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Did you get diagnosed with Lyme Disease as well?
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I was diognosed two years with myopothy, the strain i have is myotonic dystraphy, many symptoms , much like yours.
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I HAVE THE SAME THING AND IT HAS GOTTEN BETTER. TRY LOSING WEIGHT,STOP SMOKING,STOP DRINKING,EXERCISE AND EATING RIGHT. THE PAIN IS DUE TO YOUR BODY TELLING YOU THAT YOU ARE NOT LIVING HEALTHY.
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:( I have had neck pain for several years. I have gone to chiropractors off and on but haven't had any relief. A couple of months ago I started having my hands go numb while sleeping then it was accompanied with severe pain that prevented me from sleeping. I had a MRI that showed some spurs on the 4, 5, and 6 cervical spine. Then I was referred to a neuro surgen that tells me I have carpal tunnel. In the mean time I have also developed pain in my legs and feet and swelling. He can't explain that! I'm sure its not carpal tunnel and am very frusterated. Chiropractics and physical therapy do not help. My next visit is a reumatologist.
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I have read all your posts and my heart goes out to you.   I had a bad accident and broke my back.  I have pressure in the front of my head and unbearable pain in my back and down both legs.   I can can say that I went to a Chiropractor who uses the Gonstead method. 

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 He had been the only one that has given me hope and has helped my mobility.   I've seen 7 different kind of doctors, from a Physiatrist to Neurologist.   So many tests that I can't count them.  I'm scheduled for a 4 day spinal test.   Just like all of you, no urgency on their parts.  I have though many times of ending my life but love my wife and don't know what she'd do.  The pain is more than I can take.  
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Hi All

I may have an alternative for you to consider. I've had loads of tests, MRI= fine, blood work = fine, Dr says she thinks my problem is stress.  Maybe that's part of it. My symptoms range from pins and needles in feet, buzzing sensation in body, tingling around mouth, numbness in tongue, random aches and pains, chronic insomnia, visual disturbances lasting 20 mins, and extreme fatigue.  I have my neurologist appt tmw am. 

I've done a lot of research and I think I have found what the cause of my issue is.  Electrosensitivity (ES).   I've attached some links below so have a look and think about your own situations, it has a cumulative effect and I think my starting a new job in the high tech field in an area surrounded within 50 metres of 8 GSM and 3G cell phone masts (just discovered this!) plus the fact that we moved a year ago within 108m of a cell phone mast.  I react strongly to fluorescent lighting the tingling goes nuts and my eyesight very blurry, I'm also a candidate for heavy metal poisoning from my amalgam fillings - I'm due to be tested (which can predispose you to ES)

Also do think about heavy metal poisoning/ candida (all three are often an issue) if you have or had loads of fillings as a possible standalone cause.  That's how I began my quest and ended up on the ES trail.

ES is fairly unknown out there in GP world, your GP's may look blankly at you when you mention it so be ready with knowledge in hand, I can't wait to see the expression on my Neurologist's face tmw when I raise it tmw.  The names to refer to google Gerd Oberfeld, Olle Johansson, Madga Havas.  Each country has it's recommended safety limits with Sweden having the lowest range and countries like the US, Ireland and Uk tolerating quite high ranges. 

It may surprise you that the common cordless DECT phone used in most households emit stronger emfs than a cell phone tower and you can be affected by your neighbour's phone.  You need to re-think your technology choices if you think you may be affected such as Wimax, Wifi, Dect phones and baby monitors (GET RID OF THEM!!), under no circumstances let young children use Dect phones, cell phones.  You may even have to consider a non metal spring bed, and metal bed base (see Olle Johanssen).

The information below and the names I mention above will give you more than enough information to research if you think this might be an issue for you.  Something to consider, an awareness needs to be raised as this is a serious health concern for all of us. Dr Gerd Oberfeld has said that in just 6 years half of us will have become electrosensitive.

Consider your living/ working circumstances and read the attached to assess your risks and spread the word.  There are ways you can protect yourself and home, various sites offer solutions carbon paint, you need to get rid of everything wireless or drastically reduce wireless items.  You can also buy a little inexpensive meter to test your homes and workplaces and there are sites that have offer excellent information.  Just got mine Friday and it's an eye opener, we are moving house asap!

All the best,

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i have the problem with tingling in hands and feet and numbness even i have raynauds syndrome that was not the major cause i fell one day and my knee pain was not getting better when x rays were done they found that alot of bone death in arms and legs due to avascular necrosis which means not getting blood supply to the bones and they die this is the major cause of my tingling in hands and feet now i have to have titanium bones put in from the hip to the knees in both legs and titanium bones put in shoulder to the elbows of both arms so maybe an x ray of bones could help to make sure that avascular necrosis is not the cuas

 

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Sudee, I have all of your symptoms....In my face now also...I am seeing a neurologist right now. The blood work shows nothing. Getting an MRI next week.
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Hi, wonder if anybody can help with my symptons, sorry if this is too long.

I am a 34 year old man. I have had vertigo since being a toddler, and in 2002 started with tinnitus, so have some kind of issues with my middle ear.

Over the last three years or so I started feeling numbness/electric shock type pains all over my body. They can strike at any time, anywhere on my body, then dissappear as quick as they came. I also have a joint pain in my left small finger which is constant, but ok if left alone. Also a few years ago i notice white patches on my forearms, this has spread to my waiste and back and legs. I have seen a dermatologist, who said I am a bit of an anomaly as these white patches are normally only seen on older women, and mainly on the arms. I have had blood test's, and even been to London to see Proffessor at Thomas Guy Hopsital due to the uniquness, but to no conclusion, just told not to worry. they did say it is to do with my blood flow on the surface of my skin, but it is nothing serious.

The pains are a different issue. They are very worrying, and sometimes when a pain strikes on the body my lower face goes numb/tingles. I have been on 10mg Amitryptiline from my doctors for neary two years, which seems to help a little as when I tried to stop taking them the sensations came back worse, but doesn cure it all together. I have had various neurology test's, and told they are all normal.

My doctors/Hopitals can not find anything wrong with me, but these pains are driving me crazy, I really need some help. If you know anything, or suffer the same please get in touch.

Many thanks

Craig   ***this post is edited by moderator *** *** private e-mails not allowed*** Please read our Terms of Use

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I too have been to the doctors with the very same symptoms!  Most just look into one thing.  It is so frustrating to think that there are doctors out there that let people for undiagnosed!! Without a shed of empathy.   I have been to some very good doctors that believe they know what my symtoms are; However;  I cannot afford the test that take me to these diagnoses.  So they do process of elimination.  Yes you have carpal Tunnel, yes you have nerve damage without treatment of what ever sort.  It is getting worse.  My whole back legs feet arms hands fingers toes neck and head hurt.  Yes everything.  When I sleep it feels like my body is a weight that I cannot move in flames and it feels like blood is rushing through my body. along with the stabbing feelings  sounds weird I know.  I this is the way I live everyday.  I keep searching for a doctor who really cares.  I get frozen arm and leg.  where it feels like someone is stabbing me consistently.  So I take a lot of pain relievers.  All of this pain that I live with day in day out for the past three years...has brought me to a new condition.  Seizures.  forget fullness.  I fear the worst. prayer for the best.  Wish that one doctor would care about the person.  To even look at us and acknowledge that this pain cannot wait any longer.  I know how they make you feel like a hypochondriac.  But if they were living with this very real pain.  They would not look down on us.  They would be at the best doctor's money could buy.

Desperately in pain in NJ  ;(((( 
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Hi I am back and read some more of other postings.  Like sleep to me that is a luxury!  But am so afraid I stay up half the night until I cannot no more.  Because of the pain.  a lot of you speak about antibiotics.  I heard they cause problems severe problems!  and yes off to the psych doctors we all go.  How much pain can the human body stand.  I also read about who accepts what type of insurance again it is all about money.  The medical industry is not what it used to be!  any way that's the way it is.  OOh  I too sleep with a pillow for my arm and hand, another for my neck, another for my lower back, another between my legs and two others one for each leg and foot. I have to go to the ladies room all night long.  So getting in and other of bed is getting impossible.  One I cannot stand once I lay down I feel like I am going to fall and two  I cannot lay down because of all the pain, stabbing, and itching feeling so bad that I make my self bleed.  Then trying to get back onto to those pillows again.  I totally give up with everything.  Everyone assumes it is a pain such as a bang with a black and blue that will heal and go away.  THIS NEVER DOES>>>IT IS ALWAYS THERE!!!!!
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I had the same problem, I went crazy trying to ease the pain, from putting my hands in ice buckets to applying heat. It all was related to carpel tunnel. I finally had the surgery and I couldn't believe how amazing I felt. No pain, no numbness nothing. Easiest surgery I've ever had.
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Hi !

 

Guess after 1 year you have all sorted out your probs ....!???? Have you considered that you may have Carpel Tunnel Syndrome ? check-check and good-luck ---- it took me 4 years before an excellent diagnostic doctor found that I had CTS - who knows what the GP perscribed for 4 year, supposed to have had "blood flow problem" with veins on my arms / hands that look like snakes ...hee ! hee ! it all a laugh aint it ! xx

 

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Have you ever been diagnosed with fibromyalgia
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You are not alone sudee, I am having similar pains also. Mine started in my back,legs,arms and hands. My face gets a little tingling numb feeling once in a while. I scheduled an apt so I hope someone can help. I hope you have found out something with yours. so sorry you are going thru this. It sucks when you have to live with pain.
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