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I have been tested for Lupus but its negative
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Good luck. I have been trying just like you for a year and no diagnose. I also have severe swelling in my feet ankles and calves I have gained 35 pounds in four months. My legs hurt so bad I can hardly walk. I am 52 years old. It should not be like this. They can tell just by looking at me that something is really wrong. When I first joined this website, I complained mostly about the water retention, and of course the pain. They took that out of my original message for some reason. I have been reading about some other reasons for swelling and these people went to the emergency room and were diagnosed through a lot of testing done there. Tired of going to all of these doctors, I think that might be what we both need to do. I am tired of having all these tests done a month apart from each one and still cant find the problem.

Hope you are feeling ok today, I am just trying to get by right now. Write me back if you want to talk anymore about it. I will let you know what happens with me. I actually have another test this Wednesday. LOL

Lou Ann

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Are you taking any medications? I started taking Aleve (Naproxen Sodium) and it caused my legs, ankles, and feet to swell. As soon as I stopped, the swelling went away.
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I also went to so many doctors I have same problem and no one seems what is it..i go to the different doctors every two weeks I am tired and so tired of the pain... no..i don't take aleve..I wish that was it..thanks for the reply..someone help
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Yes, I take a ton of aspirin on my own. I have wondered if this if a lot of the problem. However, the doctors wont give me anything for pain and I hurt so bad.
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I was diagnosed with Ehlers Danlos Syndrome. People with that often have POTS which can cause dizziness.
They also have a lot of joint/muscle pain. It maybe something to investigate. You may need to find a geneticist who maybe able to help diagnose if it's a genetic disorder. Good luck.
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Late stage Lyme disease sounds like me, they run MS ALL the time, Lyme also gives white " markers in brain" or inflammation in spine! It sounds like Lyme Borrellis, Babbisia , you may feel better try this on Amazon or eBay Burbur drops, bandoryl drops,samatro drops pasely drops .
First the burbur and bandroyl drops five drops each in a GLASS NO PLASTIC about 1 inch water drink it, best on empty stomach don't drink anything or brush teeth etc prior then wait.....15 minutes do same with Samatro & pasely drops 5 each of both, in a glass of water 1". Drink if you flair you have Lyme, if you feel nothing do once morning once at night ,if you flair that's herding, meaning the Lyme parisites are being hit, your muscles May ache more GOOD that means they are getting in there and killing them, try this everyday, if you flair, herx, too much skip two days then hit them again, take those 2 days drink warm water and fresh lemon all day!!! Detox with Epson salt baths hot is good, try Dr teals in Walmart... take probiotics 30-50 billion 3 a day but space 2 hours before or after drops or antibiotics, then do milk thistle to cleanse liver, D3 check B 12 and good luck , your D3. Or even red blood count iron may be low, hthat makes you feel this way but LYME DISEASE is sexually transmitted so be careful, all and yes get closed MRI best is 3 Tesla machine, FIND a GREAT Lyme Dr. Too neurologist run MS ALS FIbribomyligia

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I have come across this person who has been on dr. Oz and Oprah and numerous other news shows he's called ....The Pain Whisperer......look him up..... He has cured People Like Us and only a few short hours I using his hands...... I am saving up to go to him.
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Me too. I'm a 65 years old black woman [not sure if this a gene ] I too have they symptoms. Pain like electric shock waves down my spine, It seems as if I can't get enough sleep, vision change, and memory lapses. Getting scary, the other day I walked out my kitchen and forgot to turn the water off.If anybody here experiencing this and been treated please let all of us know what's going now..
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I was just about to add this type of message as this is pretty much the same for me as a 32 year old female and it started around 5 years ago. But only recently diagnosed with the deficiency. Since taking d3 (with a few others like magnesium and zinc I have been feeling a lot better! Moderate walking for two hours up and down hills is now possible. Xx
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Whoa, my leg stiffness showed up after I started having persistent sinus problem and postnasal drip..
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You're JOKING, right?? You want to see a doctor just for DISABILITIES. Yeah lady you want to live off the government. DO YOU WORK? Have you ever earned Soc. Security. I've listed through this and I can see why doctors run away when they see you. YOU ARE A HYPOCHONDRIAC if I've ever seen one. You've already had TOO MANY TESTS with NO health insurance. And the same answer is for those who who reply and say "Oh you TOO??" If you apply for disability you actually NEED a disability and ya ain't got one!!
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What is the cause and treatment for back & legs stiffness, and pain and balance problem?
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Just had my bloodwork done and my b12 was sosssoooooo low.
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I had a kidney stone removed 2 weeks ago. This week I had the stent removed, That night the pain and burning started in my tighs and hips. If im sitting im good, if im standing im good, if i go from sitting to standing , i suffer. Both legs feel like they are burning, cramping, and shaking. It take a moment to catch my breath and continue walking. It is keeping me awake at night because everytime i roll over i wake up with pain.
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