Hello,
Past few months have been true hell for me and I've already seen three doctors and heard their opinion, so I'm hoping someone here diagnosed with scleroderma can help me out.
About a year ago I had to be hospitalized for extreme abdominal pain ad constant vomiting, but after the night in I was released and prescribed Nexium. It felt like Nexium is working for about a month, until the day over my lips started to swell (not too much, but noticeable). Since the dwelling didn't go I had to see a dermatologist who took some tissue for testing and told me I need to be tested for scleroderma. They are now sending me back to have my esophagus tested to confirm the diagnosis.
I've been going crazy searching for information on this, but I feel like I'm already doomed, so I'm grateful for any advice,
Jane
Hello Jane,
even though it's terrifying to wait for test results to tell you whether you have scleroderma or not, you have to keep your mind in a more positive place. I know it sounds shallow, but you are stressing yourself even more feeling like you're doomed based only on one dermatologist's opinion. It's possible dermatologist was wrong, and even if you look at the worst case scenario and it turns out he or she was right, there are people living as normally as they can with scleroderma. It's not a death sentence - true, there is no definite cure for that condition, but there are treatments and medications that make it manageable. After all, it's at least better to get the correct diagnosis and get any treatment at all, than to keep stressing yourself by thinking the worst,
Wish you all the best,
Nicole