In the last 6 months she got infection twice which was of much lesser degree than what happened the very first time. We have decided to wait and watch, if the infection reoccurs frequently we'll go for surgery else we'll let it be like that.
From what i understand your case might not be too complicated since by the colar bone there are no major organs...again this is just a comment based on my limited knowledge.. I hope i am right and your son does not suffer at all.
Hi my daughter has the same thing..im anxious to know what you decide...im not going to put my one year old through that
***Post is edited by moderator *** Private e-mails not allowed*** Please read our Terms of Use
I was diagnosed as an infant and my parents opted to leave it alone. having sever hearing loss i was under the care of an ent my whole life who also monitored my cysts. at the age of 21 i decided to have them removed. luckily i had no medical problems, but they did drain and as a young woman it can be very embarrassing. i had my deviated septum corrected at the same time and i can say it was SO terrible. defiantly in bed for a about a week and on pain meds. i am 30 years old now and i have 2 faint scars, one on each side of my neck. they are in the creases of my neck, so unless i pull my head all the way back to show someone, you'd never notice them.
my son is 13 months old and he was diagnosed at birth with bi-lateral cysts. i noticed the pin holes in his neck right away and when he was 4 days old he had his first ultrasound. he has been seen by 2 ent's and they both advised leaving them alone for now unless infections reoccur. i notice some days they seem larger then others and my ent said thats because they can move closer and father from the surface. i am going for another ultrasound to be sure all is ok. one side drains as well sometimes. since i had this my whole child hood i dont freak out that much but i can imagine being a parent with no experience. these sites are great for advise but if you are concerned get to an ent
Hi, just a quick question. I have the exact same numbness up my jawline and earlobe. My surgery took place almost two months ago. Have you eventually recovered the sensitivity within the past 3 years?
Thanks in advance!
A first branchial cleft cyst is so rare that our specialist said that a surgeon may go his entire career and might only see one. Our daughter was 2 when she had her surgery at Cardon's Children's Hopital in Arizona. Three surgeons, two of which were chiefs of pediatric surgery from different hospitals were involved. They said it would take 2 hours, but it ended up taking more than 4. The riskiest thing is damage to the facial and lingual nerves. One of the pediatric surgeons, who was chief at Cleveland's Rainbow Babies and Childrens' Hospital, specialized in putting severed nerves back together. Thankfully, his specialty in that regard was not needed, as no error was made by the surgeons. However, just because of the disturbance to the nerves during the surgery, she did have a little effect that shows up in her smile. She has a little crooked smile, where one side of the mouth doesn't turn upwards like the other. Small price to pay to have a huge lump in her throat removed. Delaying the surgery just leads to infection. Our daughter's was not yet infected, which was great. It allowed us to get the surgery right away, rather than waiting for an infection to be under control. I'll be glad to answer any questions that anyone may have. Be of good courage!
A first branchial cleft cyst is so rare that our specialist said that a surgeon may go his entire career and might only see one. Our daughter was 2 when she had her surgery at Cardon's Children's Hopital in Arizona. Three surgeons, two of which were chiefs of pediatric surgery from different hospitals were involved. They said it would take 2 hours, but it ended up taking more than 4. The riskiest thing is damage to the facial and lingual nerves. One of the pediatric surgeons, who was chief at Cleveland's Rainbow Babies and Childrens' Hospital, specialized in putting severed nerves back together. Thankfully, his specialty in that regard was not needed, as no error was made by the surgeons. However, just because of the disturbance to the nerves during the surgery, she did have a little effect that shows up in her smile. She has a little crooked smile, where one side of the mouth doesn't turn upwards like the other. Small price to pay to have a huge lump in her throat removed. Delaying the surgery just leads to infection. Our daughter's was not yet infected, which was great. It allowed us to get the surgery right away, rather than waiting for an infection to be under control. I'll be glad to answer any questions that anyone may have. Be of good courage!
did they ever find out why you are having the pain? I too ended up with a 4+ hr surgery and was incredibly active before surgery. I had the cyst for several months before it finally got removed and I was excited to get back to training but now can't lay on the affected side, raise my arm, hold anything out away from my body or even get changed without intense pain in the shoulder. Really hoping someone else would have some suggestions I've got almost 8 wks physio completed with little improvement.
All, not sure if this is an active discussion or not. I have a 4.5 year old son who has branchial cleft that drains from time to time but no major issues. The pediatricians and the ENTs we had seen in the past indicated there is no need to do anything about it. Yesterday we saw an ENT at Children's Hospital in Minneapolis and he said its a standard procedure to remove this shortly after birth. He tells me I should schedule a surgery to have it removed because there will likely be problems later, typically during teen years and that there is about a 10% change of developing cancer from having a brancial cleft tissue. So I'm in complete shock, really? Suggestions? Resources? I'm concerned that this is a very invasive surgery.
@billytheKid, thank you for your post. I am 52 yrs old with the stinking cyst and scheduled for surgery. Been healthy my entire life and having this lump on the neck was a wake up call. I can pretty much tolerate pain as I have had wisdom pulled and hardly took the pain meds for it. I am not allergic to any meds whatsoever.
Surgery scheduled for June 19th and planning to be back to work on the 24th of June if all goes well.
Thanks...
You're also a bit of a w*nker, aren't you billy? of course people have a right to complain. Get over yourself! I suggest you take your self righteous comments and tell someone who cares! Who are you to tell people what they can and can't feel! Dear god what an a**hole!
Sounds a bit like nerve damage (although I'm completely unqualified to make that statement! have you been back to the specialist?