I applaud you. I do not appreciate/need or want "words" from anyone who assumes we are whining and/or doing everything wrong and not admitting it. I have to think "guest"(ashamed of herself so stays anonymous) . I will not acknowledge that person further. Hi I am Rhonda who went to many doctors for many years to no avail other then Snickers, misdiagnosis or no attempt to look pass thier nose doctors. I had always been so healthy,strong,active n ate "very clean food" (not because I was better then anyone,but because I don't like meat). But I started going to therapy because I needed some kind of relief. My therapist pulled me by my hand to ER because of such rapid weight gain. Bottom line by the time an Endo took my myriad of symptoms serious I was diagnosed with Hurthle cell thyroid cancer,Graves and Hashimoto's disease at one time!! I had a doc laugh n refuse to test me because at that point my eyes were bulging extremely (Graves) but I gained a lot of weight (Hashimoto's) n he said I couldn't possibly have thyroid disease. I told him u r n id**t,a rude id**t. Instead of assuming she eats a chocolate cake everyday n my weight is the problem. He should learn to think past his nose n consider that my weight is not the problem,it is a symptom of a disease. So another doc said I should see a Psychiatrist because he felt I went through something bad as a lil girl that I was blocking out, that I needed to find out why I wanted to "make myself sick"!? At this point I was beat down n taking care of my dying mom so I went to a Psychiatrist. I went for my session n miraculously he had my pathology reports(same others had). Before I sat he said u r not mentally ill,you have a serious thyroid problem that runs in families. He asked if bi-polar was a prob in my family n I said yes in the males. EVERYONE was checked...all misdiagnosed n my lil brother had n has neuroendocrine rectal cancer n is out of time. EVERYONE in my family on Mom's side died of cancer. A cousin today.. Neuroendocrine. I ran circles around my daughter with energy. One week before my thyroidectomy I was landscaping my yard. Since it , it's like who I m was removed with my thyroid,I have very bad shakes. Instead of BP too low n heart rate too high..my BP is 168/112 n my heart rate 40. I have insomnia, hyperactive?,so fatigued can barely walk. I have seizure..m always hungry,gaining weight n m disconnected from everyone n everything like I m looking through a window at life. I want my thyroid back so I can b me again. I feel as though I lost me. And that's just a lil of it.
This forum is toxic as hell. A very different atmosphere to other ones. Lots of posters seem to diagnose or wish horrible outcomes on posters, with no sympathy. I haven't seen a single message from one of the doomsday bunch actually offering any support 'Im sorry you have to have a thyroidectomy and hope you're not too anxious' for the poster. Just lots of women coming in with thoughtless messages about their own experience.
Thyroid UK needs to get some decent mods on here. Toxic toxic toxic.
Do not have the surgery unless you have tried the medication first. There is no guarantee that it will. If I could take my surgery back (beginning of 2022) I would. It was the biggest mistake of my life. It’s ruined my life, I have no energy or drive anymore. I’ve gained 40 lbs. I’m a little over 5’7” and I was 143 previous. I hate being fat, I’d almost rather be dead. I was fit and active before hand and not so depressed. I’ve never been so depressed. I’m not going to kill myself but I’d like to die.