Please tell me if you have any tips, any at all.
I have the same condition as you guys, and I feel the same. I prefer sports like soccer (prolonged activity) over something like baseball (resting periods and instant movement). Go with the laws of nature (i.e. never resist) : opt for sports that suit us better like soccer or cross country :) instead of sports that need instant movement.
I participate in martial arts, and I struggle sometimes when speed is an issue after rest (naturally, due to myotonia congenita) and I find that fear tends to cause more problems --> I find that when I am calm and ready I am able to handle the tense muscles better than when I am afraid of falling etc.
If you could, I would recommend taking 'softer' (but in no way weaker) martial arts like Judo or Aikido whic emphasize "going with the force". You could tell the teacher about your condition and ask for extra help.
Me personally, if I had that kind of help, it would help lots especially when my friends are goofing around and sometimes give me a friendly shove (accidentaly) I fall so maybe this might help avoid that :)
Although any form of exercise should improve morale and confidence and lessen the tense muscles. Work out at home (safely) if you can, no special equipment other than your own body and determination needed.
I REALLY HOPE THIS HELPS, AND REMEMBER, NEVER GIVE UP! Because of the nature of the condition, we may look weak sometimes, but we can be strong too, after our muscles warm up. And we are going through what most other people cannot imagine, psychologically and physically, and we are still generally happy. We must not feel inferior in any way (but not superior either, just equal).