First I was on lamictal then Keppra and finaly as last resort Felbatrol now for about a year. I wanted to know if anyone else talked a lot, rambled, and had sun sensitivity like an itchy burning feeling in the direct sun light from Felbatrol.
I can tell you my friends experience with Felbatrol. She started 2001 with therapy but increased dose with time to maximum. She hasn’t had sun sensitivity….but she did lose 40 pounds. She had absolutely no desire for food and would dry heave several times a day. Taking Dilantin and Tranxene were almost impossible because she would gag and vomit, but her neurologist didn't want to believe it was the Felbatol. Eventually her pediatrician put her in the hospital because of dehydration and she weaning her off the Felbatol, her appetite returned gradually.