My daughter has same symptoms. She has all the test and all come back normal, with the exception of the HIDA scan EF rate was 98%. The problem is her gastro DR feels this is normal. Anyone willing to share who their specialist is that believes high EF rate just as bad as low EF rate and willing to remove the gallbladder? We are located in Ohio but would be willing to travel for the right DR. This has been going on for over a year and her pain, nausea, vomiting, diarrhea are daily.
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My daughter has same symptoms. She has had all the test and all come back normal, with the exception of the HIDA scan EF rate was 98%. The problem is her gastro DR feels this is normal. Anyone willing to share who their specialist is that believes high EF rate just as bad as low EF rate and willing to remove the gallbladder? We are located in Ohio but would be willing to travel for the right DR. This has been going on for over a year and her pain, nausea, vomiting, diarrhea are daily.
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My daughter has same symptoms. She has all the test and all come back normal, with the exception of the HIDA scan EF rate was 98%. The problem is her gastro DR feels this is normal. Anyone willing to share who their specialist is that believes high EF rate just as bad as low EF rate and willing to remove the gallbladder? We are located in Ohio but would be willing to travel for the right DR. This has been going on for over a year and her pain, nausea, vomiting, diarrhea are daily.
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Hello, would you mind telling us what city your doctor is in? Also, none of your tests showed sludge until you for it taken out? Thanks!
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The only indication of sledge was the nurse telling me after the operation. The report didn't even show it. My doctor is in Eugene Oregon.
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Hi all!
I have had pain on and off for years that made us think gallbladder pain. All scans have been clear but my ejection fraction rate is high- 94%. My GI hasn't seen the latest research on biliary hyperkinesia, I suppose, so I'm reading up on it.
Right now, though, I'd really like to keep my gallbladder, if I can. I recently had major surgery to resolve a rare syndrome called MALS, or median arcuate ligament syndrome. It's symptoms present INCREDIBLY similarly to gallstones/dyskenesia, but the gallbladder has nothing to do with it. The syndrome is fairly newly discovered and surgical treatment is even newer, with mixed results. The kind of surgery I had is so new that there ARE no known long term results.
That said, I'm still having pain after this surgery, and I'm trying to decide which path of treatment to explore next- gallbladder removal or a stent in my celiac artery. It may end up being both. So, I have a question:
Those of you with a high ejection fraction rate that had your gallbladder removed: did you see a relief of symptoms? Please and thank you!
I have had pain on and off for years that made us think gallbladder pain. All scans have been clear but my ejection fraction rate is high- 94%. My GI hasn't seen the latest research on biliary hyperkinesia, I suppose, so I'm reading up on it.
Right now, though, I'd really like to keep my gallbladder, if I can. I recently had major surgery to resolve a rare syndrome called MALS, or median arcuate ligament syndrome. It's symptoms present INCREDIBLY similarly to gallstones/dyskenesia, but the gallbladder has nothing to do with it. The syndrome is fairly newly discovered and surgical treatment is even newer, with mixed results. The kind of surgery I had is so new that there ARE no known long term results.
That said, I'm still having pain after this surgery, and I'm trying to decide which path of treatment to explore next- gallbladder removal or a stent in my celiac artery. It may end up being both. So, I have a question:
Those of you with a high ejection fraction rate that had your gallbladder removed: did you see a relief of symptoms? Please and thank you!
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I'm a family physician and discovered this phenomenon from Dr. Scott Lewey, celiac specialist. I had right upper quadrant pain for two years, all tests normal. Then had 90% EF on HIDA scan. Discuss with Dr. Lewey, had my gallbladder out, pathology was abnormal, pain resolved. Since then have had 12 patients with right upper quadrant pain, 90% HIDA. 100% of them improved with getting gallbladder out.
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My HIDA scan ejection fraction was 88% and I keep having a LOT of pain. How did you get your doctor to remove your GB??
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I just replied to another person about this. But, my HIDA scan was at 88%, and I keep having severe pain, and I know that I need my gallbladder out, but I don't know how to talk to my doctor where he will understand that I need it out.
Could you help me with this, I desparately need some help with this.
Could you help me with this, I desparately need some help with this.
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I've got most of the same symptoms y'all are talking about. I've had urine tests, ultrasound, CT scan, HIDA scan. The HIDA shows 96%. Doc says tests are normal but your symptoms point to gall bladder. He said " wanna do it Friday?" Yes. Tomorrow it's coming out. All of these tests ate up my deductible! Time in hospital will be covered!
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I am personally convinced there is a direct issue with the vagus nerve that can be applied to one of two things:
1. Parasite or fungal infection
2. Excessive WiFi exposure
No MD will ever admit that either of these are likely.
1. Parasite or fungal infection
2. Excessive WiFi exposure
No MD will ever admit that either of these are likely.
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How did your surgery go?
I have been down this road as well. Male, age 34, 9 months of pain, mainly in the gallbladder region and upper right back (also common spot for gallbladder pain), with also intense bouts of belching/indigestion. After 9 months I have figured out my main triggers-- fat, caffeine and stress. If I limit those things (I can't even drink tea now) I can live a somewhat "normal" life. I have had scopes top and bottom, 2 Ultrasounds, 3 blood workups, CT scan, and a HIDA. Only thing abnormal was the HIDA. I came in at 95%, and then had pain for 3 days following the test. CCK caused indigestion during the procedure, but the pain came on a few hours later.
Meet with surgeon and GI who say it's overactive and needs to come out. I scheduled to get it out in 6 weeks or so.
I have been down this road as well. Male, age 34, 9 months of pain, mainly in the gallbladder region and upper right back (also common spot for gallbladder pain), with also intense bouts of belching/indigestion. After 9 months I have figured out my main triggers-- fat, caffeine and stress. If I limit those things (I can't even drink tea now) I can live a somewhat "normal" life. I have had scopes top and bottom, 2 Ultrasounds, 3 blood workups, CT scan, and a HIDA. Only thing abnormal was the HIDA. I came in at 95%, and then had pain for 3 days following the test. CCK caused indigestion during the procedure, but the pain came on a few hours later.
Meet with surgeon and GI who say it's overactive and needs to come out. I scheduled to get it out in 6 weeks or so.
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