I've had a variety of symptoms from slurred speech, peripheral vision problems; imbalance & coordination (fumbling things,dropping things, bumping into things, knocking things down), dizziness, grogginess, head pressure-icy sensation like cold water running down left side of my head (I've had this distinct feature for years before the onset of everything else). I've sworn I've had ollfactory hallucinations (smelling things which aren't there. Usually dirt, or one time it was a burnt smell); I get dry mouth/lips, chapping/peeling of lip skin; I've had cotton mouth, extreme nausea, eye pressure. I've had times where I felt like I was going to pass out.
The MRI revealed a sizeable pineal gland brain cyst. But the neurologist says the symptoms described (I've been clean for 18 months) are unrelated to the cyst. I've only recently begun having mild episodes of the dizziness, imbalance, pressure, grogginess...I noticed my neck crunches. Like everyone on here, it's GOT TO BE something, because we all have the same symptoms. I didn't have this til after my youngest child was born (1998) so in the last 10-12 years. It nearly fits the criteria for Menieres disease. No one can diagnose it. I've been through all types of tests. I'm not diabetic, my blood pressure is considered perfect, my cholesterol is ok, no thyroidism, my blood levels are fine. The neurologist has said it's probably viral,therefore re-occuring; that's why it comes & goes-related to inner ear. This is not proven. I wish someone would diagnose it so it can be treated, because some days it's nearly disabling, causing sadness. I'm carrying a big burden of complex litigation. I need my mind to be clear & focused. If I feel like this (dizzy, nauseous, groggy) I'm not mentally coherent!
I do believe it could be some form of bacteria present in the system or something to do with the neck vertebrae. I find my neck crunching & crackling when I move it. That can't be right. I'm surprised I don't have brain damage with the amount of abuse (childhood-parental, violent marriage). I've been hit by a vehicle (hit & run & purposeful/spouse) I've had countless severe accidents involving smashing my head as a child (no treatment, parent naive & negligent); I've been smashed around & beaten, thrown down stairs, smashed into walls,bounced off floors-punched repeatedly in the head (open & closed fisted-parental/spousal violence). One health professional is amazed I don't have neuropathy's &other disorders (I'm started to have a multiplicity of muscle myalgia type things; neuropathys (nerve/tissue pain) etc. Right now I have a strange sort of cool/burning sensation throughout my head. Some argue that it's bacteriological. I've been vaccinated against everything going(TB, tetnus, diptheria, HEPA/B; pertussis, measles, mumps, rubella, chickenpox etc.). But I was found to be a carrier for group B strep (causes infant meningitis during deliver). I also seem to be prone to cystic conditions & strange strep illnesses. I sometimes think it's an immunological inflammation that causes these symptoms, but i don't know why now & not throughout my life. But i think there's a theororetical correlation. The group B strep wasn't discovered til I delivered my last child (1998). Interestingly the onset of this condition seems to be post-1998.
I had the similar symptoms! But unlike you I suffered for the last 7 months only. God helped me and He will help you too.
What I did are as follows:
1) I had two root canalled teeth and I got rid of them because they contain toxic bacteria which lives in your dead tooth and causes neurotoxicity.
2) I had my silver amalgam feelings as they contain 50% of mercury which is an extreme neurotoxin! But go to a dentist who follow IAOMT standard for removing amalgams.
3) I avoid foods with MSG (monosodium glutamate)! 90% of the packaged foods in super market contain MSG
I did these after huge internet studies and failing three four specialist doctors and lot of tests e.g. CT scan, nerve conduction test, blood tests etc. I suggest you go to Utube and search for "root canal danger" google video for "poision in your mouth" and Utube for "MSG danger" and you'll get the idea!!
I am quite normal now but within last 3 months I had been hospitalized 3 times. God bless you.
Thank you so much for writing this post as iI sat here reading your story I was thinking she could be talking about me . But I have not told my Gp I am scared of what he will say . Like you I cannot get up to open the door without nearly falling on my neighbours . When I go like this my speech I have been told is incoherent . My neck sound like it,s grinding when I turn to look at something and the most scary symptom of all is this ice cold patch on the left side of my brain but it does not feel like it is trickling . Find it hard to explain because it is an alien feeling . I have to admit that I have experienced this feeling on and off for a few years but it was just like any other part of me that went numb it passed . I do not know what I will gain from joining this site , maybe the courage to see my Gp but I suddenly do not feel as if ( excuse the pun ) this is all in my head . so thank you who ever you are
2mindless wrote:
I have been dealing with a variety of similar symtpoms for the past 8-9 years. Only in the last 3 years did things intensify so badly that I had episodes (singular spells) whereby I was completely debilitated. During one lesser "episode" I pressured emergency to send me for scans. They arranged for a CT scan. I received a call 7 days later asking me to go for an MRI. After the MRI, they said I had to see a neurologist who would read the scan & explain it to me. This was a month or more later. Not once would anyone tell me if they'd FOUND anything, or what they may or may not have suspected.
I've had a variety of symptoms from slurred speech, peripheral vision problems; imbalance & coordination (fumbling things,dropping things, bumping into things, knocking things down), dizziness, grogginess, head pressure-icy sensation like cold water running down left side of my head (I've had this distinct feature for years before the onset of everything else). I've sworn I've had ollfactory hallucinations (smelling things which aren't there. Usually dirt, or one time it was a burnt smell); I get dry mouth/lips, chapping/peeling of lip skin; I've had cotton mouth, extreme nausea, eye pressure. I've had times where I felt like I was going to pass out.
The MRI revealed a sizeable pineal gland brain cyst. But the neurologist says the symptoms described (I've been clean for 18 months) are unrelated to the cyst. I've only recently begun having mild episodes of the dizziness, imbalance, pressure, grogginess...I noticed my neck crunches. Like everyone on here, it's GOT TO BE something, because we all have the same symptoms. I didn't have this til after my youngest child was born (1998) so in the last 10-12 years. It nearly fits the criteria for Menieres disease. No one can diagnose it. I've been through all types of tests. I'm not diabetic, my blood pressure is considered perfect, my cholesterol is ok, no thyroidism, my blood levels are fine. The neurologist has said it's probably viral,therefore re-occuring; that's why it comes & goes-related to inner ear. This is not proven. I wish someone would diagnose it so it can be treated, because some days it's nearly disabling, causing sadness. I'm carrying a big burden of complex litigation. I need my mind to be clear & focused. If I feel like this (dizzy, nauseous, groggy) I'm not mentally coherent!
I do believe it could be some form of bacteria present in the system or something to do with the neck vertebrae. I find my neck crunching & crackling when I move it. That can't be right. I'm surprised I don't have brain damage with the amount of abuse (childhood-parental, violent marriage). I've been hit by a vehicle (hit & run & purposeful/spouse) I've had countless severe accidents involving smashing my head as a child (no treatment, parent naive & negligent); I've been smashed around & beaten, thrown down stairs, smashed into walls,bounced off floors-punched repeatedly in the head (open & closed fisted-parental/spousal violence). One health professional is amazed I don't have neuropathy's &other disorders (I'm started to have a multiplicity of muscle myalgia type things; neuropathys (nerve/tissue pain) etc. Right now I have a strange sort of cool/burning sensation throughout my head. Some argue that it's bacteriological. I've been vaccinated against everything going(TB, tetnus, diptheria, HEPA/B; pertussis, measles, mumps, rubella, chickenpox etc.). But I was found to be a carrier for group B strep (causes infant meningitis during deliver). I also seem to be prone to cystic conditions & strange strep illnesses. I sometimes think it's an immunological inflammation that causes these symptoms, but i don't know why now & not throughout my life. But i think there's a theororetical correlation. The group B strep wasn't discovered til I delivered my last child (1998). Interestingly the onset of this condition seems to be post-1998.Thank you so much for writing this post as iI sat here reading your story I was thinking she could be talking about me . But I have not told my Gp I am scared of what he will say . Like you I cannot get up to open the door without nearly falling on my neighbours . When I go like this my speech I have been told is incoherent . My neck sound like it,s grinding when I turn to look at something and the most scary symptom of all is this ice cold patch on the left side of my brain but it does not feel like it is trickling . Find it hard to explain because it is an alien feeling . I have to admit that I have experienced this feeling on and off for a few years but it was just like any other part of me that went numb it passed . I do not know what I will gain from joining this site , maybe the courage to see my Gp but I suddenly do not feel as if ( excuse the pun ) this is all in my head . so thank you who ever you are
I have experienced similar symptoms. I do have a small chair malformation. Have you found out what is causing it?
I have been dealing with these symptoms since 2006. I am still in the process of testing and will notify everyone in detail if I get any satisfactory answers. Until then, keep up the good fight.
YOU DONT KNOW WHAT A MIGRAINE IS.... INTIL YOU'VE HAD THIS GO ON! THEN ITS WELL NEVERMIND! DONT DONT PUT YOUR "I KNOW" OR "I UNDERSTAND PAIN" IN UNTIL YOU'VE EXPERIENCED IT YOURSELF! I DO KNOW HOW MINE STARTED, NOW I HAVE M/S!, NOT FUN
I have similar issues. I have horrible dizzy spells and then tingling sensations in the back of my head that lead to extreme blurred vision. I have been getting horrible headaches and memory loss. Ive also been feeling a horrible chocking sensation in my throat everyday I feel like im sufficating!
have you guys ever taken antibiotics cipro, avelox, or levaquin
they been n
known to cause central nervous system damage