Thank you
Anyone else have an experience with self healing? I have not been diagnosed with an RFV, but am thinking it may be a possibility for me. A few months ago I had a vacuum assisted delivery and 3rd degree episotomy with my 10 lb baby. A couple of weeks after delivery I noticed that when I would pass gas, sometimes it would come out of my vagina. I also notice air coming out sometimes spontaneously but it doesn't make a noise and doesn't seem like gas. My doctor says this air could be completely normal. My doctor found a small dimple in my episiotomy site, but said that he cannot locate a fistula. He says that if I am still noticing this problem in a month that I need to visit with a colo rectal surgeon. Some days I don't have any gas coming out and other days it will happen several times. When it comes out of my vagina it never makes a noise, but I can feel the air coming through. Also, most of the time it happens when I voluntarily pass gas and more often when I'm sitting down. My doctor says he isn't convinced that I have an RFV and could be air "tracking." He said if it is a fistula then it is really small. For those who have had a fistula for years, did it get worse overtime? I read that surgery could complicate things, but I also worry about it getting worse on its own. I have read that wild oregano oil (not safe for breastfeeding), Manukka honey, and lavender oil can be helpful. I am applying Manukka honey once a day and estrogen cream once a day. Also, I have read that with a RFV that feces comes out. Is this always the case and if you do have feces coming out is it obvious or something that could be overlooked? I'm pretty sure there is an issue but my doctor seems to think it may be normal. Thanks in advance for the help.
All I can say is, I'm not alone!!!! How do I find the Facebook privat group? I'm 22 years past the birth of my youngest child and am experiencing more yucky symptoms. I do not want to have surgery. I've known about the fistula for years but was told it was so small that surgery was not recommended at that time. I haven't even discussed recent symptoms with my doctor yet because I'm too upset. Getting older is not for the weak.
I saw these messages in my junk email. I must have put something on this site at one time. I have had rectovaginal fistula since being reconnected after having colon cancer surgery. This has seemed to be a nightmare. I found out I had this in 2012. I had 2 different surgeries to try to place a plug (I believe that is what they called it). Each time this did not work. But believe it or not, in 2016 I started using a probiotic and it seemed to make this thing get better. I haven't medically had it looked at since that last plug surgery that I think was in 2013. I'm always afraid of it getting stretched or torn more by doctors looking at it. So- though prayer, the probiotic and drinking apple cider vinegar with the "mother" in it with water, this thing seems to be better. I can't say that it is completely healed, but I'm not seeming to be passing stool out the wrong way. So it seems to at least be preventing this from happening. I'm praying to be healed naturally. I'm not willing to have this corrected by major surgery so that I would have to be on a bag the rest of my life and lose the natural elimination that I have now.
Careful now, it is truth for some and while scary others to have to hear, A REALITY none the less. It is important for women struggling with this to be well informed- that is, to know the good and the bad in conducting their research. I have dealt with a RVF for approx 10 years now. I have had 7 surgeries in total to attempt a repair. Ive been told by other doctors that my surgeon is excellent. I have had a flap done 3 times. After one in particular my symptoms were much worse - so much feces coming through it was mortifying and horrifying and incredibly depressing. My surgeon finally decided best to leave it alone and my GI doctor prescribed me Humira, a biologic and immunosuppresant (human not mouse protein) used for various diseases including Crohn's, Colitis, arthritis and psoriasis. the Humira was working over the years. basically "keeping symptoms at bay' but each time i have tried to go off it my symptoms get worse. Unfortunately in the last 6 months i've had two extreme flareups of psoriasis which Humira can cause in some people (odd as it's also used to rid the symptoms of psoriasis [notice i don't word the word "cure" anywhere here...pharma doesn't cure - it holds symptoms at bay (to varying degrees) but can also cause a great many side effects, some quite extreme, thus user beware- But yes, the Humira kept my symptoms at bay but i'm now dealing with severe skin disorder, oh and hair loss, that started last year (was tested for thyroid and hormonal and iron and every other possible cause of hair loss - nothing. so likely the humira is causing that too. I would recommend it to those who are desperate but i would also plan to have a surgical repair with a very very practiced surgeon. Seek out Dr. Bo Shen at the Cleveland Clinic in Ohio if you can. I've been off humira twice in the last six months and each time the RVF symptoms come back within a week. It is considered a small RVF by the way- difficult if not impossible to see on an MRI. Good luck everyone.