I have been on and off it for almost 20 years. I take it for seizures, it is the only thing that works. After I had my kids (twins) I stopped having the seizures and was told that the type I was having pre menstral seizures and that since I had given birth the seizures would go away.
For 8 years, they did go away. I lost weight, felt great. Then 3 years ago I totaled my car having a grand mal seizure. It was so traumatic for me that I developed a panic disorder and a general anxiety disorder (GAD).
My Doctors have straighten me out on my medication and I haven't had a seizure in almost 6 months. I really don't know how much weight I've gain in the 6 months that I've been taking it, but none of my clothes fit me and I think I might even be in the plus sizes by now. I dread to buy new clothes.
I am planning to give my body a rest for a few months, I can't cope with the weight gain and the other awful side effects, my joints ache, I feel naseaus (sp?) almost all of the time and it gives me terrible insomnia and moodiness.
If anyone on this horrific drug has had any success with losing weight, please, please let me know. My Doctors do not care. I am considering over the counter diet pills along with exercise, right now, the Neurotin drains me off all my energy, most of the time I feel like a Zombie and wish I were dead.
Somebody has to have the same problem. Help? Please.