be disclosed. im not sure if they would be willing to help or if they would even be able to. i am interested to get the most recent MRI because then i can compare that one to the 2008 one and note differences that way. also any lab work you may have.
how is your sisters condition? any changes?
once again I appreciate you taking the time to send the disks and i'm sorry if i cannot tell a lot with them but really i dont have much experience looking at MRI's. did the doctors say what about the scans made them look abnormal or just that they looked abnormal.
thanks again and i look forward to keeping in touch.
B.R. 8)
Hey B.R.-
Sorry you were'nt able to open mine- not sure why. Directions should be: open e Film Lt with M. I'll run another copy I have here to see if it's different.
YES! If anyone is willing and able to look at them, by all means. Sis will let me know when she gets her MRI and reports. I'll ask her about any reports she may have from the '08 MRI also.
I have another brain MRI that was done on me from 2008 with notes stating there were mild demylinating changes from my 2007 MRI. I can send that to you if you want it-
Sis is so so. She's on a lot of pain killer meds right now. She & I will be traveling out of state once again in March. I'll be taking her to a neurologist who has seen and treated others with her similar condition. Needless to say, I hoping for good things to come from it...
We send you our best,
Reason
Sorry you were'nt able to open mine- not sure why. Directions should be: open e Film Lt with M. I'll run another copy I have here to see if it's different.
YES! If anyone is willing and able to look at them, by all means. Sis will let me know when she gets her MRI and reports. I'll ask her about any reports she may have from the '08 MRI also.
I have another brain MRI that was done on me from 2008 with notes stating there were mild demylinating changes from my 2007 MRI. I can send that to you if you want it-
Sis is so so. She's on a lot of pain killer meds right now. She & I will be traveling out of state once again in March. I'll be taking her to a neurologist who has seen and treated others with her similar condition. Needless to say, I hoping for good things to come from it...
We send you our best,
Reason
haha yea ok any more disks would be nice.... i will see if anyone would be willing to take a look at them no promises though.... sometimes people around here are not the most helpfull and dont like to go out of their way to help anyone... but that certianly doesnt apply to everyone...
best of luck and travel safe.
best of luck and travel safe.
Hey B.R.-
I'm so sorry! I wasn't trying to bombard you with disks. Sending you mine is for comparison only: sisters, living in different cities for 35 years, both showing lesions on the brain though different areas; is it the same disease. I was hoping that others in your field might be as curious as you-
Much bigger than the two of us, is this due to Lyme Disease? If so, I worry about the possibility of the millions of people out there who could be suffering from this same thing without the proper diagnosis and treatment. Were we each bitten by deer ticks in our childhood, or, were we born with this bacteria present in our system and it took 2 decades for it to create real havoc in our nervous systems?
The testing and treatment of Lyme Disease guidelines have not changed since the early 1980's. Most doctors are ill-equipped and not knowledgeable on this disease. Even worse, they're trapped by the outdated CDC Treatment Guidelines when it comes to caring for these patients...
If you're unable to find anyone who wishes to look them over, that's okay. You done SO MUCH for us already!
Reason
I'm so sorry! I wasn't trying to bombard you with disks. Sending you mine is for comparison only: sisters, living in different cities for 35 years, both showing lesions on the brain though different areas; is it the same disease. I was hoping that others in your field might be as curious as you-
Much bigger than the two of us, is this due to Lyme Disease? If so, I worry about the possibility of the millions of people out there who could be suffering from this same thing without the proper diagnosis and treatment. Were we each bitten by deer ticks in our childhood, or, were we born with this bacteria present in our system and it took 2 decades for it to create real havoc in our nervous systems?
The testing and treatment of Lyme Disease guidelines have not changed since the early 1980's. Most doctors are ill-equipped and not knowledgeable on this disease. Even worse, they're trapped by the outdated CDC Treatment Guidelines when it comes to caring for these patients...
If you're unable to find anyone who wishes to look them over, that's okay. You done SO MUCH for us already!
Reason
Reason...
the disks are no problem i am very interested to take a look at them i just wish i could open you s and compare the two..... i really doubt you guys were born with Lymes because i dont think it can cross the placenta plus i would have expected at least some symptomes before the age of 20..... the fact that you guys were bitten by ticks as kids is a MUCH more likley cause. did you guys ever have ticks on you longer than 24 hours?? in Dogs i believe the ticks need to attached for atleast 24 hours to be able to transmit the bacteria. but if you burn the ticks off to make them release then sometimes that can cause to tick to regurgitate and release the bacteria into you skin.
send more disks when you have them availabel... thanks
B.R.
the disks are no problem i am very interested to take a look at them i just wish i could open you s and compare the two..... i really doubt you guys were born with Lymes because i dont think it can cross the placenta plus i would have expected at least some symptomes before the age of 20..... the fact that you guys were bitten by ticks as kids is a MUCH more likley cause. did you guys ever have ticks on you longer than 24 hours?? in Dogs i believe the ticks need to attached for atleast 24 hours to be able to transmit the bacteria. but if you burn the ticks off to make them release then sometimes that can cause to tick to regurgitate and release the bacteria into you skin.
send more disks when you have them availabel... thanks
B.R.