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I have had similar issues- first started about 1 1/2 years ago when I woke up to find one of my arms had "fallen asleep" and stayed that way for over 2 weeks, got somewhat better, now both arms, legs feet are issues. Had stopped for a while but back again. Went through carpel tunnel testing- all fine, had three MRI's first showed lesions and suspected MS, to neurologist who sent me for more MRI's and the lesions had disappeared- hmm. All blood work neurologist did was fine. So I stopped dealing with it. The symptoms are back and have been here for three weeks- arms pain and numb and feet same- at times odd feeling to walk!
Don't have money to keep wasting to be told- nothing.
Only thing that helped my arm the first time was going to for a professional massage about 6 times- that relieved the first intense incident.
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I have the same symptoms, basically i started to feel the tingling sensation in my feet 7 months ago in Africa after 3 days i slept with an African girl although i used a condom ,i was so worried that i got infected with HIV to an extent that i became seriously depressed and obsessed with the HIV symptoms articles on the internet ,i did 5 HIV tests and all the blood tests during 6 months and thank god the results were all negative , but unfortunatly during the 6 months the tingling sensation went up mixed with a burning sensation to my hands, now i am feeling it in my head my face and even in my eyes, also it goes down to my stomach, but all this goes away when i am sleeping,all the doctors that i saw, (i even saw doctors in Africa) told me that what i am feeling is psychological and obsession related, my own opinion it is psychological
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Like many of the rest of you I feel like a hypochondriac .... I'm 38, in good health .... average weight, but could stand to lose 10-15 lbs.
I had plantar fasciitis in my right foot about 2 years ago. I saw a podiatrist, cortisone shot, wore athletic shoes round the clock for a few weeks and I was healed. The pain in my arches at that time was severe enough that I was limping when I went into the office.

So the past few months, maybe even over a year) I have had a lot of burning in feet .... mostly at night .... I told my GP when I saw him a couple months ago. He told me to go back to the podiatrist. By the time I did, the pain is every day ... burning in my feet, pain in my heels, pain in my arches .... in both feet .... not all the symptoms, all the time ...

I have been in athletic shoes, orthodics (not customs, but from the Dr's office) , cortisone shots in both feet once (they are very painful) .... this time it helped - if at all only for a few days, but I really don't think it helped that much. My feet seemed more sore after than the last time, when it helped right away. I also had electro therapy ..... foot in a tub of water with an electrical current ... 10 minutes each foot .... I don't think that did anything either.
I am also having tingling in my right hand and right foot ..... like they are falling asleep ... but no loss of sensation really .... the tingling goes up my into my arm and up into my leg as well. I first noticed it when I was sitting .... like driving or at my computer. But now can feel it anytime or maybe I'm just more aware of it.

I have had a normal MRI of my brain, EMG - normal, MRI of my cervical spine I am awaiting the results this week. My neuro says this is the last test if it's normal I can work with my GP or podiatrist.

My podiatrist thinks it's plantar fasciitis in BOTH feet, but does not think the tingling is related so she encouraged me to see the neuro. My GP told me to get wrist guards for carpal tunnel, but I said that did not help my feet he said go see a neuro if it continues .... UGH!!!

My b12 is fine. Had it tested a couple months ago.
No swelling except in my feet near my arches.
The first MRI ruled out MS and a stroke. I have Factor V Leiden which increases my odds for blood clots, although I have only had issues during childbirth.

I have also seen a physiatrist .... I think that's how it's spelled. She was eager for my results of the EMG and the MRI. I am also supposed to have a spine xray this week per her recommendation. She also ordered physical therapy ..... which i am trying to find a place to get into.

No tingling on my face or midsection. My calf is really tight and always feels like it needs stretching.

it's all very frustrating.

Tracy
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All,

I have been reading this thread with interest as I have recently developed similar symptoms though not as severe as what some of you are dealing with - I have tingling hands, achy fingers and toe joints and occasional tingling all over, and all of these things seemingly come and go for no reason.

I am suspicious that what triggered this for me was taking cipro (ciproflaxin), a strong broad spectrum antibiotic that is part of the fluoroquinolone family of antibiotics. Others commonly prescribed fluoroquinolones include levaquin. A full list of fluoroquinolone drugs can be found in the wikipedia article about this which is posted at http://en.wikipedia.org/wiki/Quinolone. I think any drug name which ends in "flaxin" is in this family, but I am not sure of that. The wikipeida article has information about the potential negative side effects as does the cipro warning posted at http://www.rxlist.com/cipro-drug.htm# (which I don't remember seeing when the drug was prescribed to me - I had never heard of negative reactions to antibiotics aside from them sometimes being hard on the stomach).

The wikipedia article states that overall the clinical outcomes of these drugs is very good and that negative side effects are rare. While I don't have a strong reason to doubt that, in my case the tingling and aches started a little more than a month after I took the cipro, so I think it is possible that some negative reactions are delayed enough that the people experiencing them don't make the connection to the drug they took.

I never heard of people experiencing things like this years ago, but then again, I can't say I was looking for information on it then. If however, experiences like ours are becoming much more common these days, it would seem logical to presume that something new in the environment or in drugs or whatever would be a key culprit. I am not saying by the way that I know with certainty that cipro was the cause of my problems (could be an infection, a rapid onset arthritis, spinal problems or a number of things), but given the way it happened, I think the connection is probable. I would be interested in hearing how many others of you can make that same connection.

Thanks,

-Chris
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Hello!

I have had similar symptoms such as numbness & tingling in the hands, feet and lips, sensations of skin swelling & tightness, sensations of bugs crawling on my skin, but also widespread pain and sensitivity especially in my neck & back, brainfog, exhaustion, blurry vision, headaches, itchiness, hypersensitivity to touch, sounds, & smells & abdominal bloating--just to name a few.

One of the symptoms I have had since I was a child was extremely painful 'growing pains' that were thought initially to be adolescent arthritis. I have since learned that often fibromyalgics had painful growing pains as children. I was always a sickly child getting most of the childhood illnesses such as chicken pox and the mumps.

As an adult, I was plagued by widespread rashes & itchiness while pregnant with both of my children.

Later, I thought I had the flu but the symptoms did not go away! I went to doctor after doctor who did numerous tests but who all told me that there was nothing wrong with me and eventually I began hearing that I was healthy and my illness "was all in my head" or that I was "making it up".

Other doctors kept insisting that I had depression and I took different kinds of antidepressants even though I insisted that I was not depressed. Of course the drugs did nothing for me.

I was so weak that I could no longer walk up stairs, hold up my arms to brush my hair or read a book and I had to rest on the sidewalk, halfway to my daughter's school which was only 1 block away! I kept dropping things because of muscle weakness. I also gained alot of weight and craved foods like pasta and high-sugar foods. I would sleep all day & still wake up exhausted.

Eventually, a chiropractor who evaluated me based on a muscle strength/pain test suggested that I might have fibromyalgia. A few years later, a doctor confirmed that I have fibromyalgia but guess what? The treatment for fibromyalgia is low-dose antidepressants and I would not take them because of the turmoil & side-effects that I went through previously. I eventually stopped going to doctors for many years.

Many doctors I have been to do not believe that fibromyalgia is a real illness. Some doctors think that fibromyalgia and chronic fatigue are one and the same and there are many opinions that will back up either belief.

I have also read about treating fibromyalgia with guaifenesin (See the book, "Wht your doctor may not tell you about fibromyalgia" by Amand & Marek) but I don't have the money for it. For now, I will go on this diagnosis of fibromyalgia until I get the next diagnosis.

At one point, I though maybe I had 'yeast syndrome' because of my craving for pastas & sweets. I followed a strict 'caveman diet' eating only MEVY (meat, eggs, vegetables--raw/steamed, plain yogurt) foods and cut out all sugar and did not even eat fruit because of the natural sugars in them. If you are interested, read a book called "The Yeast syndrome". I stayed on the diet for one month, lost weight & felt better & had more energy than I had in years. This is a difficult diet to follow because some people can go through major cravings for banned foods, which I did. Although this diet worked for me and the benefits lasted for some time, it may not work for everybody.

Around the same time I began the diet, my house was infested with a bee's nest & I was stung by a bumble bee all over my back. Interestingly enough, it helped with my back pain for awhile! I need to get a hold of some more bees!

Since then, I have had varying degrees of 'relapses' and I am currently struggling to finish my MA degree along with the learning difficulties I have due to fibromyalgia such as memory & cognition problems, exhaustion and pain. So far, none of the doctors will prescribe me anything for the pain.

Currently, I am on antidepressants again as there are new, different drugs out there but no luck yet and the drugs have various side-effects. I would like to try some of the drugs that are geared specifically for fibromyalgia but unfortunately, my health care plan does not cover those new drugs.

To all of the fibromyalgics out there, keep faith that you will get better and keep trying! Good luck!
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Hello there folks,just to tell my story too. I have had sore numb, hot, then freezing, cramping feet for 4-5 years now. Had all the bloods done and nerve biopsy on my foot. Still no answer to what is going on with me. My feet hurt at times so bad to walk, and its like I'm on the bare bones. It is not my heels but the rest of my feet.I can just move my foot sometimes just by trying to bend my toes and they get the worst cramps in them. I have a sore back, but have never been diognoised with anything. I have been to chiropracters, neurologists,plastics, and many Drs. and no answer. I feel sometimes like its in my head, and I want to do so much walking and excercising but my feet won't let me do much walking or I pay for days.The funny thing is I have no problems with my hands or legs feeling numb.It hurts for me to rub my feet, and to cut my toe nails, I cut too close to my skin and hurt myself. It also hurts for me to try cutting my nails as the nail is so sore also.If there is anyone out there who has this problem, can we please talk, sometimes I feel like I'm going out of my mind.
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[I have experienced all of tha same symptoms, i bought a glucose monitor and took blood sample when I was actually feeling dizzy. It was low, and I have hypoglyciemia, It may be worth you also checking your B12 levels. I still have nerve symptoms which after so many hypo attacks and low B12. Hopefully I will get normal sensations back.
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I have been suffering from the same thing. At it's worst it was in my hands, feet, face, arms and legs. I have started walking every day. At least 2 miles as fast as I can. This seems to have stopped the numbness in my face, hands, arms and legs. I only have a little in my feet. However, if I stop walking even for a day it is right back in the feet and in another day it is in my hands again. I have also started taking a baby asprin every day and niacin. They seemed to have helped the problem. I believe this is a circulatory problem. God bless you in your search for answers.
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I would recommend seeing a chiropractor. Although sometimes they are not viewed in the same light as medical doctors, most doctors tend to ignore the spine and what that can do to your body everywhere. Chiropractors will not diagnose you unless they have a medical degree, but they can evaluate where problem areas are, and they know what parts of the back pertain to body parts. Tingling and numbness, and paralysis can all be caused by the spine pushing on the spinal cord, making it harder for your neurons to communicate between your brain and body. Each chiropractor is different, and some provide long-range services, others specialize in quick adjustments on your schedule. The ones worth going to will take full spinal x-rays and also use a device to detect heat areas in the back.
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Guest wrote:

:( I almost hate to go to sleep because as soon as I lay down my hands get numb and i have positioned my self in several positions and it does not stop the numbing. I have been typing for over 20 years and sometimes i can pick up something and grip. I have seen a nuerology but I don't want surgery? What can I do [/quothe]


hi dont know if we have the same problem, but when i sleep im woken regularly with numbness in both hands/fingers, ive had bloods taken, xrays done, been diagnosed with carpel tunnel only to be told im fine.........soooooo frustrating!!!! now im having the same problem with my feet...when i lie on my back, and numbness on the outside of my thighs( where i've lost feeling on the surface of my skin)
(this ive been told is due to me being overweight!!!!) anyway, after 2 MRI scans the problem with my hands was down to a disc in my spine pressing on my nerves, which now ive had surgery...altho its helped a little( not all fingers r numb now just 3 on each hand not the usual 5 and its only been 6 mths since the op) im still seeing the consultant and hopefully well get there in the end! as for the feet and thighs , well yes i am overweight but this problem has only surfaced the last 2 years and hopefully we'll get some answers after my hands are sorted...one step at a time huh! even tho its taken like 5 yrs for my hands to be sorted lol....anyway hope this helps u and ok u dont want surgery but sometimes thats is the cure i'm afraid. hope ive helped a little, and does any1 else have probs with feet and thighs?????

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This with numb feelings in feets and hands might be bad.
If u have had it for a week or more, then its not that bad :-)
But GBS and CIDP as I have is starting with this feelings in theese parts.
Then its progres towards the head, and if its GBS it might be needed to be in a respirator for a while.
its only 5% that is dying, and thouse dont get in a hospital in time.
CIDP isnt that bad, but this version isnt leaving u, for thouse who get GBS, they can be shure that they wont get it again.
CIDP is comming back, you dont know when, but u can be shure it will, but not as hard as GBS, this is only affecting the nerves that is used for the feel.

So if you have numb feelings in your toes, and its moving and gets more and more - contact a doc !

Good Luck
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I would suggest trying a chiropractor. I work for one and we see many patient who come in with these symptoms all the time and no answers from their doctors. 99% leave our office feeling much better!!
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I'm afraid Lyme disease might be a unrecognized epidemic in our society... I had an episode of dizziness, floaters in my vision, and nearly passing out a couple years back. Since then I have had numbness and tingling in my hands and elsewhere sometimes... I have had slight pains here and there in my body that I just thought might be my age starting to show (but I'm only 27...). So recently my wife was diagnosed with Lyme disease... the chronic (long-term) version... as Lyme disease is related to syphilis, logical people allow for the possibility that it might be sexually transmitted... I've had some other symptoms as well and I urge those of you with serious concerns to consider the possibility. Not everyone gets a rash, even if bit by a tick that you might never see. I was inspired to post here this morning because my hands and feet seem extra cold and I am having trouble writing... seems to happen sometimes...



Fibromyalgia, MS, parkinsons, alsheimers, and up to 300 different diseases of unknown origin could be Lyme (which is really good at hiding and most tests can miss)... I'm not claiming that ALL cases of these diseases are Lyme, but many could be... esp if you have symptoms of several... such as one of the above with IBS, Interstitial cystitis (that is what they thought me wife had for years), etc...



BOTTOMLINE... research LYME DISEASE!!!
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sorry about the double post... maybe a mod will fix it for me... but I had to post again when I saw this...



Have none of your nimrod doctors ordered a Lyme disease test? You have a laundry list of Lyme symptoms... Apparently docs are ignoring this epidemic... Keep in mind if you do get tested and it is negative, that the test is not very accurate and that even the CDC suggests making a clinical diagnosis, even with a negative Lyme test... it's such a smart disease (my wife's Lyme doc called syphilis "Lyme's dumb little cousin"... I guess, with the gradual onset of chronic lyme, we are all destined to slowly get sick and this will continue to spread since there is such a marked lack of acute symptoms in so many patients...



Seems doctors will just keep making up more and more disorders and diseases that keep you coming back to pay their mortgage (others just tell you that you are crazy... as some of you have found out), while getting kick backs from all the pharmaceutical companies who are profiting of all the undiagnosed Lyme patients... if they get the IV antibiotics they need, followed by cyclical oral antibiotics BIG PHARMA will lose out big time on all the drugs used to kinda stave off various symptoms...



Our entire system is built around profit, not the patient... and right now everyone is profiting except patients..
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I have a similar sensation in my left hands and up to my neck from the shoulder. I was diagnosed in 2001 for a brachical plexus injury and i have numbness in the left hand and goes all the way up to my neck on the left shoulder. I am seeing a physical therpist who seems that i have nerioulogic issues. He has massage and streched the nerve to try to stop the sensations without much improvement. In the last few days my left leg and my left side of the back of my head have had this strange feeling of numbness and tingling. I also have bugling disc that cause me to get a mri with the results of this with no sign of neurologic impingement, but the therpist thinks that it is a spinal nerve root. If i hear of anything i will let you know. Good luck to you all.
By the way, I also am on oxycodine which i take only if needed for pain.
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