Hi,
I am 21 year old female, and have just been diagnosed with lupus 6 months ago. I had no prior health problems ever before in my life until I was diagnosed. Now I experience many different symptoms, but the worst are my neurological ones.
I have had a few episodes where I start to get dizzy, which quickly progresses to disorientation and slight confusion. It gets so bad that I feel like I am going to loose consciousness, and that I have to fight to hold on. I then start to panic, because it just feels so wrong. These episodes are always random. They usually happen when I an watching tv. They last hours. It peaks really bad between 10 and 20 minutes, than gets more bearable (where I don't think I'm going to pass out). But then for the next five hours or so, I feel so off, and many times I have to talk myself out of going to the E.R., as they do nothing for me. During this time, I am still confused and dizzy, and I cannot sleep at all. These symptoms only go away when I can force myself into a sleep that has me waking up every few minutes in a panic. I am usually fine the next day.
I have gotten an MRI, and they have ruled out lupus of the brain and any major neurological problems. I am scheduled to get an EEG to test for seizure activity.
Does anyone have any suggestions for me? I'm not anemic, and my thyroid is fine. My blood pressure usually runs low, but I'm not sure if that causes me any issues.
Does anyone else feel these weird episodes, with or without lupus? I've seen my ruhmeotid doctor, and my nuerologist (who I HATE), and they are not helpful at all. I'm very nervous, because I feel so over looked because of my age (they all say that I'm "fine" because I'm only 21), but I know how I feel, and it's not right. I'm not a hypochondriac, and I'm just in need to know that others may feel this, or that their may be a solution. ANY thoughts, advice or suggestions are super welcomed, I would be eternally grateful.
Thank you so much,
Jessica