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Long story short. My ENT Dr, told me that my hearing test came back fine, she also looked over my MRI and said that she cant understand why my Neuro didnt tell me that I have Cerebellar Ectopia. I dont know if I should even bother calling the neuro or just go to a total different one all together now. How can I ever trust this guy again? HE did tell me he seen SLIGHT abnomalities but NOTHING like my ENT was telling me. I just googled it and from the symptoms Ive seen on there, Im almost certain THIS IS the cause. Well I am going to call my group of Dr's and see If I can see a different neurologist and see what happens from there. Will keep you all posted

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Called my Neuro after the ENT scared me to death, he told me to STOP listening to her when it comes to NEURO stuff, she is an ENT not in his line of work etc...
SO tomorrow I drop off my 24 hr urine sample, to see if this is adrenaline related! CRAZY RIGHT! I went to a chiropractor today, SCARED and This besides a dentist are my last resorts. SO while in the Chiro, im tellin him EVERY single thing that has lead up to this day. Long story short he just happend to go to his Dr today and was tested for some kind of issues with his adrenaline, sounded VERY much like OURS! so sittin in his office he gets playing around with his computer and starts to SHOW me all this stuff about adrenaline and all I could do was SMILE becuse this has GOT TO BE IT! It all ADDS up(for me anyway) the numbness, tingly feelings, TIRED ness like I worked a 20 hr shift after just waking up. The thing is I dont operate NORMAL hours, my life it totally on a different time line. I go to bed around 4am, by then i am starving, eat dinner around 7ish-sometimes later, so he explained to me, its kinda a blood sugar thing. I wake up around noon, which means i dont eat breakfast, I snack or grab something small to eat to tide me over til dinner, then i have nothing to eat til that next day, it totally taken its toll on my body. Vit D levels are extremely low, lack of sun light because im in bed and i live on the east coast, many people are low Vit D this time of year, but mine in extra low. So now to wait on the urine test, because my blood test of my cortisol level already came back very high, which ALL Ties into the adrenaline issue-pituitory glands etc. Hopefully this is MY issue. So while in the chiro I had my back adjusted-which was totally agaisnt what my Neuro told me to do, not because of anything other then he says its just not safe, but seriously at this point im willing to TRY ANYTHING that MIGHT fix or make me feel better. Will keep you updated on the urine test once I hear the results
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My face just started to feel the same way about 3 weeks ago. It goes all the way from the left side of my jaw up to the top of my head. The reason I am writing u is to see if u know Wat it is or if u even have a clue of what it might be. If so can u PLEASE LET ME KNOW .... Thank u very much
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Still no REAL answer. I just went yesterday for more blood work from a new Dr. Since this all started back in Dec 2012, and Ive had some time to figure out when this happens more often which is really BAD a week before I get my period, that week then the week after. I have also noticed it happens when I get hungry....which NOW Leads me to believe it may have something to do with my sugar levels. Im going for a glucose test at the end of May. So with the blood test I had done yesterday and the gluclose hopefully we will be able to figure something out. this is all so LIFE consuming. Im tired of it. I just want to be ME again. I will deff keep you posted

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For anybody that hasn't read from the beginning of this topic ... I had these symptoms, plus other symptoms that seemed unrelated, but it all turned out to be heavy metal poisoning because my liver wasn't detoxing properly.  Mercury and silver poisoning from dental fillings and childhood innoculations, lead from make-up and sanding down old houses originally painted with lead in the paint, copper from old copper pipes and so on.  Most people's pass through them but because of my liver, which I didn't know about until the toxins really built up, until my body started to react.  So, toxins are something to consider.

 

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Did u get your results from a blood test? Dont wanna sound stupid, but that way I know what to ask for when I go to my NEXT appt. Its just never ending I SWEAR!

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I'm feeling my left side of my face and lip numb. I was having an anxiety attack yesterday. I don't know what it is. I'm going to go to the doctors tomorrow to see what it is.
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Hi all,

 

Could you give an update as to your diagnosis?  I am experiencing facial numbness on my right side of face.  I have been treated for sinusitis.....but......? I am scheduled to see an ENT in a few days.

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yes i have got it now,also affecting nose and occasionally eyes
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i have numbness in my face and my doctor told me it was anxiety don't sound right plus my arm goes numb too anyone got any information
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I have when I was younger. My face would even draw like a stroke. My symptoms and the Dr's concluded that I was having Grandma Seizures. I hope the best for you and God bless!
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I had eagles syndrome which caused all these symptoms,have had double neck surgery now,still experiencing slight facial numbness
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Hi I am having random feeling of numbness but not weakness like what you have described in different parts of the body hands ,feet , face , neck for last 2-3 weeks . Did you find any answer for your problem
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I have numbness around my nose lips for over 9 months I've seen my doctor, my neologist and even my dentist who even referred me to a specialist and nothing yesterday I went and got an MRI so now I wait.
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My guess is that it is anxiety. It happened to me at work several years ago. My boss was a bully and she was trying to fire me. My blood pressure was always up when at work. One day the harassment got so bad that the left side of my face and all the way down my arm went numb.
I thought I was having a heart attack! I immediately went to the on-site nurse. She took my blood pressure several times overy the course of 45 minutes. Most of the numbness subsided but she had me call my doctor and go directly to see him. I had tests done and fortunately it turned out to be STRESS! Stress can kill you.
I went on fmla medical leave and returned to work 6 weeks later, the Monday following her last day as she was fired. I am still at my same job and have not had that ever happen again. I hope you can get treatment for whatever this turns out to be. Have a blessed day!

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