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Before new year 2024 i had a cold, then sinus infection. Took antibiotics and steroids. I suddenly had horrible pain upon touch to the mastoid behind the right ear. It was all swollen and painful behind the ear lobe too. Whole right side of my face was red and hot to touch, swollen. Ear began suddenly ringing loudly and constantly. I rushed to the ER to get checked thinking I had a severe ear infection. Painful for doc to put probe in my ear to look. No infection upon visual exam. Felt dissatisfied with that answer. Went to urgent care and they gave more antibiotics and steroids. Referred me to ears nose throat doc that said there's nothing wrong. Referred to neurology and neurology referred me to different neurologist and waiting on an appointment. Went to infectious disease specialist and they ruled out mumps and cat scratch disease. Went to endocrinologist and had a sonogram of neck which showed lymph glands all swollen. Without answers after two full months of lost sleep, pain and suffering I started taking benedryl before bed and doing jaw widening stretches every day. This appears to be helping. Things are popping cracking in my neck when I stretch my jaw. Trying some Chinese medicine techniques to move the hot energy from my head down into my core. My head was hotter than my core which should not be according to Chinese medicine. (TCM). So far this eastern medicine technique has helped more than western medicine. Western medicine has no clue. I know there is excessive swelling still happening and I have caught myself in my sleep clenching my rear teeth. Next step is to take muscle relaxers or short acting anti anxiety medicine before bed in combination with sudaphed, as not to make myself overly sleepy. It still does not address swollen lymph's which is the mystery. Have spoken to hundreds of people on Twitter that are having same symptoms. Could this be disease x?
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